Getting my balance back — and getting to a stopping place

picture of road on wall with crackled paintWell, that was exciting… The summer (thank heavens) is over, and now I can get my life back.

I don’t do well in the summertime. It’s a shame, because everybody else seems to have such a great time with it, running around, doing so much, getting suntans and extra exercise.

I, on the other hand, am not a fan. There are too many hours of sunlight in the day. And the days are hot… wet… uncomfortable in general. I’m sensitive to light and smells and noise, and summertime is full of all of the above. Not much fun.

I also have trouble sleeping in the heat. Keeping the A/C on in my bedroom (and all through the house, for that matter) is a constant source of stress with the noise. When I’m tired, I’m more sensitive to sound, so a moderately noisy air conditioner sounds like a massive fan in an airplane hangar. And that doesn’t help me sleep.

If I can’t sleep, I become more irritable. Volatile. Raging. It’s a problem. I’m not proud of how I’ve gone off the rails a few times, this summer. Between the work stress and summer stress… it’s not good.

I’ve been keeping really busy with work at my day job (sad face) and my own projects (happy face). It’s taken my mind off many of my troubles, but it’s also tired me out. Again, the fatigue business. And that leads to me drinking too much coffee… which leads to more headaches, difficulty sleeping… the same old vicious self-perpetuating cycle.

But now summer is over. Thank Heavens. And I can settle in for the next three months of enjoyment. I love fall. I love winter. I love spring. And now I get to take a break from summer.

I’m also giving myself a break from some of the Massive Undertakings I launched over the summertime. I came up with some pretty awesome plans that I’m convinced could be Very Big Indeed. The thing is, I really don’t have the capacity to follow through on all of them. I really bit off more than I can chew, so to speak, and that’s been dragging me down. I need to pick and choose what I’ll work on… and let the other stuff go.

But it’s all for the best, because as I narrow down my activities (e.g., writing and creating great content that I can license to others, versus running an entire company based on my ideas), I am operating from an understanding how a larger company would — and could — use my content to build their business.

I’m learning about the larger context for my writing, and that’s good. It’s very good indeed.

So, yes, sometimes I need to stop, in order to go. And learning to recognize my limitations and accommodate them is the first step towards being able to make some real progress.

It’s all a process.

Onward…!

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And now I feel it for the next week

work sign showing person shoveling a pile of dirtI had a busy day, yesterday. A quiet day, too. I helped my spouse get ready for their event, drove them there, unpacked the van, chatted with people at the venue, hopped in the van, and drove home along back roads (because the main roads were packed).

I had some lunch when I got home. Nothing huge, just a sandwich, potato salad, chips, pickles. I had a handful of things to do, so I ordered them according to the weather. It was amazing weather, yesterday — sunny with passing clouds, a nice breeze, in the mid-60s. Couldn’t ask for better mowing weather. So, I pulled out the lawn mower from the back corner of the garage, topped off the gas, and got mowing. It took me an hour and a half, but I got the front and back yards done. I also raked up leftover leaves from last autumn, swept out the garage, replaced a down-spout that had fallen off my gutter, and trimmed back some underbrush that was blocking the view from my driveway.

I used the leaf blower to clean off my driveway, stairs, and deck, and then I ran my snowblower till it ran out of gas. It’s best not to let it sit with old gas in the engine all winter. I’ve had the snow blower nearly 15 years, and it’s held up well, but I need to be smart about storing it over the winter. At last.

After that, I had a snack, took a shower, and put up a new huge bookshelf in my study that I got from the neighbors for almost nothing. I’d been needing a new bookshelf, and the timing was perfect. It took a lot longer than expected, because I don’t have a lot of room to maneuver in my study, and I had to put it together in a very small space. I also had to partly take it apart, because the way I’d assembled it first made it impossible to turn upright. Eventually, I got it, but I was not expecting it to take me three hours to do it.

Ah well, so it goes. I now have enough shelf space in my study, so I can get rid of some of the piles. I also have a lot of books I want to get rid of. I was interested in a lot of stuff, years ago, that just doesn’t have anything to do with my life, anymore. And I need to get free of all of it.

I also need to get rid of some of the computers I have. I don’t need to hang onto them. There’s no point.

Lightening my load. Getting my life in order.

