Now in Print: “Top 10 Things I Wish They’d Told Me After My Concussions”

Top 10 Things I Wish Someone Told Me After My Concussions
Top 10 Things I Wish Someone Told Me After My Concussions

I just published Top 10 Things I Wish Someone Told Me After My Concussions in print. You can buy a copy here

My hope is that the word will get out via Amazon – it will eventually be available there, after I get my proof copy and sign off on it. Because TBI/concussion is not only survivable, but there are things we can do that can help our recovery process.

You can also read the series on this site here.

 

Advertisements

Who’s stopped by in the last month

picture of world readership from the last 30 days
Who all has stopped by in the past month

I just checked my stats from the past 30 days, and it looks like word has gotten out about this blog. Or people have been finding their way here. The breakdowns of countries are below – this is just the past 30 days, but the range of countries is pretty extensive.

world readership statistics from the last 30 days
The full list of visitors from the last 30 days

Chronic Blogging – Getting Properly Setup – Blog Configuration Basics

I like WordPress. A lot.
I like WordPress. A lot.

The first order of the day is to get your blog properly setup and configured. This is not nearly as difficult as it sounds, and what you do here, can really help you in the long run.

The first I’ll discuss is the basics of setting up your blog to make your life easier. With technology, it’s easier than ever to complicate everything — to the point where you just don’t want to do it, anymore. I’ll keep things simple here. I also won’t cover every single topic I can think of — just the basics you should consider.

There are a lot of great books and websites out there that can offer you in-depth tips and tricks. Use them as much as you can. There are lots of smart people who share really useful info with the world.

In this guide, I’ll talk about using WordPress, because after years of blogging and using different systems like Blogger and Typepad (and some others I can’t recall the names of), WordPress is my favorite for a number of reasons.

  1. It’s stable and well-supported. It’s not just a side project of some folks who needed to do something fun and fulfilling on the weekends (that happens more often than you think). It’s managed by real people who do it for a living. And it’s actively supported. Sometimes they make changes to the interface that drive me nuts, but overall, it’s worth the hassle. There’s a ton of help and documentation about how to different things, but you can do a lot with just a little bit of information. There are many, many themes (designs) that give you a lot of different options, and they are also well supported.
  2. You can do a lot with a little — for free. You can sign up for a free blog and be publishing your work in a matter of minutes. There are a lot of different customizations you can do, but you don’t have to do many at all, to get a functioning blog that looks good. Simplicity is important, if you just want to focus on your writing, instead of configuring your “technical platform”. And it doesn’t need to cost you anything other than your time and attention.
  3. It has a lot of SEO stuff already built in – like “human-readable” urls, correct html, consistent page designs, and the ability to optimize your images so search engines love you. That is so important — I think one of the reasons I rank pretty high in Google, is precisely because I am on WordPress.
  4. You’re automatically connected with a wider community. WordPress has a ton of bloggers on it, and they’re all connected via the Reader feature. You can easily find others on WP who write about the stuff you’re interested in, and they will show you the tags that people are using, so you not only find out who’s writing, but what they’re writing about the most.
  5. They make it really, really easy. Signing up is easy. Setting up is easy. Blogging is easy – and you can also password protect and schedule your posts, if you like. Promoting is easy, too. For example, if you want to tell the world whenever you post to your blog, you can hook up Publicize to post to FB and tweet automatically whenever you publish. That’s important for your wider community.

I could list many, many more reasons why WordPress is my blog platform of choice, but the five above should be enough to convince you to give them a try.

In this section, I’ll talk in some detail about the basic things you want to do for proper setup.

  • Picking the right theme (design)
  • Setting up your blog with the most important elements – sidebars, widgets, sharing, and pages
  • Making your blog readable
  • Managing publishing, comments, and ongoing discussions
  • Making sure search engines can find you

You can read the tips and tricks in order, or you can take them piece by piece in whatever order you like. You can skip around and do what you please, and any one of these changes can make a positive difference. We don’t need to “boil the ocean” here – dealing with chronic health conditions is a big enough challenge, let alone adding a regular writing practice to the mix. You can make it as simple or as complicated as you like, but even in its simplest form, a blog can make a positive difference in others’ lives.

Chronic Blogging – Good voices needed by good people

It doesn't take much to get started
It doesn’t take much to get started – you just have to keep going 😉

Dear blogger – I want to help you become better at what you do.

