Last night I got a letter from my new neuro — you know, the one I had to wait five months to see, because the insurance company wasn’t transferring their credentials from their old hospital, and they didn’t aggressively follow up…
Turns out, due to family obligations, they need to move out of state. They’re leaving at the end of June.
As they say in a crowded waiting room… Next!
I’m not sure how I feel about this whole thing. It’s annoying and disappointing, but it’s also kind of a relief.
On the one hand, I had to wait months to finally get to see them, but I was hoping it was worth it. It seemed like they were someone I could work with. I’ve been wanting to find a decent neuro, and they came highly recommended, so I waited. And I felt like I could work with them.
If I’m going to work with a neurologist, I really need to establish an extended relationship with them, so they can understand me and I can understand them. It’s not easy for me. It takes time. So, having them leave now is a blessing in disguise. At least I didn’t sink a lot of time and energy into that relationship.But the fact that I had to wait five months to see them, is five months of lost time — the whole time I could have spent finding another neuro to work with. And not had them skedaddle.
On the other hand, I’m not sure I want to develop a relationship with a neurologist. That initial visit really took the steam out of me. Covering all the details was draining, and even though I did feel like we got off to an okay start, it’s still kind of thrown me into a tailspin, having to factor in the whole diagnostic adventure. Migraine. Photophobia. Possible dysautonomia. Etc. I’ve got a lot going on with me, and I’m accustomed to managing things myself. So, adding in more input and requirements (especially meds) is pretty disruptive. It means I have to rethink a lot of things about my life. And make some changes that aren’t easy for me to make.
And there’s no guarantee they’re going to actually help me beyond what I can do for myself.
It’s nice to have some Imitrex handy, in case I get one of those crippling migraines again, but to be truthful, I don’t know that I’d even take it. Which is worse? The pain or the side-effects? At least with pain, I can function. Side effects… who knows?
The other thing is, all the doctors I’ve met (including this neuro) seem to have preconceived notions about how people who’ve sustained multiple concussions function and behave. When I tell them my history, they literally look at me like I have two heads, and they talk to me more slowly.
It’s almost like they expect me to be an idiot, or something. I mean, yeah – I do tend to forget things that people tell me in a matter of minutes, if I don’t take extra steps to remember it. But that doesn’t mean I’m an idiot. Nor does it mean I’m less intelligent.
Argh! It makes me crazy when people equate memory with intelligence or the ability to function. I mean, my resistance to short-term interference is close to the very bottom of the scale — that hasn’t changed in 6+ years of rehabilitation. But does that make me less intelligent or less capable of processing information in different ways? Oh, HELL no!
I simply have a different way of processing things, is all.
So effing there.
Anyway, it’s an amazingly beautiful day, and I managed to get an acupuncture appointment this morning — woot woot! It’s been a while, since I last had one, and I’ve been needing it. Coordinating all this healthcare is a huge pain in the ass. Between neurologists and orthopedists and chiropractors and acupuncturists and neuropsychologists and counseling (which is actually more of a check-in for me once a month to see how I’m doing), plus my day-job, meetings with recruiters, plus all the other things I do with myself, my proverbial dance card is FULL. Sigh.
But that’s changing… I can take the neuro out of the mix. I got my MRI and everything looks fine. I had a neck x-ray this past week, and other than a little arthritis, things are good. Overall, I’m in decent shape, and now I’ve done my periodic check-up for certain key areas that have been concerning me. It’s not any particular disorder. It’s just wear and tear from life. So it goes.
Anyway, since it is such a beautiful day, I’m going out for a walk.
Because I can.