It feels like I’ve been doing that a lot, lately. Picking and choosing and prioritizing. As it should be. I can’t do everything in my life, and I don’t have unlimited energy. So, when I do find something I care about that matters, I need to make the most of it.

I’m also getting clear about where I want to go with my work in life. Future directions. Areas where I need to focus.

I’m sore as anything, today. Just aching. But it was worth it. I got a ton of stuff done that I’d been needing to finish.

Whatever I do, and however I do it, I just want to make it count.

A quiet day… a busy day

Today is turning out to be interesting. My spouse has an event I’m helping to prepare for. I’ll pack the van, drive them over, help them set up, then come home and take care of my own projects here. I have some book cases I need to set up, books to move around, furniture to move, the garage to air out, the lawn to mow… etc.

And with the house to myself, this afternoon and evening, I can get it all done.

Plus, it’s going to be a cool day, today — temps in the mid-60s, which is a nice change — so I won’t have to run the air conditioners. I can actually open some windows.

And get a nap. Absolutely, get that nap.

I was up early, this morning. Couldn’t sleep past 5:00. So I got up and went out for a long walk. The early morning was cool, the bugs weren’t out yet, and I didn’t see that many people.

I still have an hour before I need to get going, so I’m making the most of it.

It’s quiet. But it won’t be for long. So, I’m savoring it while I have it.

 

 

Greetings from the island of missed opportunities

Happy Belated Memorial Day to All
Thank you for your service.

Last weekend, I had every intention of taking care of essentials. Getting my hair cut, mowing the lawn, going for long walks down the road, blogging on Memorial Day to thank veterans and their families for their service.

I got a fair amount done on Saturday. Then it rained for two days, and the rest of my plans were shot. The naps I was going to take didn’t materialize the way I’d hoped. I was still tired from last week, and I was irritable. I was off my regular schedule, which made me antsy. And I had too much time on my hands to think about how my life had taken so many wrong turns, and how I couldn’t seem to get it back on track.

When I’m tired and I can’t catch up on my sleep, problems happen. I cause them, of course… and then I need to fix them.

So, that’s how I spent the weekend — dealing with my self-made problems.

Fortunately, a lot of stuff got worked out, and I’m on better footing than I was, last week.

And life goes on.

The thing is… Sometimes things need to fall apart before they can get fixed. I’ve been kind of limping along on, for months (maybe years) at work and at home, trying to make the most of bad situations and challenging conditions, without knowing what to do about them. Either I was too tired, or I didn’t have all the the information. Or things (politics at work) were out of my control. And I just made the best of a problematic situation. Of course I did. That’s what I always do.

I tend to complain a lot on this blog, but to be honest, that’s mainly because I don’t whine about a lot of things in my everyday life. I keep that proverbial stiff upper lip. I make the best of things. I keep positive and can-do, as all Americans are taught to do. Being anything less is an affront to everyone around you and a sort of blasphemy in this country. Of course I can do it! Of course I’m capable of figuring things out! I’m an American. By God.

Every now and then, though, I just have to let that go and indulge myself in a little realism — how I really feel. How things really seem. It’s not giving up. It’s just being honest about how I feel about the situation… before I rally to get myself back on track.

I always rally. No doubt about that. I’m still here, after all.

Anyway, I’ve been thinking a lot about missed opportunities, lately. I’ve missed so many, due to slow processing speed, foggy thinking, and of course fatigue. The kind of tiredness that wipes everything messy, like all the class notes being smeared on the blackboard (or whiteboard, as they have now). And nothing makes sense, anymore.

I think about all the dreams I’ve had, and how logistically impossible they’ve all been. I have responsibilities. I have a household to maintain. Insurance to keep. A job (or two or three) to do, each day. The things I always wanted as a kid… most of them haven’t happened, in large part because I just didn’t have the capacity to keep up the pace required to do them all.

And there’s a sense of loss to that. A deep sense of … I dunno… deprivation? Failure? It’s hard to put my finger on it.

Then again, when I look at my life and all that’s happened, I can’t feel badly. Not for a moment. I’ve been able to experience some amazing things, and I’ve really had a great run. I continue to, as well. Even more now, than before, because I know so much more about my limitations and how to work with them. Ironically, my life started to come together after I learned about how limited I am. Only then, could I put systems in place that offset my difficulties. Especially with regard to memory, sleep, and prioritizing things in my life.

