Looking back, looking ahead… and trying to get some sleep in the meantime

rowboat at docks

I have been meaning to get more sleep, during this vacation. I’m able to take naps in the afternoon, which is great. I just can’t seem to get to sleep at a decent hour (before 11:00 p.m.) Part of the problem is that I just don’t want to go to sleep earlier than 11:00. I’ve got an internal clock that tells me when it’s time to sleep, and it generally doesn’t kick in till 10:45 or so.

It’s a little nerve-wracking. But I do it to myself, putting all kinds of pressure on myself to go to sleep, when I’m not really feeling that tired. And then getting up at my regular time, which lately has been anywhere between 5 a.m. and 6:30 a.m. So, I’m not always getting a full 7.5 – 8 hours, like I need to. And then I wake up irritated, because I can’t sleep through.

It’s an ongoing problem, especially during this vacation.

Well, my life is structured very differently now than it is when I’m working. I’m still doing my morning exercise, which is crucial. I’m actually doing  better with it than usual — getting both my bike ride and the weight lifting done. I just don’t move enough during the day. I move more, when I’m at the office, because, well, I’m at the office. I have to go to meetings. I have to get my lunch on the ground floor. I have to make trips to the water cooler as well as the restroom. It gets me up and around, while being at home — where everything is within easy access and just a few steps away — keeps me sedentary. Heck, I can even work while sitting/lying on the sofa, which sounds great, but is a bit of an occupational hazard.

Anyway, it’s the end of the year, and I’m kind of out of sorts. Feeling like I’m drifting, cut loose from my moorings a bit… feeling like I fell asleep in a rowboat that was tied to a dock, and then I woke up finding myself drifting out in the ocean, with the dock in the distance. The thing is, although the distant docks look familiar, and that’s where I expected to wake up, I can also see other sights in the distance.

Cities I didn’t know existed before.

Distant piers and jetties that look every bit as interesting as what I’ve known before.

Busy industrial ports that hold mysteries within their iron fortresses

And secluded beaches to explore.

Different sorts of places where people live, work, and go about their business, which are both foreign and fascinating to me.

And lighthouses to guide me along the way.

Lights… sights… sounds… And a whole world of choices out there.

When I actually have some time to catch up with myself, I can see so many more possibilities. And it’s invigorating.

But it’s also a little depressing. Because I spend so much of my time in recovery mode, just trying to right myself in the very wrong world, that I don’t have as much time as I’d like to just kick back and relax into finding out What’s Next.

I look around me at my life… And I see so much more beyond my present situation. And I also see that the resources I have at my disposal are, well, limited. I’m not complaining. I’m just saying. I don’t have all the energy in the world, and I don’t have all the patience to match it. I want to cut to the chase and get on with my life, to the best of my ability. And after all these years of really working on my TBI recovery and firming up my Sense-Of-Self, I’m finally at a point where I have a reliable idea of how “I” am going to react and behave under certain circumstances.

That’s the biggest, hairiest, most dangerous part of life after TBI — losing your Sense-Of-Self. It erodes your self-confidence. It crushes your self-respect. It makes every situation into a danger-fraught series of surprises that threaten everything you care about. And then the real trauma of TBI sets in.

I really believe that the biggest trauma in mild traumatic brain injury comes after the injury itself. There’s a steady stream of “micro-traumas” which stress out our systems and add to the fight-flight biochemical load. And unless we learn how to manage our fight-flight overload and learn how to clear out the neurochemical gunk of all that ongoing stress, mild TBI continues to take its toll. It continues to haunt us, to tax us, to load us up with invisible burdens that nobody else understands, but which are very, very real.

If you really understand the physiology of trauma (and not a lot of people know about it, let alone understand and fully appreciate it), and you understand the profound change that even a “mild” TBI brings to your entire system, all of this makes sense. You know that the subtle changes to how your system works are disorienting and anxiety-producing. You know that the body’s mechanisms for protecting itself are working overtime post-TBI, and they’re kicking in, in the most unlikely of situations. You know that the overall effect builds up, and you know that it’s cumulative.

You also know that while the effects may show up as a psychological disorder, the underlying basis is a combination of mind and body — and the body bears the burden of it all.

The thing about this whole deal is, because the body is involved, it’s possible to work with the body to turn that sh*t around. Even if your mind feels like mush (I’ve been there), even if you can’t remember what you did, just a few hours before (I know the feeling well), even if you can’t get through your morning without a detailed checklist (the story of my life for years), the body can act as a gateway to recovery.

