Gearing up for another neuro visit

Well, I found a new neurologist. And I finally got an appointment with them in about 4 weeks’ time. I’ll be sitting down with my neuropsychologist to review their notes.

This makes me nervous. Looking at what’s been going on with me, and trying to articulate it with another person is… challenging. I worry that I won’t articulate things well, and we’ll end up going off on a tangent that’s just not consistent with where I’m at.

And then I can end up on yet another boondoggle.

No thank you. I’ve done that already — several times, over the years, and I have better things to do than try out new meds that make me feel worse (or just plain weird).

I guess the secret is in keeping things simple. Focusing on a few simple questions — like  Is this sh*t going to kill me? — will keep things from spinning wildly out of control.

Also, staying rested and well-fed… not eating too much sugar… tracking my headaches when they come up. It’s all part of it.

I’m really more anxious than I am fearful. It’s just a lot of ideas and nervousness spinning around in my head. And things are very busy and chaotic at work, so that doesn’t help.

Oh, well. Time to go back to my experiments with numbers…

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Author: brokenbrilliant

I am a long-term multiple (mild) Traumatic Brain Injury (mTBI or TBI) survivor who experienced assaults, falls, car accidents, sports-related injuries in the 1960s, '70s, '80s, and '90s. My last mild TBI was in 2004, but it was definitely the worst of the lot. I never received medical treatment for my injuries, some of which were sports injuries (and you have to get back in the game!), but I have been living very successfully with cognitive/behavioral (social, emotional, functional) symptoms and complications since I was a young kid. I’ve done it so well, in fact, that virtually nobody knows that I sustained those injuries… and the folks who do know, haven’t fully realized just how it’s impacted my life. It has impacted my life, however. In serious and debilitating ways. I’m coming out from behind the shields I’ve put up, in hopes of successfully addressing my own (invisible) challenges and helping others to see that sustaining a TBI is not the end of the world, and they can, in fact, live happy, fulfilled, productive lives in spite of it all.

6 thoughts on “Gearing up for another neuro visit”

  1. I think trying to make clear what is going on inside my head is the hardest…I keep hoping that as I heal I will be able to explain myself better…good luck!

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  2. There is a critical need for people with brain injuries to learn about the role the Emotional Nervous System (mid-brain and limbic system) plays in triggering the “fight or flight” response for all people under stress.

    This information is critical for professionals treating people with brain injuries to understand because unless they control stress and anxiety they will always be influenced by the consequences of the fight or flight response.

    When fight or flight kicks in people with brain injuries are in a reactionary mode which affects everything the person does – processing, problem solving, decision making, planning, memory, etc.

    Mindfulness-based stress reduction, Yoga, Tia Chi, EFT, EMDR and other tools can help these people stay calm and relaxed so the fight or flight response is controlled and their decision making and problem solving abilities are less impaired.

    If you look at much of the literature about brain injuries it only talks about the problems with anger, memory, emotions, etc.. These problems are the consequences of the fight or flight response and before people with brain injuries can take ownership of their recovery they (we) need to become less dependent on others to help us and play a more pro-active role in the recovery process.

    By talking about why people get angry (STRESS) instead of what to do about it after it happens people with brain injuries will become more educated about why it happens and then they can learn ways to stay relaxed (MINDFULNESS) so the fight or flight response is kept in check.

    Onward….

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  3. Ken, that is absolutely positively true. Neurology of the mid-brain, as well as the interdependencies of biochemistry and how the entire system responds to threats (perceived and otherwise) is central to our recovery. People on all sides need to understand the mechanisms of stress responses and what it does to us. That is a big part of my “mission” regarding TBI. My neuropsych says they’ve never seen anyone recover a balanced sense of self as quickly as I have, and they’ve been in the business of TBI rehab for 40+ years. I can tell them – and everyone – exactly what helped me, and one of the most important things is dealing with the biochemical “sludge” that builds up in my system due to the stresses of adjusting to life after TBI.

    As a engineering-minded individual, it’s deeply frustrating to me, that so few people dig in to find the root causes and address them at a functional level. But maybe something can be done…

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