TBI and Fibromyalgia

I just found this blog talking about Fibromyalgia and TBI — Fibromyalgia Haven. This is of real interest to me, as this may be an issue for me, as well. I’ve been dealing with a lot of stuff over the years, including debilitating, chronic pain, but I never seriously dug into the fibromyalgia piece of it. I was provisionally diagnosed with an autoimmune disorder, back in 1987, after I started having a skin rash and intense joint pain, confusion, and various problems. It was also after a car accident that scrambled my thinking (I couldn’t understand what people were saying to me — I was intensely confused), and I ended up quitting my job so I could devote myself to drinking full-time.

Over the years, I have coped with the pain in various ways, primarily through what I call “analgesic stress,” and it’s been more or less effective. I just tend to block out the pain, now, after never getting any substantive help from doctors for my problems. I know folks with “fibro” but I never really considered it might be a factor with me — until I recently came across info about skin rashes coming with fibro. That rash that wouldn’t respond to ointments was what led doctors to diagnose me with that other condition — which was never substantiated by any of the many (and I mean many) blood tests I took over the years.

I don’t have time to go into this now, but I did want to link to the blog, for your reading enjoyment.

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Author: brokenbrilliant

I am a long-term multiple (mild) Traumatic Brain Injury (mTBI or TBI) survivor who experienced assaults, falls, car accidents, sports-related injuries in the 1960s, '70s, '80s, and '90s. My last mild TBI was in 2004, but it was definitely the worst of the lot. I never received medical treatment for my injuries, some of which were sports injuries (and you have to get back in the game!), but I have been living very successfully with cognitive/behavioral (social, emotional, functional) symptoms and complications since I was a young kid. I’ve done it so well, in fact, that virtually nobody knows that I sustained those injuries… and the folks who do know, haven’t fully realized just how it’s impacted my life. It has impacted my life, however. In serious and debilitating ways. I’m coming out from behind the shields I’ve put up, in hopes of successfully addressing my own (invisible) challenges and helping others to see that sustaining a TBI is not the end of the world, and they can, in fact, live happy, fulfilled, productive lives in spite of it all.

4 thoughts on “TBI and Fibromyalgia”

  1. I have just been diagnosed with fibro two and half years after a moderate TBI. The symptoms have been there noticeably for the last year and a half.
    The only relieve offered by the docs was steroids, anti inflammatorys and pain relieve drugs.
    All of which are designed to mask the symptoms not treat the problem.
    After a bit of research I decided not to support the drug cartels and go down a more natural path. I came up with the following and I am having a good response to them 1 month in.
    The first is Fucoidan, which is a seaweed extract from the wakame seaweed, mine is sourced and supplied in NZ, as it was tested to be the most uncontaminated .
    1 spoon a day in a glass of water half an hour before eating. (Morning seems best)
    The second is Serrapeptase, 80000 IU, an extract from silk worms and a natural anti inflammatory.
    2 tabs twice daily.
    The last is Pycnogenal French maritime pine bark extract 100 mg.
    1 tab twice daily.
    The results after a month are for me a reduction in headache, dramatic decrease in muscular and joint pain, I the fact I can now function with out continual brain fog.
    I have started back at work again, though fatigue needs to be managed.
    If I miss a day, the reversion is noticeable.
    Hope this may help others.

    Liked by 1 person

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