I learned how to listen to people, how to talk to people. Before I knew that my short-term working memory was horrible, I thought I could keep things in my  mind and interact with people by just being quiet. Now I know better, and I know that I have to keep engaging with people during our conversations, or I’ll forget what they said just a few moments ago. Not only does that help me remember, but it also makes me a better conversationalist. By far. And I’ve gotten over my self-consciousness, I’ve quit telling myself I was an idiot because I couldn’t remember sh*t.

I’m not an idiot. I have organic limitations to my memory, and I just have to work with them.

I also learned how to pace myself and take care of myself on weekends. I used to push myself constantly — keeping a steady level of stress in my life, to boost my “tonic arousal”, keep myself alert and aware of my surroundings. I realize now that while the stress is tasty and energizing like junk food, it’s also terrible for me. Like junk food. I’ve given it up, and I go to extra lengths to get as much sleep as humanly possible. My spouse helps, too, not pushing me so much to stay up late watching movies and late-night t.v.

I just can’t go without sleep for long, without there being serious repercussions. And the changes I’ve made have been hugely helpful to me, my spouse, our marriage, and my work life. It’s a win-win all around.

Most important, perhaps, is how I prioritize things in my life and say “yes” or “no” to things. I pushed myself really hard, up until about 10 years ago, just driving-driving-driving towards my goals. In a way, it worked wonders for my career. It built up my skills. It won me recognition and respect. But it also fried my nervous system. I was chronically over-committed in so many areas, working long hours, driving a long commute, doing extra jobs on the weekends, and pursuing my hobbies. I traveled a lot. I was always juggling a lot of balls in the air. And I could do it. For decades, I did it.

Until it undid me. My fall in 2004 was directly caused by being overcommitted, over-tired, under-rested, and not paying attention. It was nearly fatal to every aspect of my life, a kind of delayed reaction payback that forced a reset in my life that permanently altered so much.

I lost a lot in the process, including my ability to drive-drive-drive.

And along with that, so many opportunities disappeared. Just evaporated.

But when I think about it, I’m not so sure that’s a terrible thing.

I’ve gone from quantity to quality, now. I pace myself better. I pick and choose. I know I can’t do it all, nor do I want to (anymore). I realize just how much time and energy I wasted in all the rushing around, all those years. I was driven by a long history of TBIs / concussions that scrambled my thinking and set me careening through life without good systems in place to keep myself on track.

And that’s not a bad thing. It’s a very good thing, in fact. I don’t need to be doing all that stuff, at every turn. I don’t need to over-extend myself, every week and every weekend. Sleep is good. Rest is essential. And actually enjoying my life… well, that’s a concept I’ve gotten used to.

So, all in all, missing opportunities isn’t nearly as terrible as everybody makes it out to be. I’ve gotten over my FOMO (Fear Of Missing Out), to the point where I actually look forward to missing out. I see that the rest of the world can easily lose its mind by racing around at top speed, without stopping to think about what’s going on.

I have my music. I have my books and my house. I have my marriage. I have my steady paycheck. And the work situation seems to be sorting itself out, at last. The most important opportunity is still available: to appreciate and enjoy it for what it is, each and every day.

The one sure way I can tell I’m not feeling well, physically

Exercise turns on my brain – in more ways than one. So does this blog.

I tend to have a hard time figuring out when I’m not doing well, physically speaking. When I’m in pain, or when I’m not getting my exercise, or I’m generally not feeling great in my body.

I can get so wrapped up in my life — like for the past three weekends, when I had so much to do, and work was full of pressure — that I don’t get regular exercise, and the pain starts to bother me… including headaches. But I’m so busy, I don’t notice. It’s all I can do, to keep up.

Of course, eventually, I don’t keep up. I get bogged down. My head doesn’t work right. My thoughts are scattered and unreliable, and I stop using my adaptations to make sure I’m okay.

The one sure way I can tell when I’m headed off the rails, is when I don’t blog here. It doesn’t take me long to write a post. It takes 10-20 minutes to put something together. And I have more than that much free time, each morning, the way I’ve structured my days. If I can’t spare 10-20 minutes to write something here, then my life has really taken a turn for the worse, and I need to get myself back on track.