Especially if you blog about chronic health conditions (spanning mental health to physical conditions), you’re in a great position to help others who share your same situation and concerns. Many folks with chronic health issues are housebound and don’t have a lot of contact with the outside world. Some are isolated by their conditions, and many have lost their social support network because their one-time friends just couldn’t deal with their problems.

You know first-hand what it’s like to be hampered by chronic conditions, so your voice can help others to better understand their world, as well as feel less isolated.

When they first started picking up steam, about 15 years ago, blogs were a novelty. They were something only egomaniacs bothered writing, and only voyeurs bothered reading. They were dismissed by “serious readers”, partly because the medium had not had a chance to mature. But over time, the depth and breadth of blogs written by genuinely good writers, has won over countless readers. And some bloggers share the same regard and influence as well-known journalists – some of them enjoy even more.

I’ve been “chronic blogging” about my ongoing recovery from repeat mild traumatic brain injury (mTBI/concussion) since around 2008, and it has been a long, slow process developing both the blog and a readership. I started out wanting to just help others with information I gathered, as well as sharing my experiences. And there were times when I just didn’t write very much at all. Also, at the start, I was very verbose… rambling… overly emotional… kind of a mess. But some of my readers complained, and I stopped whining constantly.

I wanted to do something really useful, not just vent all the time. And so I changed things up, tried different approaches, and I learned from my mistakes and successes alike. As of this reading, my blog Broken Brain – Brilliant Mind (brokenbrilliant.wordpress.com) has had 433,743 views from 192 different countries. That’s a result of posting nearly every day for the past several years – 2,615 different posts since 2007.

10,000 foot view
10,000 foot view

By far, though, the most gratifying thing has been the feedback I’ve received from others. There are a lot of people like me out there, who feel isolated and alone and without access to support. Their feedback has been so welcome, so fantastic, so heart-warming. It’s not always easy to hear people’s accounts of their own difficulties, but knowing I’ve helped ease their pain – even just a little – makes all the effort worthwhile.

It’s still an occasional challenge to keep from whining – and sometimes I don’t manage to suppress it very well. But I’ve found a lot of satisfaction from researching my own health issues and sharing what I find with others, as well as publicizing the work of other brain injury and chronic health challenge bloggers. There really are a lot of great folks doing fantastic work out there – and we can always use another strong voice.

If you’ve ever thought about starting your own blog, or you’ve got one going and you’re looking for ways to increase your exposure and grow your readership, I may be able to help. I have been working with this “web stuff” for 20 years, now, so it’s second nature to me. But it’s not obvious to most folks. SEO, in particular, is shrouded in unnecessary mystery (probably to keep consultants employed), however you’ll probably find that common sense trumps gimmicks every day.

Ultimately, it’s really about building community – reaching out to others who need your help or could use a friendly voice – and making us all stronger in the process. I’ll do my best to provide truly useful tips and tricks, without overwhelming you.

Try doing some of this a little bit at a time, and really give a lot of thought to each piece of the puzzle. It’s a discovery process, and it may take months for things to turn around for you, but I believe that these changes can really help you a lot in your blogging.

If you’ve got something to say about managing a chronic health condition, and you want to help others, by all means, join us with your blog. It’s a lot of work and it takes a lot of dedication and discipline, but it’s also incredibly rewarding.

New eBook for “10 Things I Wish They’d Told Me After My Concussion(s)”

10 Things I Wish They'd Told Me After My Concussion(s)
Click the image to get an eBook for your reader ($2.99) – or click the link on the left to get a free full-size PDF.

I’ve slightly revised and updated my work 10 Things I Wish They’d Told Me After My Concussion. I’ve also changed the title from “Concussion! Now what?” I think the new title is more clear. Click here to get the free full-size PDF.

I also created an eBook for Kindle and other eReaders (Windows PC/PocketPC, Mac OS, Linux OS, Apple iPhone / iPod Touch, etc.) – it’s $2.99, and if you’d like to support this site, you can download it here.

Additionally, I’ve got a longer book in the works, which has more background and discussion of scientific research and personal experiences behind what I discuss. We’ll see which version is more useful for people 😉 I’ll admit, I’m an anatomy-and-neuro-geek, so the things that fascinate me may not light others’ fires. And since I’m not an official academic, some of my conclusions and discussions might not sound ideal to the advance degree experts who do this stuff for a living.