Regular exercise helps stabilize your system. Eating the right foods (and steering clear of the wrong ones) helps your metabolism stay stable and keeps you off the blood sugar roller-coaster. Getting enough sleep lets the brain “knit itself back together”, as well as clear out the gunk that builds up, just as a result of everyday living. Plus, learning to regulate your heart rate and your blood pressure can train your overall system to get back to a stable state, even if everything feels like it’s falling apart around you.

I’m sipping the last little bit of my half-cup of coffee, as I write this. The snow from last night is giving way to freezing rain, which will fall until midday, when the temperatures start to rise, and regular rain falls. There’s always a chance that the ice buildup will take out our power, and that’s no fun. But I have wood for a fire in the fireplace, and we’ve been keeping the house pretty warm, so we’ll have some residual heat to see us through. In the past, we’ve had some pretty hair-raising experiences with losing power, and I don’t look forward to repeating them.

But I know a lot more now about keeping my physical system stable, and I’m in a much better place, mentally, than I’ve been in past years. So, I’m at much less risk than before. And knowing that relieves the pressure and also reduces the risk of my “losing it” even moreso. And that’s good. It’s awesome.

So, where was I… I’m kind of meandering, this morning, as I try to get my bearings. I’m looking back at the last year, wondering if all the effort really paid off the way I wanted it to. I’m not sure it has. Some things I started have kind of stalled. And other things I wanted to continue with have floundered, as well. In some ways, I’ve been as diligent as ever. In my day job, for example, I’ve been invested and involved in ways that have actually paid off. When I think of all the other jobs I screwed up since 2004 (and even before that), it’s kind of depressing.

So, I won’t think about them. I’ll focus on the good.

And as I look forward to my future, I see a much simpler — but much more do-able — path ahead. I’ve let go of a lot of old activities that were busy-work I picked up for the sake of pumping up my tonic arousal (the state of wakefulness in your brain) and getting my system turned “ON”. I had a handful of websites I wanted to start, a number of business ventures that seemed promising, apps I wanted to build, and novels I wanted to write. That extended experiment in busy-ness went on for 10 years or so, and it just didn’t work out, so I’ve now narrowed my focus to a few particular activities, which will actually lead somewhere.

Heck, they’ve already started to pay off. And taking the pressure off myself to go find another job… yeah, I’ve let that one go. Yes, traveling for work every few months really takes it out of me, but there’s no guarantee the next job won’t be just as much of a pain in the ass. Plus, it’s too stressful to go changing jobs every few years. I used to thrive on that experience, but now it’s just a pain in the ass. I need to look for the good in things and tweak the things that I’ve got going on… not ditch them and go looking for something better, somewhere else.

So, I guess I’ll wrap up my ramble. My morning is in free-flow, so I’m just letting my mind wander as it will, for the time being. I got my grocery shopping done yesterday. I got my meals for today prepared yesterday, too. I can’t go out and do anything, because the roads are bad. There’s no need to go anywhere, anyway. I’ll just hang out for the day… drift… make a fire, perhaps, and catch up on my reading.

And write a bit more. Because I can. I’ve got the time and the opportunity. So, yeah…

Onward.

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What we lose after TBI… and what we can get back

woman standing with a leaf in front of her faceI’m feeling really grateful, this morning. I’m tired, but I’m content. I’ll have my nap later, and everything will get even better.

I spent yesterday doing some of the things I love the most: cooking, eating, writing, reading, napping, and watching football while eating non-dairy ice cream… all with my partner, who has been really struggling with mobility issues, lately.

I bought us a collapsible massage table a couple of weeks ago, so we can both take turns stretching out and do horizontal exercises without having to get down on the floor. I set it up last night for my spouse to lie out flat (major plus) and do the exercises their physical therapist prescribed. The floor has gotten too cold to lie on, plus, it’s hard for them to get up and down without pulling something or hurting. So having the table is a huge benefit. Plus – bonus – I went to bed at a decent hour after a long day of lots of work

And by the end of the day, I realized just how good I have it. I realized that, after all the years of struggle, all the years of incredibly hard work, all the pain and frustrations and perseverance, all the dead-ends, all the plans to just give up, and battling all the despair… I have come through to another side, and I am in a place where I am good.