That means… exercise. Like I did this morning. I had an extra-long bike ride, then I did an extra set of lifts with my little weights. And while I was doing that, I thought about how I can get more weight lifting (with machines) in my life. There are some great gyms at the different buildings of my work campus, and one of them has a pool. So, I need to avail myself of the resources and take steps. Because I’m gaining weight, losing muscle tone, and my thinking has not been as sharp as I’d like it to be.

If I can manage to blog here regularly, it means my executive function is firing on all cylinders. It means I have enough energy to get into my day. It means I’m being pro-active and taking initiative in my life. It means I have left myself some wiggle room to do what needs to be done, and that’s exactly what I need to in my daily life.

I’ve been letting myself get too tired, lately. Work has been very, very busy, and also stressful. Long hours, especially every other weekend when we have software releases and I need to work overnight hours. This weekend is one of those times, and after starting work at 8:00 a.m. yesterday, I was till 4:00 a.m. this morning, working on problems that other people caused.

I’m not in a position to change jobs, right now, so I just have to tough it out… or look for another position at the company, so I don’t have to get dragged through the horror of outside interviews and having to prove myself all over again. Toughing it out and managing things as they are is actually more appealing to me than switching positions, at this point. I like most of the people I work with. Some of them make me crazy, but most of them I love… and they love me. So, there’s that.

Can’t put a price on love, you know?

Anyway, I’m a little delirious after getting only 4 hours of sleep last night (and I need to check in later today to see how things are going with work). I just need to get back in tune with myself and get myself back on track about my physical health and my mental state — support the body, and the brain will follow suit, is what I say. That’s always been the case with my TBI-addled brain. Not until I got into regular exercise and focused on taking care of my body, did my brain start to cooperate… and heal.

Until then, all bets were off. And I was miserable.

So, it’s better if I get my act together and get my exercise back on track. And keep blogging here. Each and every day. Or at least as often as I can manage.

Concussion / mild TBI recovery is not only possible, but highly likely. As many people need to know this as I can tell in one lifetime.

ONward.

UPward.

Ah, another beautiful day. Make a point of getting out in it.

sunflowerThe weather is amazing today. It’s not too hot, not too cold, and the skies are clear. The sun is rising over the hill behind my house, and I’ve got my music on. I’ll write for a little bit, then I need to do some day-job work.

We have a huge deadline tomorrow, and we’re still scrambling a little bit to get things in order. In fact, we won’t be able to get anything 100% in order by the time the “flip the switch” tomorrow, which makes a whole lot of people nervous, including me.

It’s pretty bad.

But, the job is going fine, otherwise. I’m not the only person under pressure or experiencing profound doubts about how things are done, so I have company. And I have a paycheck. I’ve never felt this disconnected from a job, before. The things I can change, I can afford to care about. All the rest of it… well, people make their own beds, and they have to lie in them.

I’m actually looking forward to getting some work done today — I do like the part of my job I’m doing this morning. I just don’t get much chance to do it, what with all the meetings and status reporting and presentations that need to be prepped. It feels like I spend more time talking about what I’m doing, than actually doing it.

But that’s something I can change. I can do what I please in the times between when people are hounding me for updates.  Including doing the work I love to do. Honestly, it’s fun — when I get to do it. So, I can both enjoy myself and take care of business.

It’s not so bad, really. It’s just a lot of work.

Fortunately, I can work from home when I need to, so that’s great. That saves me. Being able to lie down and take a nap, when I’m exhausted and can’t go on… that’s huge. And that frees up my energy to really focus on what matters to me the most, to do some deeper thinking, and really get ahead of things, before they pile up on me.

Given how much is going on in my job, each and every day, that’s a challenge. But that just forces me to get creative and come up with real options that I can work with, instead of being stuck in somebody else’s idea of a good time. If I’m behind, and I know it, and there’s anything at all I can do about it, I have only myself to thank for falling behind.

And that’s where I’m at, right now. Sorta kinda digging out from a self-imposed prison of t0-do items. I haven’t sunk enough time into everything I do, in a systematic way, and it’s taken a toll. So, on days like today, I can do something about that. And I shall. And why not enjoy myself, while I’m at it?

It’s a beautiful day, and I’m going to make the most of it.