It’s something, though. And for me, it’s the kind of book I wish I’d had access to, 8 years ago, when I started to realize how much TBI had affected my life. I’m really writing the longer book for myself — the person I once was, who needed help… but couldn’t find it anywhere.

I’ve also been looking for ways that people can support this site. Some have asked what they can do to contribute, but I’m not actually comfortable taking donations. I need to give people something in return for $$$ they contribute, rather than just take their money.

I blog just about every day, and I’ve got nearly 800 followers on WordPress, 111 followers via email, and 955 followers on Twitter, so I’m putting something out there. But even if no one were paying any attention, I’d do it anyway. Because this is my daily “ritual” that helps me check in with myself and keep myself honest. Accepting money for it seems a little wrong to me.

So, I’m starting to publish some of my posts as eBooks (and probably print books, too). I’ll be publishing individual articles, as well as collections — with themes, like anger and memory and sensory issues, as well as most popular posts that people continuously come back to.

It’s also my hope that this publishing can spread more information around about TBI recovery, to show people that it CAN be done — even after years of difficulty and suffering. Even persistent TBI issues can become manageable. They may not disappear 100%, but they can be managed.

I’m living proof of that.

To my 24 new followers – welcome

Welcome, all! I'm glad you're here.
Welcome, all! I’m glad you’re here.

I have been looking at my WordPress stats, following up on who has recently followed this blog.

In the last 2 weeks, 24 of you have joined me on this journey (22 via WordPress, 2 via email), so welcome. I don’t mean to be rude or take you for granted — please know that I appreciate you following, and I hope I bring something positive to your life.

I’m about to go out for my morning walk on an amazingly beautiful day, and before I do, I just want to say:

Whatever brought you to this blog, was probably for a very good reason. People come here all the time, not knowing what they will find, then they discover something that helps them. It’s both by accident, and by design. I don’t have any particular “content strategy” in mind, other than writing about the things that matter to me, as a TBI survivor dealing with an invisible set of difficulties, a regular person trying to build the best life possible, and as a member of the larger community who is sure that I’m not the only one who feels this way.

There are times when I am annoying, I whine and bitch and complain and am not my best self by any stretch of the imagination. I can be petulant and cranky and self-absorbed, and I can be a real trial at times — especially to myself 😉

Be that as it may, I have an incredible amount of goodness in my life, and I want to share that experience, as well as show others how I’ve gotten there through a combination of hard work and perseverance, and using my noggin to determine if what I’m doing is actually working. The times when I fail are the biggest lessons — and at times the most valuable.

I’m not afraid to fail. I just get a little tired of getting back up all the time.

But then, don’t we all…?

I know I am not alone in my frustrations and challenges. I’m human, and whether you’re dealing with a brain injury, another sort of injury, past trauma, ongoing difficulties in your life, or a hidden condition that others can never suspect is going on, we are all in this together, and we all have so much to share, if we take the time and put forth the effort.

The effort is not easy. But it is worth it. I start most of my days on this blog, because I remember all too well what it’s like to go through life in pain and frustration and despair, and feel so terribly alone. Some days I’d rather be doing something else than typing into a machine, and I can go for days without writing a word. But I know this is important — to me as well as others who find their way here and really value hearing someone else talk about life in ways that they can relate to.

That happens all too seldom. But I hope it won’t happen here.

Joining us today from...
Joining us today from…

So, to all of you — followers, as well as new readers from all over the world — thank you for your support. I’m happy you’re here.

 

 

 

Who am I today?

Summary / Bottom Line

I don’t feel like myself, these days. I haven’t felt “like myself” in a long time. And all the hopes and dreams I once had as a kid, seem so far from me. But maybe, just maybe, I am truly living my hopes and dreams… I just don’t feel like I am. And that changed sense of myself is keeping me from realizing how much my life really does resemble my onetime hopes and dreams. Restoring a sense of self can be a huge challenge with traumatic brain injury, and adjusting to how things truly are, versus how they appear to be, or feel, is one of my biggest challenges.


I’ve been thinking a lot, lately, about my identity… who I was when I was a kid, who I am now, and who I’ve been along the way. I recently had a birthday, and while I don’t feel like I’m having a mid-life crisis, I still have been thinking a whole lot about whether I am where I expected / hoped / planned to be, when I was younger.

I know that “life happens” and we can end up very far from where we wanted to be when we were younger. And to be honest, I’m not even sure if I had specific plans about the trajectory of my life, when I was younger.

