Posts about TBI, Pain, and PTSD


One of the aspects of living with TBI and PTSD that fascinates (and frustrates and infuruates) me, is the pain that’s been a pretty constant companion with me throughout my life. I’ve experienced numerous head injuries over the course of my life, and I’ve also had to deal with a lot of pain. I also have long-standing leftover trauma that I must deal with on a regular basis. These posts talk about my experiences and tie them in with research I conduct in this important area.

19 thoughts on “Posts about TBI, Pain, and PTSD”

  1. Hi, I am a TBI survivor of 14 years. Can I post my experience on this site and get comments? Thanks
    Vince

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  3. I don’t know If I said it already but …Cool site, love the info. I do a lot of research online on a daily basis and for the most part, people lack substance but, I just wanted to make a quick comment to say I’m glad I found your blog. Thanks, 🙂

    A definite great read..

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  4. Your site was extremely interesting, especially since I was searching for thoughts on this subject last Thursday.

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  5. I enjoy your blog, my son suffered a traumatic brain injury at age 12 during a motocross race. He is now 15 and wow is it hard! My son is extremely intelligent and bright, but he does to have a broken brain. I never thought of this until I read your blog and this fits him to a ‘T’ We are actually working with a group of scientists and it is very interesting! I think I could sit here for hours and read all of your information! I am so glad I found this!

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  6. Thank you Laura, I’m glad you find this blog helpful. TBI during teen years can be especially “interesting” — is it the TBI or are they just being a teenager? It’s the eternal question. I hope you will keep positive and hopeful with your son. My family gave up on me a long time ago, and I’m not sure I’ve ever come to terms with that. Having a loving, accepting family can make a real positive difference.

    Best of luck to you and your son.

    BB

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  7. I have been looking for people that even remotely understood what I have been experiencing what I have been going through since my accident in 2009. It is a daily struggle. No one can see my injury until I have difficulties and then they stare, they do not understand and have never taken the time to. Daily tasks that take me forever to do take people ake others ten minutes to do and the doctors keep adding more and more medication. They do not understand why after all of this time I still have trouble at time walking and talking or difficulty awaking in the morning or reading. They do not understand me having tremors and want to keep me disabled and on medication for the symptoms when I want to do use new technology to retrain my brain and reroute it to act the right way. I do not feel alone anymore, this site helps me feel like maybe someone understands a little bit.

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  8. Glad to hear you found your way here. It can be a very lonely and trying journey, but you are definitely not alone.

    Not sure if all that medication is such a great idea. I’m not a doctor, but my neuropsych tells me that brain injury can cause a person to be more sensitive to meds, so if your doctors don’t understand, they may be over-medicating you.

    Re-routing your brain can happen even without technology. Living life one day at a time, being mindful of where you are and what you are doing, will also re-route, as you learn new skills and re-learn old ones. Our brains are constantly growing and changing. If you can find a doctor who understands TBI, that might be helpful.

    Good luck with everything – hang in there!

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  9. I fall 6 months ago, i have head pain, moves all the time,, in my eyes,, top of my head, the back of my head, face,, neck,, ..Some times I feel too, sick to just have a brain injury..or should I say like the doctors “headaches. The Neurologist,, has had me on 3 different meds. and nothing is touching the pain….they will not give me narcotocs,,, which do help 2 every 4 to 6 hr.. just to releive the pain and have some time where I feel normal.. what are some of the meds are your doctors using….This sucks… will it go away…

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  10. Sorry to hear about your fall. I used to have terrible “mobile” headaches, too. I would start out the day with a bad one on one side, then it would move around, then I would have shooting pains. I was rarely without a headache. I started going to a network chiropractor, who uses light touch on certain nerves to relieve tension. It helped me a lot. The headaches went away. I would recommend that. I am not on any meds at all – I can’t have them because I am too sensitive. They really mess me up. I don’t know if the headaches will go away for you, but they went away for me. Also, cranial sacral bodywork may help you. Doctors can only do so much. They don’t know everything, and lots of them know too little. Good luck.

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  11. Hello – I am doing research on PTSD, TBI and pain – I am in the Los Angeles and San Diego area and would like to talk with some people willing to share thier experiences. All names would be kept confidential.
    Thank you

    Stephen Brown
    stephenbrownnp@aol.com

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  12. Glad to see that somebody is out there sharing his experience and providing online support on TBI. People become very vulnerable after an accident resulting in brain injury and they need a support group that helps them get back on their feet. Your writing is very much appreciated

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  14. Try Bowen therapy or acupuncture. Both have helped my headaches. As for rage and aggression I have been listening to instrumental lullabies and they have been very soothing

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  18. TBI sufferer here- to anyone suffering may be good to check out Dr. Mark Gordon, recently on the Joe Rogan podcast. He says many of the symptoms are a direct result of hormone in balance due to pitutary damage. He puts he patients on horome replacement temporarily as well as supplements like fish oil,and CoQ10, etc to get the gunk out, so to speak. Seem very groundbreaking and I think could be of help to anyone suffering. Hope this helps some of you!

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