I had a busy weekend, doing a lot of work around the house while my spouse was out of town. Lots of lifting and moving and hammering and drilling and lugging things around. And in the end, I’ve finished some of the biggest items on my to-do list — which were also the ones that I couldn’t seem to do for months and months.
And it’s all good.
I’m really foggy today. I was really foggy yesterday. I’ve been feeling really “draggy” and dull, lately, and it’s not fun. But I keep to my schedule and I keep doing the right thing(s) for myself, and it all seems to work out okay. I haven’t been getting to bed at a decent hour, lately, so that’s probably a determining factor.
But at least I’m functional on average. And I can rally to get a bunch of stuff done when the opportunity arises.
Now it’s quiet. The sun is shining, and the kids have all gone to school. Time to get ready for work and see what the day has to offer.
This week, my goal is to get myself back on track with my sleeping. I see the neuro one last time this week, to see about possible neuropathy in my feet and legs. I’m guessing there’s none, but I’m going to follow through with it. Then I will probably just drop the whole neuro thing and look into having my ears checked.
I keep sleeping in past 8 a.m. This is new, since I returned from my business trip. This morning, my spouse had to wake me up at 8:15, asking if I was planning to go to work today.
Well, yes, I had planned on it. But if I don’t have to do it, so much the better😉 No, really, I hoisted myself out of bed, did a shortened version of my morning exercises, and made my breakfast. Now I’ll do a quick post before taking off for the office.
I got 9-3/4 hours of sleep last night. I think that’s a record, of late. The last few nights, I’ve been sleeping from 10:30 till 7:45 — even past 8:00 — which has been putting me at close to 10 hours, for the past three nights.
And I didn’t even realize I was that tired.
I guess it’s all catching up with me — and not only from the business trip last week, but from the past 10+ years of grappling with sleep issues. I’ve been exhausted for so long, I don’t even know what it feels like to be fully rested. And my neuro thinks that it’s one of the root causes of my dizziness and lack of balance. My old neuropsych said that sounded “preposterous”, but if the brain is in charge (at least in part) of your sense of equilibrium as well as coordinating your movements, and your brain is tired, then doesn’t it make sense that a tired brain would lead to an un-balanced body / proprioceptive sense?
That seems common-sense to me. But I’ll let them fight it out on the experts front.
Plus, not everyone metabolizes it the same way, so saying it’s benign in every single case — especially mine — is pushing it. And that’s beyond pointless. And a little worrying.
But on the bright side, my own situation is worlds better — at least for now. I may have to start setting a clock to wake me up by 8:30, if I don’t wake up, myself. I’m accustomed to waking up at 5:30, but I can do with out that, for sure.
Aside from the jet-lag and time-shift that came with the business trip, I think another thing that’s really helped me relax and sleep more, is taking some concerns off my plate. I’ve decided I’m not going to go back to school to finish up the B.A. I failed to get, 30 years ago. I was in trouble with the law, I was in trouble with my family, I couldn’t stay steady with anything I was doing, I was with a bad group of people who were very self-destructive, I was out of money, and I was too booze-addled to make good decisions. Finishing my degree just wasn’t possible.
My current employer pays for both graduate and undergrad education, so this would have been the perfect opportunity for me to finish my degree. But let’s be honest — there is no way I can hold down a full-time job, take care of my spouse, and take care of my own health, AND go to school, even part-time. Even doing one course, would be too much for me. Two to three hours of classes a week plus reading, plus studying for tests… with my learning differences, and my crushing fatigue… there is no way that could work.
So, after having this bright hope that I might be able to do it, I let that go a few weeks back. It feels like a surrender of something I’ve wanted with all my heart for so many years, but it just doesn’t make any sense. If I ever find a way to support myself that doesn’t involve being at an office and constantly dealing with people for 8-9 hours a day (and beyond that, considering all the emails and texts that come in at all hours), I’ll consider going back to school. But not if it puts me in debt. And not if it destroys my quality of life.
The wild thing is, ever since I let go of that plan/dream/ambition, I have felt so much more relaxed. Yes, it’s a loss. Yes, it’s disappointing. Yes, I kind of feel like I’ve failed. But this frees up that part of my brain that has been connecting my future success to the way I was always taught I could succeed – through getting degrees and adding qualifications and certifications that come from others.
