Hey, today is the anniversary of this blog. Seven years ago today, I sat down to chronicle my “adventure” with TBI recovery. I wasn’t sure where it would take me, but all this time later, I have to say it was probably one of the smartest things I’ve ever done.
And thank you for joining me – all 296,885 page views and 4,550 comments. 🙂 Thank you for your ongoing support! I am truly grateful! Indeed, no words can say.
Blogging here has helped me to get out of my head — and my apologies to those who grew weary of hearing me bitch and moan about every little thing. There’s been a lot of wailing and gnashing of teeth in these pages, over the years. But eventually I did figure it out. Took a while and wasn’t easy, but I got there.
Anyway, things are moving on the neurologist front. Sitting down with my neuropsych yesterday, we walked through the different symptoms I’ve been dealing with, lo these many years. Many of them date back some 35 years — the tinnitus, in particular — while some of them are newer. The headaches have been a noticeable vexation to me since 2008, though I can’t say I never had them before that. Some of them started to be a problem after my 2004 TBI. Some of them, like the facial twitch and one-sided hand tremors, are fairly recent, becoming more noticeable and concerning in the past year or so.
I’m not one to complain, and I don’t want to draw undue attention to myself, but one of my relatives died of MS, another died of a brain tumor, and I had a friend who had Parkinson’s and did not get diagnosed for a couple of years — and they lost valuable time in understanding and treating their condition.
If I’m dealing with something bigger than your standard-issue First World problems of carpal tunnel and sleep deprivation, I need to know sooner, rather than later. The thing that really took its toll on the friend with Parkinson’s, is that they didn’t deal emotionally with it, and they were in resistant denial for quite some time… and they are NOT in good condition, right now. It’s alarming, seeing them as they are. Truly alarming, compared with how lively and engaged and into everything they once were.
I’m not saying I have Parkinson’s or MS, or anything like that. But TBI increases the risk of Parkinson’s, so it’s in the back of my mind. And if there is even the remotest chance of any of the above (or something else), I need to rule them out, before I go on my merry way.
For the record, I’m fine with a benign tremor. It gets worse when I’m tired, so it’s an ally in a way. Those sorts of things act as a sort of barometer to keep me honest. And if a good night’s rest will do the trick, then I can deal with the inconvenience.
Anyway, I’ve got to go get my car serviced. Off I go…