Here are resources to help you and your loved ones recover from TBI / concussion
Self-Therapy for TBI Recovery – Teaching yourself to prevent head-injured moments
Helping Your Family Member to Recover from Head Injury – Part 1
Helping Your Family Member to Recover from Head Injury – Part 2
Helping Your Family Member to Recover from Head Injury – Part 3
Daily Experiences Journal (Wide) – Word Document
This summary of how to fix your brain comes from the
Give Back Orlando TBI Self-Therapy Guide, which has been incredibly helpful to me – download it here
CHAPTER TWENTY: Summary of How You Fix Your Brain
1. Know that you have a new brain, one that can work well once it is reprogrammed. It needs to be reprogrammed because your old programs don’t run quite right on your new brain. Help yourself to keep this fact in mind as you go through your day.
2. Since your old habits don’t quite work well enough, you need to TAKE CONTROL of your brain and get it to think through the things you are going to do. Your BRAIN no longer does its job well enough on automatic pilot. Now, your MIND has to make sure it does its job properly, whenever you do anything in which the results are important. Any time you need your actions or your words to have quality, your mind has to make sure that your brain produces quality at every step. It’s as if your mind now has to be the boss. You need to be MINDFUL so that you can be an effective boss.
3. Don’t depend on your brain’s weak systems for organizing and memory to manage your time and your activities. Get your brain to use your full intelligence to plan your day thoughtfully, a day ahead of time, when you can think everything through well. Write that plan down on a schedule form so that you take no chances of forgetting what you need to do. Develop the habit of writing plans and following them, and soon you will be in total control of your time and your productivity.
4. Learn how your new brain works by studying your head-injured moments. If you study them carefully, they will teach you a great deal about your new brain. The more you become an expert on your new brain, the better you will be able to make it do what you want it to do.
5. By analyzing your head injured moments, you will realize that you make most of your mistakes when you are not mentally prepared. By writing a good daily plan, and by warning yourself whenever you are about to get into a situation in which you tend to make mistakes, you will help yourself to become well prepared for almost everything. As you do this, you will have fewer head-injured moments.
6. Your analysis will teach you how often you get overloaded, what overloads you, and how overload affects your thinking and your ability to do things. Once you know what overloads you, you will be in a position to plan to prevent it from happening. This will make a big difference in reducing head-injured moments.
7. Every time you discover another head-injured moment, that is another step toward recovery. Celebrate the discovery, just like finding a twenty-dollar bill in the street. Develop a great attitude about recognizing when your brain malfunctions, because that is what makes a great self-therapist.
8. On the other hand, if you analyze a head-injured moment, it shouldn’t happen again. If it does happen again, you should be ticked off at yourself. What did I miss? How could I let this happen to me? I’m supposed to be in charge of these head-injured moments, and this one snuck right past me! Figure out exactly what went wrong with your plan, and be determined to never let it happen again.
9. Be sure to understand that fixing your brain is not like fixing your car. This is an ongoing fix-it process. Whenever something important in your life changes, the change creates a flurry of head-injured moments that need to be fixed. Whenever something stresses you out or makes you ill, you have more head-injured moments. As you do self-therapy, you will also discover new, unexpected and quirky head-injured moments, even after years of self-therapy. So self-therapy is not a task. It’s a way of living.
If you live this way, you control your head injury and keep head-injured moments from interfering with your life, but if you slack off, the head-injured moments will be back. So help yourself to welcome self-therapy as something good you do for yourself, and avoid thinking of it as a chore. That will help you to make it a part of your life.
In 2013, I went through an 8-week intensive cognitive rehabilitation program with Dr. Larry Schutz, the executive director of GiveBack and the author of the above summary of “How to Fix Your Brain.” I am now the medical director for GiveBack and did a webinar for BIAA on “Brain-Injured Moments.” The webinar and handout can be found by going to biausa.org and then searching for “Romanas.”
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Thank you so much for sharing this. I truly appreciate it. I have been a huge fan of Give Back for years.