As it turns out, I realize that I really am on a different path than that. I belong on the frontier. My great-great-grandparents were pioneers who traveled to the West when it opened up, and they paved the way for others to follow them. I’m actually not happy about some of the things they made possible — the Dust Bowl, rounding up Native Americans and putting them on reservations as well as genocide against this country’s first residents. That’s a hard legacy to carry. But at the core, at the center of it all, I am essentially a pioneer, not someone who settles spaces that others have opened up. And I’m the kind of person who thrives in unstructured environments where the rules have yet to be written.
So, I’m freeing up my “brain space” to make room for my new work direction. I’m making the most of my current job stability to really think about where and how I want to work in the future. I’m not rushing out to find a new job, right now, because I need time to think and really get clear about what I want to do. After years of hard work and sacrifice and doing a lot of jobs that I didn’t want to do because they were good experience, I’m finally at a place where I can literally pick and choose the direction I want to go in. I have the experience that others really, really need, and after years of rehabbing with a neuropsychologist, I once again have the temperament and behavioral control to work effectively with others.
I was this close to being able to do that, back in 2004, when I fell and got hurt. I was 18 months away from cashing in on my shares, that would have let me pay down my house and refinance the remainder at a very attractive rate. I was 18 months away from financial independence, which was no small feat for someone without a college degree, who everyone said would never get far in life because of my failure to complete pretty much anything I started. I could see the light at the end of the tunnel, and it wasn’t an oncoming train. It was my future – the future I had worked so hard for.
Then I fell, and everything fell apart.
I’ve been rigidly locked onto the idea that I had to finish my degree, in order to get anywhere in life. But in fact, that falls back on thinking from when I was a teenager. As an adult, I’ve always been a pioneer, a leader, someone who ventures into spaces that haven’t yet been explored. The things I’ve done, have been things that nobody else thinks are possible.
But I know they’re possible, as do the others I work with.
Now I need to look again to the future and find where I need to be. Not just where I am right now, but where I need to be, on down the line. I want to make the best of everything I’ve got, and take it to the next level.
And so I shall.
Holy smokes, it’s amazing what some extra sleep will do for you…
I didn’t get out and hike yesterday. My business trip was catching up with me, and I also needed to catch up on some reading and writing I’ve been meaning to do.
So, I did that. And looked out the window at the world in my back yard.
Then I took a nap – 3 hours. That surprised me, because I wasn’t actually feeling all that tired, when I lay down. I just knew I needed to give it a try. And after lying there for 15-20 minutes, I finally drifted off… and woke up around the time I needed to go shop for supper.
Now I’ve got one day left in the weekend, and I absolutely have to get outside. It’s spring, dammit. And I need to take it in, already. The weather’s a bit cold, but that might discourage all my neighbors from rushing onto the roads. Or maybe it won’t. In any case, I need to at least take a quick walk on my “short” hike. That should take me an hour or less, and it will stretch out my legs, which have been quite cramped and non-active for some time now.
I’ll have my lunch, change into my hiking grubbies, and head out.
My approach to sleep and work and taking time out during my business trip has really paid off. I got almost 8 hours of sleep last night, and I’m not feeling nearly as jet-lagged as I expected to. I’ve been back for 2 days, now, and although I am still a bit foggy, it’s not nearly as bad as it could have been.
It’s not much worse than I usually feel on a Saturday.
So, that’s completely awesome.
What worked for me was this:
Be completely uncooperative and resistant about anybody pushing me on my bedtime. Don’t take sh*t from anyone who tried to give me a hard time about not staying out till all hours.
Do my best to blend in with my surroundings, so as to minimize flack about not being a “team player”. Go along with the things I could go along with — dinner with the team, group activities, up to a certain point, and of course doing my job reaching out to customers and having good conversations with them while on the expo floor.
Take time away from people whenever I got a chance. Just retreat to my room, keep the lights low, don’t turn on the t.v. by reflex (I only turned it on twice – once to see what channels were available, once to check out), and decompress.
I did a lot of all of the above. And it was a really challenging time. But I came out of it in one piece, which is fantastic. And I’m not a miserable git, to live with, as I have been in the past.