I do know that what I wanted more than anything, was to become a scientific researcher. I wanted to go to school to get a bunch of degrees, and then focus on research. I’m not sure what kind of researcher I wanted to become — I just wanted to study, collect information, synthesize it, and publish it.

I also wanted to be a writer. Maybe more than being a researcher. Being a writer is what I always wanted to BE. Research is what I wanted to DO. In a way, being a writer is like being a researcher – it’s not the same type of science, but there’s a sort of science to it — observing, drawing conclusions, testing your hypotheses, etc.

Over the course of my life… well, life happened. I got hurt. A bunch of times. I fell and hit my head a bunch of times. I got in car accidents a bunch of times. I was attacked. I did stupid things. And I got hurt. I also had a lot of chronic pain that knocked me out of the running when I was in my early 20s. And I got in trouble with the law and some rough characters, and I had to go on the lam when I was in my late teens, which limited my future prospects.

Now, looking back, I see how so-so-so many opportunities have been out of reach for me, because of everything that happened back then. I have done my best to patch things up over the course of my life, and relatively speaking, I’ve done extremely well for myself.

But am I really where I want to be today?

I’m not sure. This life I’m leading doesn’t look and feel like I hoped it would. It feels strange and foreign to me. Hell, I feel strange and foreign to me. I feel like a stranger to myself, half the time. I don’t have that feeling of being “comfortable in my skin” that people talk about.

Now, I used to have that feeling. I used to have a clear sense of who I was and what I stood for. And I didn’t let anyone hold me back. Even when I was getting in trouble with the law and then went underground, living overseas till things quieted down here, I had a clear sense of who I was, and what I stood for. I had to change my life for a while, and I couldn’t do a lot of the things I had once enjoyed doing — like going anywhere I wanted, whenever I wanted. But it didn’t feel like I’d lost a part of myself. I’d screwed up for sure, but I was determined to fix things.

When I was in all that crippling pain, 25 years ago, I had to let go of a lot of activities that had once meant a lot to me. I had to stop exercising and spending time outside in the sun. The diagnosis that the doctors came up with was probably wrong (I never had tests that confirmed or denied it 100% — they didn’t have good tests, back then). But I had to take steps in any case. As it turned out, the things that I was told not to do — exercise a lot, move a lot, test myself physically — were exactly the kinds of things that I needed to do to alleviate my pain. Movement and staying active was NOT going to hurt me. Being sedentary was.

In those years when I was dealing with the pain, I lost of lot of things that meant a lot to me. I couldn’t eat and drink the same things anymore, and I couldn’t do the things I wanted to do. But I didn’t have a sense of having lost myself. I was still who I was, and I was clear about that.

Now things feel so strange and foreign to me. It’s hard for me to describe. Even though I know I’m doing better, and I have numbers and feedback from friends and family that indicate I’m improving, I still don’t feel like myself. It’s hard to describe — just that someone else seems to have taken up residence in my life.

I know my personality has changed a good deal, since my fall in 2004. And it kind of freaks me out, because that wasn’t the first mild TBI I’d ever had. I’ve had a bunch — probably about 9. I’ve been assaulted once, had at least 4-5 falls, got hurt a couple of times playing soccer, got majorly dinged while playing football, I’ve had a couple of car accidents, and so forth. But not until I fell in 2004, did it totally screw up my life.

Not until the past years, have I felt like a stranger to myself.

It’s kind of getting me down, too. At least, it has been. I try not to think about it, but it’s still always there… Who am I today? What am I going to do today that doesn’t seem “like me”? What am I going to feel and think and say and do that doesn’t seem consistent with the person I know myself to be?

That feeling of observing yourself going through life… it’s weird. Disorienting. I resolve over and over again, to hang in there and just keep plugging, until I see some glimmer of who I am. And sometimes it works. I’ve been feeling more like “myself” lately, which is nice. But at the same time, I don’t quite trust it. Like in Flowers For Algernon, when the main character stops taking the medicine that made him think and act like a normal person… and he drifts back into his old state. Whenever things are going well for me, I feel like I’m looking over my shoulder for signs that I’m slipping back into not recognizing myself.

I would like to stop this. It’s not fun, and it’s not productive. It serves no one, and being on high alert over it just kills my quality of life.

