Brain injury awareness doesn’t just work for March

brain injury infographicMarch is winding down, and Brain Injury Awareness Month (March) is disappearing into the rear view mirror.

Again.

My feelings about “awareness months” are mixed. It’s good that additional focus is brought to some issues. But they don’t stop being issues when the month is over, and it sometimes feels like the information then gets eclipsed by other kinds of awareness months.

One of the things that really bothers me about it all, is that it’s so virtual. A lot of it is online, so you get this information download about a topic, but you don’t really encounter real people who are affected by it. No matter how aware you may be about a subject, if you don’t have real-world experience with it, and you can’t put a face and a person to the name of the issue, there’s only so much good it’s going to do you — or us.

Maybe I’m being cynical. Or maybe I’m just being realistic. All I know is, organizing my thoughts and activities around a specified topic that someone else decides on, doesn’t sit all that well with me. Especially because I live with this every single day. Not just for the month of March.

Don’t get me wrong — I’m grateful that people are educating. But I also hope that the education actually goes somewhere and accomplishes something more than… just awareness.

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Author: brokenbrilliant

I am a long-term multiple (mild) Traumatic Brain Injury (mTBI or TBI) survivor who experienced assaults, falls, car accidents, sports-related injuries in the 1960s, '70s, '80s, and '90s. My last mild TBI was in 2004, but it was definitely the worst of the lot. I never received medical treatment for my injuries, some of which were sports injuries (and you have to get back in the game!), but I have been living very successfully with cognitive/behavioral (social, emotional, functional) symptoms and complications since I was a young kid. I’ve done it so well, in fact, that virtually nobody knows that I sustained those injuries… and the folks who do know, haven’t fully realized just how it’s impacted my life. It has impacted my life, however. In serious and debilitating ways. I’m coming out from behind the shields I’ve put up, in hopes of successfully addressing my own (invisible) challenges and helping others to see that sustaining a TBI is not the end of the world, and they can, in fact, live happy, fulfilled, productive lives in spite of it all.

4 thoughts on “Brain injury awareness doesn’t just work for March”

  1. I’m right along with you here. My BI was a bleed due to a stroke, somewhere along the way the powers that be at the state and national brain injury alliances decided they needed to reclassify things and several years into my “recovery” my injury was reclassified to an “Acquired Brain Injury” Instead of a “Traumatic Brain Injury”, I resent a learned “professional” telling me years into this, which has been largely self-directed for care, that I went down and acquired this malady and it hasn’t been traumatic! I call BS and have nothing to do with those lobbying groups anymore, asked for help or direction from my state alliance on a couple of matters and got nothing but silence in return. If I had “acquired” this, I would certainly have requested different accessories than the ones I’ve been granted!

    Liked by 1 person

  2. The types of brain injury awareness targeted in recent years have been One-Hit punch(which have led to the deaths of m young), domestic violence, and military-related TBI. And we are not winning any battles teaching people that TBI/ABI should be avoided at all costs. Unfortunately, some people prefer to learn the hard way. Keep up the good work. Cheers,H

    Liked by 1 person

  3. Thanks – yes, I think the overall “awareness” is causing some problems. Part of the issue is companies selling products that are supposed to prevent concussion. They may buffer the head from an external blow, but they won’t keep the brain from smacking against the inside of the skull. I think we need more realism and less marketing.

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