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You really are brilliant, whoever you are. I’m overwhelmed by the amount of useful information in your blog, and by some weird coincidence, I agree with everything I have read here so far. I don’t use the term “overwhelmed” lightly here, your personal research is vast. It still hurts my head to read on the computer, and there is too much information here for me to take in, but I will follow your blog if not just for the sense of community, for the amount of really helpful information. From my experience, both my own TBI and as a teacher, I can say that your information is both valid and important. I applaud your commitment to this blog, and I’ll use it as inspiration to carry on my own introspective research. Thank you.
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Thank you very much for your kind words. I come from a family of teachers and preachers, so I guess this is my way of carrying on the family tradition 🙂 I’m glad to hear you’ve gotten something from it, and I hope to continue the positive contribution. Be well, take care, and keep the faith – things do get better. I couldn’t read for about 2 years after my last TBI, and reading was always my one solace and most favorite activity. I worked my way back by reading abstracts of scientific papers about TBI, all the while checking to make sure I was getting the gist of things – because difficulties with gist reasoning are shown to be the top indicator of how much a TBI affects you. It’s been a process, that’s for sure – but hard work (and plenty of rest) have paid off.
Be well. And have a great day.
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It has been eight months since the car crash and my concussion. I’m back at work, which I used to love. I’m doing ok but I’m not happy with my level of functioning.
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Eight months seems like a long time, but the effects of concussion can be long-lasting, even permanent. Fortunately, our systems are very adaptable, so while the old ways of doing things might not work anymore, we can find new ones. The important part is to get plenty of rest, so your system can recover as it re-learns.
Best of luck to you – don’t give up.
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Hey!
I just wanted to say, this site has been a saviour. I had a TBI (skull fracture) 15 years ago as a child in a car accident, then a concussion this summer. I feel, for lack of a better word, useless. I can’t speak correctly more often then not, I struggle to remember things, I make mistakes at work.. Perhaps the worst part is, is that I am so healthy and active, and look normal outside, so no one takes me seriously when I need to rest or am having such brain fog that I shouldn’t even drive.. I have had issues for 15 years, numerous therapies, but it is worse now, and I am starting to feel really defeated, my holistic attempts are not giving me enough relief and I’m burning out.. This blog is helping me have hope and not feel so alone!
Thanks!
Jen
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Thanks for writing. I’m sorry you’re having those experiences. I can relate. I mess things up a LOT more than I used to — and that was even after having had a bunch of TBIs when I was younger. My last concussion really did a number on me, and I make all kinds of mistakes that look “careless” from the outside, but it’s just my brain mis-firing, despite my best efforts. It’s much worse when I’m tired, so when I’m in high-pressure / high-stakes situations at work, I actually do a lot worse than I could, because I’m usually so fatigued.
I’ve learned to just admit my mistakes and move on. It can be really demoralizing (I’m not feeling really great about myself, right now), but other people seem to forgive me and they can move on, so I try not to let it get to me.
The best thing I can do for myself is keep myself on a regular schedule and have lots of routine in my life. That way, I cut down on surprises… very important. I hate surprises, anyway. Holistic remedies only go so far for me. What works best for me is just retraining my brain through repetition. Even if it’s incredibly boring, that’s how I re-wire myself. Unless there’s structural changes to how all my “wires” are connected, things don’t get better for me. And the only way I know to rewire things properly is repetition. Boring repetition. And plenty of sleep to let everything knit together properly.
Thanks again for writing and best of luck. Hang in there — take care of yourself and give yourself a break. Get some rest and know that with time and practice, things absolutely can get better.
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Hello, it’s Friday, 29 March 201. Are you still posting? I haven’t received notice of a new post since November 2018. Hope you’re all right.
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Hi there – yes, I am fine. I guess it’s about time I posted again 🙂 I’ve just had a lot going on in my life, and this blog has taken a back seat, you could say. Thanks for checking in.
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