It’s taken years for me to get to this point. And it feels like this is the first time I’m really settled into this good-ness in a way that I actually believe. I’ve spent so much of my life confused and confounded, thwarted and hurting… without much of any clue about why that was, or what I could do about it… I had started to think that’s just how things were going to end up for me.

Permanent disablement. Permanent screwed-over-ness. And I just needed to get used to the experience and accept if for what it was.

But that feeling has completely changed, just in the last 24 hours. Things are not perfect, by any stretch of the imagination. There’s a lot of stuff that’s going really, really wrong in my life — and the world in general. And there are lot of unanswered questions in my mind. Still, I feel like I’m in a state of mind (and body — fitness is so important) that I can handle whatever comes my way.

No, my thought process is not perfect. I still get turned around and confused, and lately I’ve really been struggling with memory issues and misplacing things that I can’t afford to lose. I still have my intense lows, when I completely despair and lash out at the ones closest to me. I still have my moments of feeling useless and unlovable. I still struggle with crushing fatigue and not being able to do things that plenty of other people can.

And of course, I struggle with the fact that I can’t tell people about my issues, because it will work against me in the larger world. It’s not going to help me get a better job, if I tell the hiring manager that I function best if I have a 20-minute nap at the middle of each day. That’s not part of the deal in the 9-to-5 world I operate in.

But these are all things I’m convinced I can manage effectively on my own. I can handle it. Because I have a much better sense of who I am, and what I can expect from myself.

People have said that “you can’t recover from brain injury“, but that was decades ago, and we know a lot more about brain injury than we used to. Also, we know more about how concussion really is a brain injury… and so many people have them, yet continue to live their lives.

I myself notice that there are some things I just can’t do like I used to. It’s not as easy for me to push through marathon tasks. I need to stop and take a breath… do something completely different. And it’s harder for me to remember what I was doing before I took that break. I lose things. I get lost, too. I sometimes look around and have no idea where I am — but that’s more because I tend to be so focused on what’s in front of me, that I don’t notice my surroundings, so I don’t think it’s one of those “On Golden Pond” moments where I’m literally lost and have no idea where I am, period.

I’m more forgetful about things that really matter to me. My home office is pretty much of a wreck, but in a Thomas Edison “genius-y” kind of way, and my work area has spilled into the dining room that we rarely use. I have been misplacing important documents I just can’t afford to misplace… and then scrambling to replace them. I have a harder time initiating stuff I know I need to do (like go for a swim at the pool), because it feels way too complicated and involved. And try as I might, I really mess up things I’m positive I’m going to “nail”. I’ve been feeling really ambitious about making new meals while I’m on vacation this week, but my cooking skills have really degraded, thanks to the bone-crushing fatigue and difficulty sleeping. And coordination? Yah, forget it. Don’t leave anything near the edge of a surface. I’ll knock it onto the floor, for sure.

I know I’m not as sharp as I used to be. I know I’m not as sharp as I’d like — or intend — to be. I can be downright dull, and the bummer is, I’m aware. Oh, lord, how I’m aware. It’s not the most fun thing in the world.

And yet… I’m happier now, than I’ve probably ever been. And even with all my limitations and drawbacks, I’m definitely more functional, all across the board, than I’ve ever been. I’ve got “the whole package” together, at last. Even with the TBI after-effects, the slowness and slipping, the exhaustion and intermittent sense of defeat.

See, this regaining of competence and practical functionality is the real TBI recovery I wish people would talk about. Not getting your coordination and cognitive quickness back, watching your memory and endurance dwindle, having all kinds of intense emotional ups and downs… some experts might consider those blockers to TBI recovery. They might say it means that a person has lost too much and can never fully recover from a brain injury.

But everybody on the planet has something they struggle with, TBI or no.

And in any case, the real loss for me from TBI had far more to do with my Sense-Of-Self and my sense of “agency” in the world, than any objective physical or cognitive limitation.

TBI/concussion isn’t debilitating just because it knocks out your practical abilities. It’s most impactful because it takes a chunk out of your understanding of Who You Are and How You Handle Life.

It strips our self-confidence, and in doing so, it hits us hard with a self-doubt that’s a huge source of stress and ongoing trauma. What does stress and trauma do to the human system? It makes it harder to learn. And since TBI/concussion recovery is literally an exercise in re-learning to live, so your brain can rewire with reliable connections, that loss of self-confidence is in itself a source of ongoing injury.

