It’s been a really rough 24 hours. I finally got to a breaking point, and melted down in a huge screaming/crying jag last night. I just ended up pushed over the edge by my fatigue and exhaustion and being overloaded by a lot of extra issues, including homeowner concerns — maintenance, upkeep — and health problems.
My newest concern is not having adequate dental coverage. It’s a huge added stress in my family that I know I need to rectify. Dental bills can run into the many thousands, as Judge Sonia Sotomayor can attest (she’s got $15,000 in back dental bills according to her personal financial records), and it doesn’t feel good, even in terms of hundreds of dollars. I’m not over my head in hock over dental bills, at this time, but I could get there quickly, and I need to arrange for coverage, so I don’t get to that place.
But the prospect of doing that drives me nuts. I get so turned around and confused by all the information, and then I never know if I’ve made the right decision, and I’m afraid I’ll end up paying all this money and making decisions that can’t be reversed very easily. I know I need to keep my head on straight about this and not panic. I just need to figure out how to do it, map out my plan, and do it. But I haven’t been able to manage that. I’ve just been kind of marginal, lately, and I haven’t been able to get a lot of the things done that I need to.
So much of this TBI business really is about having adequate resources to deal with what life throws my way. Whether it’s learning new things at work, handling odd jobs around the house (which I’ve been lagging at, too), or arranging for medical/dental coveratge, how rested I am, how involved I am, how strong I’m feeling all have a huge role to play. And my resources have been slowly but surely eroding away, over the past while. I haven’t been sleeping well for months, now, and that makes it difficult to handle much of anything. My temper’s short, I don’t get the things done that I need to, I tend to push off all but the most exciting and interesting activities (which means I push off about 85% of what I’m supposed to be doing), and I have trouble learning and processing information.
For a while, there, I was pretty intent on keeping my sleep deficit to a minimum. But then I got sick of having to live such a limited life, always going to bed at a responsible hour, sleeping a full 8 hours (or at least 7), and being very deliberate about everything I did.
How boring!!! I didn’t want to have to tip-toe through life, always anticipating everything I did and said and thought, and adusting my behavior to be nice and acceptable. Plenty of other people wing it, and they’re fine. And I’m sure a lot of people out there have sustained TBIs and don’t even know it. Does that stop them? Not always. Sometimes… maybe lots of times… But it seemed to me — and it still does — that life is a messy prospect, at best, and in the end I’ve always been more of a creative bohemian type, even if I am a software engineer, so I’d much rather enjoy my life and be flexible and keep up my activity level and have a good time and do things that interest and uplift me, instead of playing it safe all the time and being so careful about every danged thing.
It was such a relief, to just stay up past my 10:00 bed time and watch a good movie till the end, without needing to watch the clock. It felt so good to just get up first thing in the morning – around 5:00 or so – and futz around with this personal resources management program I’ve been designing. It felt so great to not be tied to a schedule, to not force myself to be on some hour-by-hour time-clock, day in and day out. Maybe that works for some people, but it doesn’t work for me. It works for maybe a few days, but then it starts to break down, and my self-management techniques turn out to be more of a burden than a help.
Of course, I’ve found out the hard way (again…) that I can’t keep driving and driving and driving myself. Even if it’s all fun(!) I need to pace myself and give myself time to recharge. Last night, I headed off to bed at 10:30, and I got to sleep around 11:00. And I slept till about 6:00 this morning. Seven hours is the longest I’ve been able to sleep in weeks — I usually clock in around 5 or 6. I don’t know if it’s that pineal cyst that’s throwing me off, or it’s my stress level, or it’s my pacing during the day.
I know I’ve been spending too much time, late in the evening, on the computer. My diagnostic neuropsych tells me that computer screens emit light that is very similar to daylight, so our bodies think it’s day, and they need to wake up. That could explain why sitting down to my laptop in the evening always makes me feel better. And it could explain why I have a hard time winding down later in the evening when I log off. I know I need to change that. It’s not like I don’t have anything else I could be doing. Relaxing is a lost cause with me — I’m also in a lot of pain, these days, so unless I keep my mind busy, I am in a lot of discomfort. But I can find other things to do that relax me, don’t get me all charged up. Things like washing dishes or folding clothes from the dryer. Things that need to get done, boring or not.
It could also be that I’m so tired, I can’t rest — which is what happens with me. I have to do something extra-ordinary to drag myself (kicking and screaming) into slumber. Left to my own devices, I’ll just keep going…
I think this weekend is going to be a Benadryl weekend. I don’t have any outside commitments that are overly demanding on my cognitive abilities, so I’m going to just take the drugs and sleep as long as humanly possible.
With any luck, by Monday, I’ll have gotten at least a little bit back on track.