Now I’m back to exercising in the mornings — I couldn’t get myself to the pool or gym on my trip, because I was pretty maxed out, cognitively and sensory-wise, so the idea of venturing into a swimming pool area or a gym with other people in it, was just too much for me. So, I didn’t bother.
It feels good to be back on the exercise bike, as well as lifting my dumbbells again. It’s also good to be back in a quiet house, where I can move at my own pace, and I don’t have people constantly texting me about meeting them here, there, or some other place. I get to stand at my desk and think, type, think some more, type some more. Check Facebook. Think about things. Just get my act together and regroup.
And go out for a hike later. It’s a little cold and rainy today, but that means there won’t be that many people on the trails, which is good. I’m in no mood to interact today. Just want to be a recluse and regroup after my trip.
So, I shall. I’ve got all day today — and tomorrow — to catch up. And for once, I don’t need to completely collapse and melt down, after that gauntlet run. I ran a good race, and now I can rest.
The sun’s coming up in the distance. Gradually. The sky is getting pink, and small clouds are hovering over the horizon. Street lights glow orange, and the tail lights of cars blink on and off on the streets below. My room is on the “boring” side of the hotel on this trip, which is good. The “exciting” side is bright and loud and exhausting. This room is my refuge.
I had a great time with my relatives, last night. I have not seen one of them in 30 years, and I had never met their spouse. You can really tell we’re related. Our mannerisms and sense of humor are very similar, and we talk about the same kinds of things. It was also good to connect with real people who are not working at the convention. Real people. Who talk to you because they want to.
I managed to escape the drunken forays of my workmates last night. I went to dinner with my family, and they went their own way – dinner and drinking till all hours. I cannot do it. I cannot tolerate alcohol, and being sleep-deprived is a hazard for me. My whole system starts to degrade when I am overly tired, and I make bad decisions that get me in trouble. I say things I should not say. I get combative. I get off-balance and am in more risk of falling. I make stupid choices and make myself even more tired, which compounds my difficulties. I cannot afford to get in that kind of trouble – especially in a work situation. I have a spouse and a home to provide for, and I also need to keep myself safe.
That is something that people with no health challenges can understand. They can just run around and do whatever they like without repercussions. A playground like this is paradise for them, and they can let their hair down and run wild, staving off their fears of dying and getting old.
My life, unfortunately, is all about repercussions. But I cannot tell anyone, because if people find out that I have “issues”, they can be very unkind. And they can start avoiding me. That’s why I never tell anyone about my brain injuries. They just don’t get it, and this is difficult enough, without adding constant isolation to the mix.
Brain injury can be deeply isolating. People do not want to confront human limitations – especially when it comes to neuro stuff. They just don’t. So, I spare them the discomfort of disclosure, and we can all just live our lives. But that’s the double-bind. If I don’t tell people I need special consideration and assistance, I can never get it. But if I do tell them, I can lose my job. And don’t tell me it’s illegal to discriminate. Employers, bosses, whoever… will find other ways to exclude you, if you’re “not a good fit”.
I like having a job. I like having an income. I like not being homeless and living on the edge. And silence is the price-tag on that.
Muddling through. Battling back the demons. Dancing carefully on the razor’s edge. And never letting on, just what is happening with me.
All the lights and noise and busy-ness that energize others… they exhaust me. I’m on constant guard against the onslaught. All the excitement, the long hours, the rich food and drinking… they fry my system, and I can barely keep it together… then collapse at the end of it all. I get so depleted, that I am pretty worthless for weeks after. It’s the price I pay for keeping up with “normal” people, and it has been this way my entire brain-injured life.
So, I suck it up. Keep going. Just focus on this being over in a few days. Three days and counting. And I really only need to work part of that time. I just want it to be over. But in the meantime, I enjoy what I can. Focus on the positives. Take time to myself. Recharge as best I can. And sleep whenever possible.
Focus on the good, so I don’t overwhelm myself with negativity. Just stay the course and be grateful for what good I can find.
The countdown to my business trip is T-minus-4-days. And in the meantime, I’m taking care of my everyday life as best I can.
I’m seeing the neuro nurse practitioner tomorrow, and I’ll be reporting in about my sleep.