TBI / concussion is an injury to the Self. And until people start accepting that and dealing with that piece of things — as well as finding practical, common-sense, science-based ways to address those issues — TBI and concussion survivors will continue to suffer from their injuries as well as the limitations of the people who intend to help them.

My road back from multiple mild TBIs has been a long one. It’s taken me 13 years to get to this point (and today is the 13th anniversary of my last concussion). It’s been a grueling and winding path. Fraught with perils. It nearly cost me everything I worked so hard to earn. But I can honestly say, I’m finally on the other side.

I understand my situation. I also understand the nature of my injuries, and how they affected me. But most important of all, I understand what I can do about it. And while I do tend to whine a bit here at times, the most important thing is for me to focus on the positives and share the lessons I’ve learned, so others don’t have to suffer as terribly as I did.

TBI and concussion are “recoverable”. We might not get back every single ability, and we may be left with lasting challenges, but we can restore our Sense-Of-Self, so we can get on with living our lives to the best of our developing abilities.

We’re made to heal. We’re made to grow. Regardless.

Work lots, rest more

lone rower on waterYardwork has been my life for the past 2 days.

Now I have cleared almost all the leaves from my front and back yards, and I’m feeling it.

Oh, how I’m feeling it.

So, it’s time to rest. Recuperate. Take a few Advil and let sleep do its restorative work.

This feels incredibly good — not the pain I’m in, rather, the state of having gotten a whole lot done in the past 22 hours. I still have a ways to go, but I have made incredible progress. And my body will eventually get back to where it should be. More muscle for the winter. I can use it.

I have my running list of prep work. I still need to get the snowblower serviced, and I need to call the chimney guys to clean the flue and get the leaves out of my gutters. But that will happen. Heck, I might even fire up that little generator to see how it does with the pump. If I don’t have electricity, I don’t have running water, and that’s no good. I got myself a generator last year, but I never fired it up. I should do that. And test out running the well off the generator.

It’s all happening.

And it’s good.

Onward.

Not so angry, tired, or frustrated anymore – Who I was then, versus how I am now

train in rear-view mirror
Looking behind can help me move forward

I had a very productive weekend. A lot of folks tell me to slow down and do less, and it’s important to keep balanced. The thing is, I actually am able to keep balanced while doing more. Because I know how to do things in a pretty efficient way.

Plus, I have a ton of experience that I can use — and I do.

Only I do it much, much better than ever before.

Once upon a time, I was constantly driven to go-go-go, to do-do-do. It was a heady, exciting way to live. But it wore me out. I got tired. And then I lost sight of what I was doing and why I was doing it.

Of course, I had no idea that my history of TBIs was driving me, or how it was affecting me when I got tired.

Now I know. And now I can manage my energy levels — lie down and take a nap when I need one… get up and get to work, if I have the energy… and really pay attention to the things that mean the most to me, all along the way.

I think I’m still as driven as I was before. Maybe I’m even more driven…

  • To heal
  • To help
  • To make a difference in the world
  • To be a positive influence, no matter where I am
  • To make dreams come true, for myself and others
  • To really, really help

Because more is possible than anyone seems to believe anymore.

Yeah, I know… the world is in a mess. Political turmoil. Drama. Threats of war — or outright war. Territorial disputes. Money, power, influence, control. Everybody’s churned up, worked up, and telling tales of doom and gloom.

And I used to get so bent out of shape about things like this. As though there were anything I could do about it. And it wore me out. It tired me out, it made me anxious and agitated, and that was no good.

I had no idea how fatigue affected me.

So, I couldn’t manage it.

Angry, tired, frustrated. I was always that way. If I wasn’t all three of them (which was often), I was at least one of them.

And that was no good. It just stopped me at every turn — the fatigue, the agitation, the distractions.

Meanwhile, I had no idea why nothing ever worked out for me, long-term.

I thought about this a lot, this past weekend, as I was systematically working through my list of errands. Things I had to do for others. Things I needed to do for myself. I thought about all the years I spent working towards my dreams, only to have them fizzle out. And then never understanding why that was.

Now I know why it was. I got tired. Fatigued. And then I got distracted and scattered and angry and defeated.

I’m not blinded to that, anymore.

Now I know.

Now I can manage.

I don’t have to settle for less, anymore. I can actually finish things I’ve started.

And this is a very good thing.

Onward.

Keeping the foundation solid

windrader foundationI’ve been doing better about taking care of myself, lately.