The up-sides of the down-sides

construction worker with ratchet on a steel beamIt’s been a wild couple of days. I had to work overtime twice in two days, which meant I was up from 4 a.m. on Tuesday morning till 3 a.m. yesterday, and I was working intensely for most of that time. We had a big project we had to get done, and we were missing two people on the team, since they had previously scheduled vacation and the big project’s schedule got changed to the worst possible dates.

Oh, well. We just had to deal with it.

And deal with it, I did.

I got 90 minutes of sleep between the two marathon testing sessions, and that was it. Half the time, I felt like I was dead on my feet, and my brain was mush. I was doubled over in pain, part of the time, because of eating the wrong stuff to keep my energy up, which led to digestive problems.

I have to be honest – it was pretty rough. But I got through it. And I ended up lasting longer than just about everybody else, which is typical. One of the upsides of dealing with fatigue and confusion and pain all the time, is that when things get really rough, all across the board, I can  — and usually will — persevere. I can stick it out and still perform. Because I’ve had plenty of practice. I know how to do it, because I do it, every single day, pretty much.

I’m usually tired, usually brain-fogged, usually struggling a bit at something or another. That’s pretty much the cards in the hand I’ve been dealt, because even if I weren’t dealing with TBI issues, I’d still be pushing myself — always harder, always farther, always faster. That’s just how I am. I’m not all that competitive against others. I’m mainly competitive against myself, and I always want to see how much better I can be, how much I can improve.

That’s just how I’m built.

So, of course, I’m going to experience these kinds of stresses and strains, these challenges, these difficulties. And when I’m called upon to kick in and contribute, I’ll do that to the max. To the utmost. I’m not going to hold back. It can be a problem, of course, because I can push myself too hard and overextend myself, but I’m aware of that risk, so I do something about it.

Bottom line, all the difficulties I’ve been up against, over the course of my life have strengthened and sharpened and honed me to this point. And even if I’m not as sharp and strong and honed as I’d ideally like to be, I’m still able to persevere, to hang in there. To stick it out and really do my best, no matter what.

That’s a huge up-side, for me and everyone around me.

And it makes the down-sides manageable.

It’s all part of it.

Onward.

Unless we understand #TBI / #Concussion, we can’t really treat it

I’ve been more absent from this blog, this month, than I’d intended. Life… you know? It’s been very busy at work, and things are shifting with my role. I’ve had some additional training and workshops, and I’m still trying to figure out where I fit in.

Fortunately, I have help. There are a lot of folks at work who are eager to step in and pull people up to the level they need to be at. I’m not the only one who’s having some challenges navigating the new organizational structure, but fortunately, the expectation is that each and every one of us is going to have challenges and struggle somewhat.

So, that’s helpful, overall.

Getting support at work frees me up to get back to my mission: To write about long-term recovery from concussion / mild traumatic brain injury, and show that it is possible to restore your life after you’ve sustained a brain injury. There is a real dearth of information about this out in the world, and I’m (still) on a mission to do something about that.

I realize that all my … “gyrations” at work have distracted me from this mission. It’s been siphoning off all my energy and distracting me, which is the opposite of what I want and need. So, I’m settling down in my job, chilling out, and looking to my long-term future… 10… 15… 20… 30 years in the future.

And that frees me up to concentrate on the here-and-now with greater focus. It lets me get back to my mission.

The other day, while researching a post, I came across this article:

New Advice to Move More After a Concussion

When young athletes sustain concussions, they are typically told to rest until all symptoms disappear. That means no physical activity, reading, screen time or friends, and little light exposure, for multiple days and, in severe cases, weeks.

Restricting all forms of activity after a concussion is known as “cocooning.” But now new guidelines, written by an international panel of concussion experts and published this month in The British Journal of Sports Medicine, question that practice. Instead of cocooning, the new guidelines suggest that most young athletes should be encouraged to start being physically active within a day or two after the injury.

“The brain benefits from movement and exercise, including after a concussion,” says Dr. John Leddy, a professor of orthopedics at the Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo, and one of the co-authors of the new guidelines.