Below is a chart of the numbers I’ve collected for every night over the past month. It shows how many hours I’ve slept, as well as how many hours I napped. And it shows how I stack up, relative to my target time of 8.5 hours.
I’ve been falling short consistently, apparently. I’ve been thinking I’ve been doing well, but when I see a chart, it’s clear I have a ways to go. A couple of weeks ago, I was really behind on my sleep, due to work stress and a conflict I had with a friend of mine that really got me bent out of shape. I know I shouldn’t let it get to me, but it did.
I am human, after all.
So, this is all stuff to work on. Things to stay mindful of, and not let it all get to me. And to find ways to calm myself down and chill out, rather than getting wound up and bent out of shape. Maybe I’ll put a printout of the chart beside my bed. Yeah – that’s a great idea for a reminder.
I’ve been prepping for my business trip next week, doing some shopping and also some checklists, as well as practicing my talks for the trade show booth. I’m not feeling a huge amount of pressure, though. If I do a good job, then fine. If not, I’m not sweating it. In a way, I don’t really care about the event. I care about the customers I’m going to meet, and I care about the people I work with, but I’m not personally invested in the company. Not anymore. Not since they’re selling out, lining the pockets of the people in charge, while laying off a lot of people.
So, I’m treating it like a free trip to a part of the country I’d never normally go to. Resorts in warm climates are fine, but I hate amusement parks and places where large crowds gather, so yeah, this will likely be the one and only time I ever go to this place.
One good thing is that I’ll get to see a relative I haven’t seen in over 30 years. They’re living in the area, and I’ll get a chance to catch up with them, which will be nice. That will get me off the hook of hanging out with my workmates, who just want to run wild and party while they’re away from their spouses.
I have no interest in joining them. I see them every day, as it is. I’m just going to do my job, and then come home. I wouldn’t even go to the place, if it weren’t for work. I need my sleep (see above). I need to eat right and take care of myself. I can’t get drawn into their version of fun.
So, I’m hoping my relative can provide some welcome respite from their company. It’s a plan, anyway.
In the end, I’m just looking forward to everything being over. Flying there, doing the job, flying home… and getting back to normal again.
But that all feels like a distraction from what my real focus is — getting enough sleep, so I can keep my health in balance… and also not have to use the sleep medication that was prescribed to me. My old neuropsych warned me away from it, because although it supposedly metabolizes quickly, that’s not true for everyone. And I’m so sensitive to meds, as it is, I can’t imagine my body is going to behave like everyone else’s.
The neuro visit this week is really just a way for me to check in — and check out. They don’t seem very interested in addressing the reason I actually went to see them – my balance. So, I’ll handle that myself. And never mind the pills. Or the procedures. They’re not that helpful, anyway.
I think my biggest frustration is that I go to these specialists in good faith, believing that they are willing and able to assist me. And then they just don’t deliver. Or show much interest in delivering. There are a million possible reasons, but figuring it out is not the best use of my time.
I’ve just got to keep the focus on myself, on keeping my own balance in every way possible, and keeping myself fit and capable as best I can. It’s really the only way my life is going to be as great as it can be.
And that’s my intention, really. To just have a great life — and enjoy it to the fullest.
I got some of what I intended done, yesterday. But I spent a lot more time being distracted and letting my mind wander in all sorts of different directions.
A lot of remote managers at work are in town, this week. And the recruiter who placed me in my current position stopped by my cubicle yesterday. They haven’t done that in close to a year. What the heck are they doing in my part of the universe?
I could be wrong, but it seems to portend yet more changes on the organizational horizon.
And that is most distracting to me.
HowEver (and this is a big new development for me), I actually know what direction I want to go with my career in the future, and the path is open for me, anytime I want it. I’ve got a veritable army of recruiters all eager to place me somewhere and get me into a good-paying position. The more I get paid, the more they get paid.
So, it’s no big deal, if I get laid off.
But it is a big deal, if I’m not prepared — and that’s something I forgot to do, yesterday. Last week, I found a bunch of free training at our company’s employee intranet, that will really help me gear up for the next steps in my career. It will help me get free and be fully qualified to do the kind of work I am aiming to do. And I did some of the training on Friday afternoon. But yesterday I was so distracted by so many different things, I forgot to resume it — that is, I forgot why I should resume it. I didn’t have good focus, and I was pretty scattered, trying to organize myself and get my planning and follow-through system in place.