I guess I just got to a point where I realized that pushing myself constantly wasn’t paying off. I’ve always been driven. I’ve always been motivated. I’ve always wanted more and I’ve wanted to see what all I was capable of doing and being and becoming.

I’ve lost sight of the basics more times than I can count, but that gets old after a while.

So, I’m focusing on the basics. I’m keeping my routine going, getting my exercise every single morning — sometimes pushing myself a little harder, sometimes taking it a little easier — eating right, taking care of business as I go through my day(s).

The more I focus on the basics, the more I tend to my foundation, the stronger I am, the more stable I am. And it puts things in perspective.

It’s Friday. I got up early – couldn’t sleep, partly because of work excitement, partly because of being excited about the weekend. I’ve had a few hours of productive working on my projects. I solved a big problem that had stumped me for the past few days. I’ve had my breakfast. I’ve had my big glass of water. And I’m moving forward.

With my foundation in place.

Solid.

Stable.

Good.

It wasn’t always this way, of course. 13 years ago, my life was starting to fall apart. I’d gotten a nasty concussion about a year before, and I had no idea how it was affecting me. Things were just dissolving, and I didn’t understand just how much they were. All I knew was, life had gotten about 1000 times harder than it had ever been. All I knew was, I was stressed out more than ever, I was having so much trouble concentrating, I was emotionally volatile, my temper was all over the place, and life was increasingly impossible.

I nearly lost everything.

Nearly.

What turned it around was simple — focusing on basics. Developing a routine and using checklists to keep myself on track. Getting to know myself again and figuring out how to get through my day in one piece, without losing it over every little thing.

It was simple. But it wasn’t easy. It took constant work. It took sustained focus. It took years.

But it was worth it. And I found that taking care of the basics, being consistent (even boring) was the key to getting back… getting back to myself… getting back to my dreams… restoring my abilities that I’d thought were gone for good.

It was worth it.

And it continues to be.

Focus on the basics. Master the fundamentals. Keep working, keep refining, keep “iterating” from one improvement to the next… and stay steady. Don’t give up. Just be stubbornly committed to my goals and objectives.

And rest. Plenty of rest, good food, clean water. Restoration of my energy stores.

Keep on. I just keep on.

And it works.

Onward.

Brain injury comes in a number of different “flavors”, but it affects us in very similar ways

Brain injury is a brain injury, and as much as we may say “each brain is different, each injury is different,” we still need to look at the ways that each kind of injury is similar to others. And the experiences we have can be quite similar.

Loneliness, isolation, confusion, not feeling like yourself, getting angry quickly, mood swings, and let’s not forget the bone-crushing fatigue and the embarrassment that comes from not being the person you used to be… They are all things brain injury survivors have in common, and it’s helpful to actually treat people accordingly.

I honestly don’t understand why more emphasis isn’t placed on the experience of brain injury. That’s what trips us up, quite frankly. That’s the thing that makes our recoveries so much harder — the experiences we have and the effects those experiences have on our selves, our Sense-of-Self.

Well, that’s why I’m here. To speak up for those of us who tend to get stuck in our post-BI experiences, and need to see there’s actually a way out… Because there is. There is always hope — even in the most dire cases. Nobody can tell me different. That’s just how we’re built — to amaze… to heal… to grow… to learn. And learn some more.

Here’s a quick summary of the different types of brain injury:

Acquired Brain Injury (ABI)

includes things like stroke and anoxic (being without oxygen) brain injury. Some consider traumatic brain injury to be an acquired brain injury, because it “is damage to the brain that was not present at birth and is non-progressive” (See The ABI Manual for more). Personally, I wouldn’t call it “non-progressive”, but everyone’s experience is different.

ABI Resources:

Stroke

happens either when a clot blocks blood flow in the brain (called “Ischemic” stroke) or a blood vessel pops and there’s a brain bleed (called “Hemorrhagic” stroke)

Stroke Resources

Traumatic Brain Injury (TBI)

is related to trauma to the brain that comes from a fall, an attack, a sports injury, or an accident.

TBI Resources:

Concussion

is what people often call a “mild” TBI. Concussions are sometimes considered less serious than traumatic brain injuries, and a lot of people consider a TBI that clears up after a while, to be a Concussion.

Concussion Resources:

 

Well, not *exactly* time off…

construction cranes wtih a cloudy skyMost people think of vacation / time off, as an opportunity to kick back and relax, put the cares of the world on hold, and just float through life without a care in the world.

