A great positive-spin tbi piece in Parade Magazine by Lee Woodruff. It’s about a year old, but it’s still a good thought-provoking read…
September 6, 2008, was a clear-blue Indian summer day in Nebraska. Jennifer Ruth sat in the stands and watched her 12-year-old son, Derek, run with the football. She was unconcerned when he was tackled in a routine play. But as he fumbled the ball, she remembers seeing his right arm drop oddly, almost in slow motion. “He never does that” flickered through her mind. The coach noticed a glazed look on Derek’s face in the team huddle. He pulled him aside and asked him for the date, score, and his brothers’ names. Derek answered correctly. Then, minutes later, he screamed, “My head,” pulled off his helmet, and collapsed.
Derek was taken to a trauma center and went into surgery. After several weeks in the ICU and months of therapy, he is regaining his physical and cognitive abilities. At first, he could only give a thumbs-up or thumbs-down response to questions; now he reads at a sixth-grade level and tackles algebra problems.
A decade ago, Derek’s prognosis might not have been hopeful. But thanks to advances in the treatment of traumatic brain injury (TBI), the outlook for patients has dramatically improved. “ Research points to the amazing regenerative powers locked in our brains,” says Dr. Col. Rocco Armonda, senior Army neurosurgeon at Walter Reed Army Medical Center in Washington and at Bethesda Naval Hospital in Maryland. “The proper therapies can help with the unlocking.”
BB -
It’s funny but this article has been a bit of controversy – I didn’t like the article at all – in fact I felt it did a HUGE disservice to brain injury and rehab – it gave the impression that there were these wonderful cognitive programs that could restore people to their regular functioning in a relative reasonable period of time, that these services could be tailored to everyone’s particular needs, and that so much has changed that brain injury is ‘curable’.
The reality:
The is little funding still for most services, most insurance plans cover very little especially in cog rehab – which may be needed for years to be helpful.
Recovery of any kind is YEARS – not months, not a year or two but YEARS.
There are no miracle programs – this is slogging through a lot of really frustrating activity, going round in circles, making mistakes over and over and over, training yourself to be disciplined about organization, planning, memory skills, rethinking your life career etc
While I appreciate the Woodruffs bringing attention to the issue Bob Woodruff got top ranked care – the vast majority of people DO NOT receive ANYTHING like that – they may get a few months of cog rehab, some PT, and a year of neuropsychological counseling. The existing services for TBI are terrible, un-coordinated, cookie-cutter, short term, and severely underfunded. 90% of the survivors DO NOT get any thing that is customized – most do not get even half of what they need that would truly empower them and enable them to have productive lives with true quality of life
VERY little is still understood about tbi – especially mild tbi. There are probably many many people who have TBI’s and don’t recognize it as such – they are just considered ‘moody’ or easily distractible or have other issues in relationships etc. We know virtually nothing about how the brain works and organizes data, repairs itself or re-organizes after a trauma. Much much more research and money is needed to allow professionals to understand tbi, provide better tools for helping people recover (whatever that may mean), better ways to diagnose and to eliminate the stigma involved. 80% of tbi survivors do not recover their previous employment levels, and equal number lose experience loss of spouse, family and or friends, NO ONE wants to tell a prospective employer they are a survivor. Most tbi survivors do not write books or go on tours or have understanding supports – they end up financially destitute or in severely reduced circumstances, alone, struggling and often develop addictions as a result.
The article presented a rosy cheery picture of tbi – just like having a hip replacement – tbi is a life changing event and is underfunded and not understood. there are no ideal treatments and many people end up overdrugged – even by the ‘professionals’. I get frustrated by such articles because they mislead.
Some folks in advocacy agree with me and others don’t. Some feel that any attention to TBI is helpful and that at least by making it less strange it encourages people to accept that many people do have tbi’s and are ‘normal’. So I admit that my opinion is not universal. I will also say that this was the second brain injury article by that paper that focused on a well-connected individual who got amazing health care – and in this other case that person did make a phenomenal recovery – again, the kind of recovery that 99% of tbi’s do not make. So some of my frustration is also based on that. I would love to see a Ordinary Jane or Joe has a tbi story – and what it means to lose your career, to lose your home, to have a changed marriage, to try and re-create a self, to have 3 months of cog rehab and told you are ‘fixed’ because your insurance ran out – to struggle in school, at work, to lose your job – all these things that are what happen to most Americans – including our Vets.
Healthcare is a critical issue in this country and tbi is part of that. It will be ignored and forgotten if the true loss of lack of care is not made clear.
Okay – I’ll step down off the soapbox now.