I worked at it all morning, and by afternoon, I was tired, but I pressed on. And I actually “got lost” in the process — ended up spending way too much time re-hashing numbers and calculations and scheduling items, that I would be better off just putting aside and coming back to, later.
Plus, I didn’t get my swim, yesterday. My last meeting ended early, and I could have gotten to the pool in time. But I got distracted and by the time I got around to driving to the fitness center, the parking lot was full, and I realized it was way too late to be swimming.
So, I turned around and drove back and finished up the day on a pretty strong note.
Still, I didn’t accomplish all I set out to do. And I need to have a better system for handling things. I get so caught up in things, I lose track of time… and then I get tired and get even more distractable.
So, I need to break down my activities in to smaller “chunks” that I can handle more effectively… and not get lost.
This is especially important for this new training I’m doing. I’m really excited about it, as it offers me a clear path forward — and the methodology they use is not only widespread, it’s also really, really good for me. It “ticks all the boxes” for me in my work, and it’s a skillset that’s very much in demand, so there’s no lack of work.
So, it’s important that I follow through. And that I not forget to keep going with it. I really went off the rails yesterday. Then again, I did get some important things done, so it wasn’t a total waste.
Today was pretty low-key. I got up early, helped my spouse get on their way to a business commitment… went for a hike in the woods… took a little nap… had some lunch… did some chores… and now I’ve been doing some organization on some old projects.
Tonight I’ll work on my taxes some more. I got a start on them a little while back, but I’ve been too busy and too tired to focus on them.
So, I’ll do that tonight. Just take it easy. And get in bed early.
After I’m done downloading bank info, I may watch a movie I saw with my spouse, last week. It was a great movie, but I couldn’t watch it in one sitting because I got home late, and I had to get to bed at a decent hour. It’s over 2 hours long, which is longer than I’ve had to spare, each evening this week.
Tonight I have the whole evening to myself, so I can watch it, start to finish. I’m looking forward to that.
My hands have been giving me a lot of trouble, lately. I’ve been writing a lot – typing a lot – on the computer most of my waking hours. And it’s taking a toll.
The only problem is, I have a lot of writing I want to do. I’ve got a handful of projects that are just itching to get done – my Chronic Blogging project being the most pressing, right now. Maybe I’m just being spoiled, or maybe I’m finally getting to a place in my life — and my writing — where I’m really hitting my stride.
The latter, I think. I’ve been struggling with keeping things together for so very long, that just carving out time to write has been rough. And I’ve been foggy and fuzzy for so long, that it’s been a challenge to get the words together in decent order.
Blogging counts… but not exactly. It’s much more stream-of-consciousness, and it doesn’t require me to create a huge amount of structure around my thoughts. I can just get up, do my morning workout, get my breakfast, and then spend an hour writing about whatever comes to mind. It’s not the sort of activity that I have to plan out, structure, and then keep steady with.
Writing extended pieces takes a lot out of me. I tend to get distracted and lose my train of thought / resolve before I’ve completed the extended thought. That’s why I favor blogging – it’s “low-impact” for me, and it lets me mentally ramble more than I can in a structured work. I can also break down individual ideas into bite-sized chunks that are easier for me to digest.
But every now and then, I get a hankerin’ to write something more involved than my daily blog posts — something that demands real commitment, and which will have to do with more than the passing moments of my life.
Which brings me to my Chronic Blogging book-in-progress, and all the stuff that goes along with it. I have to figure out a way to elaborate on some really key points, without blowing out my hands and wrists.
Thus, the speech-to-text functionality of my devices.
I’ve got an iPhone for work, and an Android tablet of my own. The iPhone seems to do a much faster job of transcribing, although the Android tablet seems to be more accurate.
Speed vs. accuracy — the eternal quandary!
Anyway, I’ve been testing both of them out, and this weekend I’ll do some more work on my Chronic Blogging project, dictating rather than typing. I dictated about 1/3 of the book yesterday p.m., and it’ll be good to just plug it all in and edit it, rather than tap-tap-tapping away at the keyboard.
I need to break things up, anyway, and this will be a great way to do it.