Those people, however, have very different lives from mine.

My “vacation” is a lot of work, actually. I’m off my routine, so I have to spend a lot of energy figuring out what’s next. Regular mealtimes and menu items are different. I’m fixing three meals a day for my spouse and me, instead of just breakfast for me, then supper for us both. I have to help my spouse get around, as they have limited mobility and need extra time and help just standing up and moving from place to place. Everything moves at a slower pace, and I don’t get as many spontaneous opportunities to discharge a lot of the energy I have.

And when I do kick into high gear, it disorients my spouse and they get pissed off at me for moving too fast.

So, I work around it. I have to. I go out into the day and run around. I sprint across parking lots. I lift and carry twice as much stuff as I normally do. I intersperse my slow times with intervals of bursting energy – flash, flash, flash – and then “back it down” for my spouse’s benefit.

Last time we took a week’s vacation, I lost a couple pounds, by the end of the week. So, it’s really not so bad.

It’s good to change up the routine, in any case.

And find peace where I can. Excitement where I can. Enjoyment where I can. Life for me is less about having things handed to me — like opportunity — and more about finding what I’m looking for when I need it. Seeing opportunity where nobody else does. Finding peace in the center of the storm. Making my own excitement.

It’s all a big swirl of potential, to me. My job is to find the experiences and the chances I’m looking for, in the midst of it all, and see what I can do to bring them to life.

That takes work. It takes concentration. It also takes patience and willingness to stick with things that put most people off. Needless to say, I’m up for it — and in the end, it’s an investment of my resources that truly pays off. My TBI recovery is a case in point.

So, while the fantasy of having a whole week “off” work is appealing, the fact of the matter is, I’m just trading one kind of work for another. But in the end, that’s how I want it. And even if I weren’t loaded up with all sorts of extra domestic things to do, I’d find other work to occupy me. That’s how I roll.

Onward.

Back at it…

lights streaming through darknessThe last few days have been extremely busy. Jam-packed with work, from 8 a.m. till 6 p.m.

And then I need to head home, buy supper on the way, make supper, eat supper, go to bed.

I’m tired of this. But I keep at it. Because it’s what I do, it pays the bills, and who knows what’s around the corner?

My work situation us changing – my group got moved to another organization, and now we find out (in a few months) how it’s all going to shake out. They will probably break up our group, because a small group of people do many things, each, whereas in the team we joined, people tend to have one job, not five (like I do, now).

They just have to figure out where to put us.

Personally, I’m fine with this. I hate how things are done in my current group. It’s too jam-packed. Too compulsive. Too frantic. My boss works pretty much ’round the clock, and the rest of us are expected to, as well. That just doesn’t work for me.

It’s fair to say, I have a very low quality of life, right now. Even though my job seems secure, my mortgage is paid, I have food on the table, etc. And I do a really good impression of someone who’s positive and upbeat and a “catalyst for change”.

I’m just exhausted. And it’s hard to see the point of much of anything, when I’m feeling this wiped out… all the time.

But still, I have to keep myself going, because nothing lasts for ever, and I might just be able to find a new situation in the new year. I’m hanging tight, for the time being, waiting this out… waiting till I get my vacation time under my belt… I have three separate weeks off, between now and the end of the year, and I’m going to take advantage of it.

Cut my losses. Keep the dread and drama to a minimum. Just keep going. Just keep puttering around at my little projects and side interests.

Just keep on.

Every now and then, I find something that lifts my spirits. But every Thursday and Friday, like clockwork, my mood begins to plummet.

So, that being said — since I recognize it and know it — I can actually work with that. Just don’t pay any attention to the unhappiness that nags at me.  Just don’t jump to conclusions about how feeling bad at the end of the week translates into having a terrible life. I don’t have a terrible life. I have a pretty excellent life, in fact. And I can’t let the surface feeling I get — the tarnish on the normally shiny surface of my life — dim my view of everything around me.

Grab a rag and shine it up. Realize there’s more to the story than how I’m feeling at this very moment. Do what I can, when I can. And live my life.

Onward.

Picking up the pieces on my own weekend “island”

desert island with two palm trees surrounded by seaI’ve got a long weekend ahead of me. What shall I do with myself? Three days off, with no appointments, no obligations, no requirements… what a luxury this is.

