This is a continuation of an extended thought process – click here for the first part.
Science (especially imaging) is starting to reveal what has always been true of the human system. It changes over time, responding to stimuli. The idea that brain injury is permanent and can’t be overcome is hogwash, as evidenced by research, studies (like the one referenced in the image on the right, which shows how Long-term sensory stimulation therapy improves hand function and restores cortical responsiveness in patients with chronic cerebral lesions), and recorded experience. The weird thing is, despite all the studies that are coming out (and have come out for decades) about how the brain does change and adapt, if challenged, there are still those who believe that brain injury is irreversible, and once you lose certain functions, you’re screwed.
Oh, hell no. Sorry, I don’t buy it. I don’t care what anyone says.
Brain injury survivors do NOT need to resign ourselves to living less-than. We do not need to “adjust down” our expectations to a “new normal”. That’s ridiculous. And the fact that so many people have been told they had to do that, and have just given in to doing that… it makes me a little sick to my stomach.
Of course, there are many reasons for this. Lack of information. Overwhelm. Cynicism. Defeat. Lack of imagination. Rehab industry bias against brain injured folks. Etc.
Also, Type A people tend to intimidate people. And Type A people with unresolved TBI issues can be a real terror — hell on wheels. So, small wonder that folks in the rehab business so often encourage us to just accept the “new normal” as “what it is”. We can scare them. Accepting our limitations is sometimes their way of telling us to back the f*ck off and quit intimidating us. It’s a way of seeding doubt in our minds that makes us less confident, less sure, less cocky. It’s a way of making them feel less inadequate — and shifting the power structure of the working relationship from Alpha Us to… them.
Plus, all too often, they have lacking information and poor practices, so they are unable to produce the kinds of results their clients/patients need. They keep trying to achieve results with crappy tools and partial information, which is like trying to run a marathon wearing on sneaker and one roller skate. They keep trying, of course, because that’s what the insurance companies tell them they have to do, and that’s what their peers are telling them to do, and that’s what their industry is instructing them to do. But they can never get the results they’re looking for… which is no wonder, if they’re not willing to test the limits of what is “known”.
So they give up. Because they won’t look any further. Maybe they’re actively discouraged by the insurance industry, which only trusts “tried and tested” approaches. Maybe they’re put off by their peers who are jaded and cynical and uninformed. Maybe they lack intelligence and imagination. Or maybe they just get tired.
Personally, I suspect it has more to do with belief system and poor information, than it has to do with malicious intent. People are just ignorant, in the objective sense of the word. They just don’t have the right information. And not all of them are Type A personalities. So, good luck getting help from someone who is not Type A, when you are a person who’s ambitious, driven, and bound and determined to succeed…
Fortunately, it doesn’t have to be that way — or stay that way — if you’re a Type A personality.
The Give Back program, which I discovered in December, 2010, has played an important part in my recovery. Just the stated belief that it is possible to recover from Brain Injury was a revelation, after being immersed in a sea of depressing messages like “Well, the brain can’t be changed past a certain point in childhood”… “You might get some of your functionality back, but don’t expect much more” … “You’ll just have to lower your expectations from life” and “Just be happy you’re doing as well as you are.”
It sorta kinda makes my blood boil, hearing all that weak-ass drivel.
Because none of it is true. Just because the charter members of Underachievers Anonymous can’t figure out brain injury recovery, doesn’t mean it can’t be done.
The Give Back materials really overcame those lame objections with actual case studies of folks who recovered successfully and went on to achieve great things. The program also gives you specific information and things you can do to recover. The most helpful tip had to do with building in a feedback loop for my daily life — recording things that didn’t go so hot, and figuring out how I could do them differently next time. I was really into that, for the first few years after I found the materials, but then I backed off on it. I’m starting up again, now that I’m beginning a new job that’s going to put new demands on my system, because it really helped me a great deal in the past, and I have every expectation that it will continue to help me as I move forward.
If you’re a Type A person with drive and ambition and the need to be constantly improving, you’re a perfect candidate for taking your recovery into your own hands and actually succeeding at it.
One of the things that’s really bothered me, over the past several years, is how people tell me now that I’m more mellow than I was, less edgy, less “Type A”. Now, I get that it’s an improvement that I’m not always gunnin’ for a fight, and I’ve backed off a lot of the aggression. But I have also lost the edge that used to keep me on top of things and moving forward. This, to me, is not an improvement. And the longer I recover, the more functionality I get back — and the more I realize I still lack — the more motivated I am to really kick it up a notch.
Discovering Reuven Feuerstein and the Feuerstein Method has been just the boost I’ve been needing to really move forward — possibly by leaps and bounds. Fundamental to the system is a “belief system that holds individuals to be modifiable, as well as amenable to registering and detecting adaptive changes.” That’s a belief I share — it’s more than a belief, it’s a known fact for me. It has been since 1983, when I came across a picture of rat brains that had been changed by being in an “enriching” environment. I’ve been convinced of the mutability of the human system for over 30 years, and I’m living proof that positive change — recovery — is possible.
And just as it’s possible to positively impact our own recovery, it’s also possible to impact others’ recovery, as well. It’s possible to create positive change — transform our surroundings — by our direct engagement. We have to know what we’re looking at, of course, and we have to know how things work. And we have to know how to effectively act for change. The beauty part is, by observing and being open and objective, we can learn as we go and adapt ourselves to our surroundings.
When you’re Type A, you have a certain kind of personality. You have a proclivity for achievement. Why the hell any non-Type-A person would tell a Type A person that something like brain injury recovery isn’t possible, is beyond me.
Never mind all that — On-Ward!
Here are the materials I downloaded in 2010, which you may find useful:
- Models of Exceptional Adaptation in Recovery After Traumatic Brain Injury: A Case Series
- Give Back – TBI Self-Therapy Guide
- Helping Your Family Member to Recover from Head Injury – Part 1
- Helping Your Family Member to Recover from Head Injury – Part 2
- Helping Your Family Member to Recover from Head Injury – Part 3