And it makes sense to me. Because when you think about concussion / TBI in terms of what it is (an injury that disrupts connections and releases a bunch of “gunk” into the brain that shouldn’t be there), and you think about the brain in terms of what it does (processes information based on connections and makes new connections where none existed before), and you think about how the body works (moves all of that information through  – mentally and physically), then cocooning probably isn’t the thing to do for long periods of time.

TBI is a tricky thing. It’s different for everyone, of course, and something that works for one person might not work for another. But we’re all walking around in human bodies, and those human bodies function pretty much the same way.

So, if we use the principles of how the body and brain work, and we understand the nature of concussion, and we understand the dynamics of the whole scenario, new treatment approaches become clearer.

It surprises me a little bit that it took till May, 2017, to figure out how to better treat concussions. Then again, until the past 10-15 years or so, people didn’t really take “mild” traumatic brain injury that seriously. Everybody just laughed it off like it was no big deal.

Then we started to realize that onetime football players were ending up in a bad way — worse than the general public. And football players and their families started going public about their struggles. And people started talking — out loud — about stuff that used to be a source of terrible shame and embarrassment. The kinds of stuff that “you just didn’t talk about”, back in the day.

A lot has changed, thanks to research and increased awareness.

And we’re making progress in many areas.

But still, it surprises me, how much we don’t know… how much we still overlook… and how many people continue to struggle, months and years after a concussion or mTBI.

I have my own struggles, sure. A lot of the problems I had haven’t gone away completely. But after all these years of actively working on solutions, I’m doing a whole lot better at managing them, and that’s made all the difference. Maybe it’s true that brain injury can never be reversed, but then, life can never be reversed, and if we treat concussion issues as just another aspect of life that needs to be taken seriously and managed appropriately, it is very possible to have a “regular” life afterwards.

Sure, you’ll have to change some things. You’ll have to adjust. But life is full of those kinds of requirements. We don’t get a “pass” when we get injured, and the world jumps in to protect us. We just get a different set of challenges and difficulties and benefits to work with.

That being said, mental rigidity is probably one of the biggest hurdles to TBI recovery. The very black-and-white thinking that takes over when your brain gets injured can cause the injury to become even worse. Because you’re locked in a straitjacket of limited thinking. Getting your mindset out of the box and trying different things, living differently, getting on with your life, and being mindful about stuff… that can help hugely. I know it helped me more than I can say.

So, there are just a few more days left in Brain Injury Awareness Month. I’ve fallen far short of my stated plan to focus on brain injury recovery for the duration. I had such great plans… But of course… life. And my limits.

Turns out, what I’m taking away from Brain Injury Awareness Month is a reminder of how — yet again — I need to adjust my commitments and expectations and go a bit easier on myself. The thing to remember is that life goes on. And while I didn’t live up to my own expectations, the world keeps turning, the sun rises and sets, it snows and the snow melts, and the songbirds return to my bird feeder.

For today, that’s enough. It’s more than enough.

Move movement

shotput athleteAll this immmobility is seriously giving me problems. My day job is very sedentary, and I don’t move nearly enough. And it’s been taking a toll on me physically.

If I’m going to last for the long run, I absolutely have to get moving more often. Even if it’s just adjusting my posture or moving my shoulders, I must move on a regular basis.

I’ve been doing a bit better with that, lately. I do my morning exercise bike ride, then I do some new movements, similar to martial arts and Qi Gong, that wake me up. In the past, I’ve done a lot of weight lifting, in combination with my bike riding, but the repetitive motions actually worked against me, and I developed back and shoulder problems as a result. Now, I’m doing more natural, more complex movements, to stir the energy and get my body woken up.

The way I see it, the real danger of brain injury is to the body. We can become so stressed, so preoccupied with what’s wrong with us, that we stop living our lives, we stop actively taking chances, and we stop learning. We can also stop moving. It’s so easy, these days, to “veg out” in front of the television and not do anything, or lie in bed looking at social media on your phone. Plus, the cocooning that’s often recommended after a concussion encourages immobility.

As it turns out, cocooning might not be the best thing for folks after a concussion, after all. We need to move more. And if you think about it, it makes sense. Concussion releases a lot of chemicals into the brain that need to be moved out. How does the body move things — by moving itself. Increased blood flow. Increased circulation. Increased breathing. Over-exertion isn’t a great idea — in fact, it may expose you to additional injuries, because your coordination may be impacted, and you may also not be able to gauge risk, or react to the environment as quickly.