It’s almost like going to my own desert island. My spouse wants to take it easy, too. They’ve been doing a lot, lately, with events every weekend, and some additional events in between. They lead community gatherings — drum circles, song circles, gatherings where people share meals and life lessons — and it’s a lot of work. I used to attend a lot of them, myself. But it got to be too much. I already have a full-time job and a handful of side projects that keep me more than busy.

I prefer it that way, actually. Keeping busy, keeping engaged, making things, coming up with new ideas… that’s what keeps me young. Feeling young, looking young, living young. It’s a challenge, at times, because fatigue gets me down, that whole brain fog thing sets in, I get angry and agitated, and everything feels like it’s melting around me… falling to pieces. Just falling away. And at those times I sometimes just don’t care about anything. Just don’t. Can’t be bothered.

I’m at the point now, where I’m fine with not being busy. I look back on how things have been in my life for the past however many decades — okay, let’s call it 34 years, since that’s how long I’ve been majority age and in control of my own life — all the time I’ve spent on my projects, doing and doing and doing some more… making things, exploring… all that…

What’s it been for?

What have I accomplished? What have I truly gotten done? I do all this work, and then what comes of it? Clearly, I’m not rich and famous. I’m doing okay with a house (mortgage) and a fairly reliable late model car (and car payment), but I have no financial safety net, I’m not entirely secure about my future, and I just feel like crap so much of the time.

Not that feeling like crap matters… It can’t matter, because then I’d never get anything done. If I only did the things I felt like doing, I’d be homeless. Being in pain, being tired, being confused, being overwhelmed… that’s the price I pay for what I have, and if I let it get to me and give in to it, then everything falls apart. Part of me wishes I could fall back on my diminished state as a reason not to move forward. To file for disability (not that I’d get it, because I obviously am capable of working). I’d love to just check out for a while. Decide what else I want to do…

Well, I have three days to chill, so I’ll do that. I actually have more like 3-1/2 days, because everybody’s going to be gone as of noon, today, making a run for it for the last long weekend hurrah till the holidays. And we all know the holidays are no simple walk in the park, so do they even count as time off?

It’s all relative, of course. And things may be changing with my job, since my group got moved to a different organization. We’ll see how that goes. In the meantime, I’m submitting my resume for other jobs, not expecting much, but also not chasing after things. It never works out, when I chase. Plus, it’s exhausting.

So, this week is really for chilling out and giving myself some room to breathe. I can go out for walks down the road. Or I can stay in bed and read. Or I can sit around and watch movies all afternoon. Or I can spend extra time exercising, since I’ll have the time to spend. My choice. Time to take the pressure off, and just BE.

I got almost 10 hours of sleep, last night. Nothing short of a miracle, considering how little sleep I’ve been getting lately. I plan to get even more this weekend.

Onward.

The adventure continues.

Yeah, I just get tired…

sleeping monkeyAs much as I want to quit my job (and after the past month, I really do), I’m going to stay put, most likely.

I just get tired.

Very, very tired.

And when I’m wiped out, nothing is good, my productivity slips, I don’t feel connected to anyone or anything or any of the work I do. I hate my job, I hate my life, I hate the world.

Or, I get too tired to feel strongly about anything. And I just drift into a sense of meh.

And sometimes that’s the worst thing of all. Feeling strongly negative about anything is at least feeling something.

Meh… that’s feeling… nothing.

I wish I could bottle this feeling and sell it. I know a lot of people who spend good money trying to get to this state of numbness, feeling nothing. I’d be rich.

The weird thing about it is that the weather has been fantastic, lately. I’m far from the storms in Texas, and the autumn is now picking up speed. The days are getting shorter. The shadows are lengthening. It’s cool at night — cool enough to turn on the heat. I’ve been looking forward to these days for weeks and months, now… and yet, I find myself so tired.

Well, it’s only partly because of the season change. It’s also because of work. I have been so busy, just pushing and pushing to get things done. I haven’t had much time to think things through carefully — just in reaction mode all the time.

And then when I do have time to settle in and think… I’m all out of fuel. Wiped out. Zombie-fied.

Well, I have a long weekend coming up. And I’ll probably just check out tomorrow afternoon before the day is up. I may cut my day short at noon and go back to bed. Wish I could do that today, but I have a dr. appointment this afternoon, so there’s no rest for the weary. And then I have to join another couple of conference calls after the appointment.

Good heavens, how I’d love to just quit.

But not just yet. I’m really just tired.