Welcome back, simple life

sunset-pineSo, I had my excitement on Twitter for a few months. And now I’ve had enough of the shouting.

So, I’ve turned off “publicize” on this blog, which tweets notifications about my posts automatically. I’ll leave it up to the rest of the world to share what I write there, if they think it’s worth reading.

As for me, leave me out of it, thanks.

I mean, Twitter is good — even great — for learning about the latest research, but all in all, I’d say it’s more of a shouting match, than anything else. The last straw, was when I saw a retweet of a snarky post about vetting experts — and how TBI survivors are not experts to talk about concussion. This, from someone who has essentially invented their own expertise by starting a website a number of years ago, and teaming up with professional sports which encourage things like “safe” tackling in football. It’s bad enough they have to say such things… but then to see them re-tweeted…  {Seufz}

Yeah, enough of that, already.

Actually, all the recent notifications about emerging research aren’t even necessary for me via Twitter. I can find out plenty via PubMed and ScienceDirect. Or Google Scholar. I like them better, anyway.

And I like the quiet better, too. This morning I downloaded a cache of research — new and old — about persistent symptoms in TBI — post-concussion syndrome, or PCS. It’s fascinating to see how the information and perception has evolved, going from accusations in the 1960s that all the hullabaloo is motivated purely by litigation… to a more complex and predominantly psychological approach in the 80s and 90s… to a more imagery-based approach in this century.

My guess is, somebody is realizing that they don’t have all the answers. Although psychology and neuropsychology has been treating PCS as a complex condition that stems from re-triggering buried psychological wounds, the last 20 years have not actually seen a big reduction in the incidence of PCS.

If anything, it would appear that the numbers are increasing.

So, where does that leave us? With imaging and biometrics, of course! Because now we have it — DTI, fMRI, and other techniques to measure, analyze, and understand the structural nature of brain injury.

And we have a lot of people who are really “into” it. I’ve found a number of papers from the last couple of years that speak to the potential that imaging and biometrics have to answer sticky questions about post-concussion symptoms that don’t resolve in the expected three months after the injury. And I’ve come across an increasing number of imaging studies that specifically say they were conducted to explore the organic and structural changes that can contribute to ongoing post-concussion symptoms.

And that’s a welcome change from the standard “miserable minority” explanation that it’s psychological/emotional in nature, and PCS really is little more than old narcissistic wounds getting re-opened, or you’re regressing or decompensating to a prior, less functional time in your life, since the TBI has affected your ability to suppress or avoid dealing with emotional scars.

Again… seufz (that’s Sigh in German – the word says it all)

Anyway, smart people with powerful machines and grant money are taking this on, so that might bode well for the rest of us, in time.

As for myself, I think I’ll make myself a cup of tea and sit down with my cache of research papers. It’s all good fun. And incredibly good for my brain.

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Author: brokenbrilliant

I am a long-term multiple (mild) Traumatic Brain Injury (mTBI or TBI) survivor who experienced assaults, falls, car accidents, sports-related injuries in the 1960s, '70s, '80s, and '90s. My last mild TBI was in 2004, but it was definitely the worst of the lot. I never received medical treatment for my injuries, some of which were sports injuries (and you have to get back in the game!), but I have been living very successfully with cognitive/behavioral (social, emotional, functional) symptoms and complications since I was a young kid. I’ve done it so well, in fact, that virtually nobody knows that I sustained those injuries… and the folks who do know, haven’t fully realized just how it’s impacted my life. It has impacted my life, however. In serious and debilitating ways. I’m coming out from behind the shields I’ve put up, in hopes of successfully addressing my own (invisible) challenges and helping others to see that sustaining a TBI is not the end of the world, and they can, in fact, live happy, fulfilled, productive lives in spite of it all.

2 thoughts on “Welcome back, simple life”

  1. I’ve missed your posts. Have you had a Neuropsych test done? I’ve had many. Not just for ‘crazy-people’ anymore. My AVM is not a TBI but parts of my brain respond differently since treatment…….

    Liked by 1 person

  2. Thanks – I’m getting back into posting for the sake of posting. Social media is odd – you get caught up in the numbers and followers and all that, and the focus stops being about just writing something useful. So, I’m back to my original intention – to write about my experience… and leave it at that.

    I have had a couple of Neuropsych tests done. Years apart, they didn’t show much change in the functional aspects of my abilities, but there was a huge difference in my attitude about them and my ability to deal with them — and that’s really the point, after all. We all have our challenges — the difference is in how we handle them.

    AVM… TBI… ABI… call it what you will… when your brain starts behaving differently than you expect, it’s a big deal.

    Liked by 1 person

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