You need to be careful. But you also need to move.

But I digress. This is really about me and fixing decades of sedentary life. I’ve allowed myself to get comfortable in non-movement, and now it’s almost like my body seems to have forgotten how to really move freely. In fact, that’s what happens. You get muscle amnesia, and your brain stops understanding how to move your whole body.

I need to do something about that. I look around at my peers, and I’m not impressed by how non-active they are. It’s pretty bad. They can’t move freely. They might play sports, go skiing, or run, but they don’t have fluidity of movement. They’re too busy looking the part of a respectable adult — and it amazes me, just how restricted your movements have to be, when you’re doing an impression of a respectable adult. Especially for women. Don’t run, don’t spring into action, don’t move in unexpected ways… No wonder our bodies run out of juice. We don’t use them.

Well, I for one am not going to end up like that. Yeah, I’ve got some pain going on. I messed up my shoulder again over the weekend. But I’m working through it. I’ve got my movements, I’m getting into motion. I’m also using my stand-up desks at home and at work, to get me off my a**. I’m going up and down stairs at work, instead of taking the elevator. Even if I’m carrying a heavy load — especially then.

And that’s good. It’s helping. It’s working itself out.

Onward.

Back in my own space again

laptop with blank notebook and pen on a desk
Today I move at my own pace – blank slate

I’m back in my home office again.

It’s been months, since I was in here regularly. I had been working downstairs in the dining room, where I have better wireless connectivity and I can move around the downstairs without disturbing my spouse.

But nowadays, I really need to get back into my office. My study. My refuge. Everything in this room is here because I want it to be. I need it. I value it. That’s not to say I don’t want and value what’s downstairs. I do. It’s just not all mine, and it’s shared space with not only my spouse but anybody else who comes over to the house.

Granted, there are not that many people who come by, anymore. I can’t deal with having a lot of people in my home. Not anymore. We used to have company over a lot. But in the past several years, that’s faded away. I’m too tired, by the end of each week, to deal with people. And when I do have extra social activities on the weekend, it really takes a lot out of me. I hate that it does, and I do plenty to offset it — like working on my stamina and pacing myself better during the week — but it’s still an issue.

A tired brain is a cranky brain. And when my brain is cranky, it’s not much fun to be around.

Truly.

And too many other people have found out. I’ve gone ballistic on some folks whose only crime was being in my house when I was too tired to interact with them. They were friends, and they considered me a friend. But now they don’t talk to me. Oh, well. So it goes. At times, my life is easier without having a lot of regular friends in it, to tell the truth. Does that sound sad? It’s not. I need my peace and quiet. I need my rest. There’s only so much of other people I can take, even on my best days.

That being said, I’d been able to work downstairs in the dining room, because we rarely use the room for eating, except when we have company.  We use it to store things — boxes we haven’t decided what to do with, yet, as well as other packing materials. Papers and mail that isn’t time-sensitive and just needs a place to “sit” till I figure out what to do with them all. Books. Books. More books. Things we’ve moved from other rooms, to make space for our everyday lives. And there’s room for me to set up a workspace at the dining room, which is exactly what I’d done over the winter. The dining room is warmer than my study in the fall and winter, in any case, so that’s part of why I moved my “operations” there.

But not having my own space has gotten to me. I need to close a door behind me and settle into my own frame of mind — the mentality that sets in when I’m in my own space. I have my books around me, my music, my artwork, my papers. It’s all here. All my fascinations from over the years. And all my neurology info. Especially my neuro info.

So, now I’ve moved back into my study, and I’m looking out the window at the bird feeder and the falling snow. We got more snow last night, and now the wind is up, so it’s cascading off the trees, so it looks like we’re having a blizzard. We’re not. That’s just the overnight snow being tossed by the breeze. But it looks pretty intense at times.

It’s Sunday. That’s good. I have a whole day to pretty much do as I please, and that’s a welcome change. It’s not that I’m going to indulge myself… it’s that I have a lot that I want to do, and not having other responsibilities driven by others’ needs is making it possible for me to make some headway.

Write some blog posts. Read some papers. Get the word out about brain injury recovery being both possible and probable. I’m on a mission. And having my own workspace makes it easier for me to focus on that.

So, yes. Onward.