So, over the weekend, when I had time to think about it, I realized that maybe it would be better if I just acclimated to this feeling and let it be. It could be that I actually am getting back to my old self — I just don’t have the sense that I am. It could be that I’m even better than my old self. There’s a good chance of that, because my old self was majorly concussed and had all sorts of issues that I didn’t even realize. It could be that I’m in better shape than ever before… but I don’t have the sense of it being so, and therefore I don’t trust it.

I don’t feel like I’m myself, most of the time. Maybe all of the time. But maybe I actually am. Maybe the missing piece is NOT my personality and my identity, but the sense of my personality and identity. Just because the sense of being who I am isn’t there, doesn’t mean I can’t BE there myself.

Rather than getting all caught up in recreating that sense of myself, maybe I need to just get on with living, regardless of the sense of myself. Maybe I just need to trust it… not place such high demands on what qualifies me as me, or not-me.

And maybe — just maybe — the life I have now is exactly what I was hoping /expecting / planning / dreaming I’d have, back when I was a kid. Looking around at my study and thinking about how I live my life, I realize that I am doing exactly what I always wanted to do, when I was younger — reading and researching and writing and publishing. I write and publish this blog. I read and research TBI-related materials (especially concussion and mild TBI) and I spend a lot of time thinking about them.

I also read and research other subjects and write about them, though I haven’t published much of that … yet. I am getting to a place where I soon will, and then I will have that to my credit, as well. This is all done independently, according to my own standards. I’m not doing it professionally, but I have managed to help some people, here and there along the way. That much is clear from the comments on my blog.

So, even though it may feel like I’m one person, the objective facts reveal something quite different. And for me, it seems the challenge is to not let feelings of weirdness and alienation and failure stop me from just getting on with my life.

At some point, I just need to trust. I’m working on it.

Onward.
 

Bright – a snapshot

Yes, bright

It’s an achingly bright day. Looking out the window, my eyes are skewered by sunlight. Brilliant shafts seem pierce through my eyes and into my brain. My temples pulse and throb, and I drop my eyes. Too much — it’s too much for my pupils, which have been focused on indoor sights since 5 a.m. The headache I was hoping I’d escape today suddenly surges up, going from a “2” to a “6” in a matter of seconds. I say a little prayer that the ache will subside, then I abandon that hope. Clinging to that faint promise in the past has wasted many a day for me.

I’ve had my back to the windows for hours, now, and it’s hard to believe that after days of murky skies we could have this much light, this early in the day. But there it is — sunlight. A lot of it.

The moon last night was wild and full, bathing every inch of open space with rich, silver light. And now the sun has taken over — even brighter. The clouds of yesterday have given way to a pale blue, cloudless sky, midwinter shadows of bare trees stretching across the space filled by moonlight only 6 hours before.

I rest my warm wrists on the cool edge of my laptop. I’ve been writing since 6 a.m., and after more than two hours of intense focus, I’m due for a break. I feel good. I’ve had some thoughts and insights that made sense to me, but I don’t want to overdo it.

I need a walk. Not a long ramble through the woods, over hill and dale, but a quick jaunt down the road and back. Just enough to stir the blood. Just enough to warm me up. Sitting for hours at a time makes me feel sluggish and cold, and it’s too nice a day to feel that way for long.

I look up at the window again, squinting my eyes slightly to keep the spears of light from skewering me like before. After a few moments, my gaze acclimates. I catch sight of my neighbor doing some yardwork, and the rattle and clank of his tools carries across the way on a brisk wind that tugs and pulls playfully at the tops of the trees. Leftover leaves are at last tugged from the branches of bare oaks and maples, the light roughness of their scuttles across pavement just barely audible above the sound of the wind and my neighbor’s rattling ladder.

I look back at my laptop and click the “save” icon, watching it flash, then turn grey. That means my save was successful. Another few clicks, and the machine is hibernating till I return.

From my walk.

Out in the bright light of day.

101 followers on this blog :)

Thank you to all who have followed this blog. I’m not sure how often you’ll be checking in, but it’s nice to see the tally.

I had an okay day today. I counted down the weeks till I will start sending out my resume. I’m at 14-1/2 weeks. A little over three months. I promised my spouse that I would not go job-hunting in September, as that’s when we plan to take a vacation, and also the last thing I want to be doing during one of the most excellent months of the year, is interviewing.

This will give me time to figure some things out. Spiff up the resume. Improve some skills.

But for now, it’s time to go to bed. I have to be up early. I need my sleep.

And there we have it. Good night.