Getting my body back, too

balance-figuresI’ve been concerned about falling, for some time, now. I get lightheaded and dizzy, and I sometimes lose my balance when I’m tired or I’m distracted (which is often how I feel). I’ve seen a neurologist about possible neurological bases for this, but the MRI didn’t come back with anything meaningful that they could do anything with. Also, I don’t have a condition they can diagnose, so they can’t bill the insurance company, which means I can’t get much in-depth help from them. They need to pay their bills, and if the insurance won’t cover what they’re doing for me – and I certainly can’t cover it all – then nothing’s going to get done.

Which kind of sucks.

But frankly, it doesn’t surprise me. I have been steering clear of neurologists for some time. Only after my neuropsych encouraged me to dig deeper, did I agree to try again. And the one they referred me to moved out of state, so that’s that. This one was another good prospect, they thought, but my experience is turning out different from their expectation. No surprises there.

I’m going back in another week to follow up and put this whole thing to rest. All they can tell me is that I’m probably not sleeping enough, which my old neuropsych thought was “preposterous” – but I can kind of see their point. When I’m tired, my brain doesn’t work as well. And balance is very much handled in the brain. So, fatigue could conceivably be a source of imbalance.

Still, there’s no guarantee that I’m going to ever actually catch up on my sleep and feel fully rested. I wear out easily, and I don’t have a life that allows me to get naps when I need them. Not yet, anyway. I’m working on that.

Anyway, I’m not going to get all bent out of shape about it. I’m meeting with a wellness coach/personal trainer at work today. That’s one of our employee benefits – an on-site wellness consultant – so I’m going to take advantage of it. I’m going to see if they can tell me some things I can do to strengthen my overall system, to give me better balance, physically speaking.

Think about it — the body moves as a result of muscles coordinating their movement. And keeping your balance really involves a lot of muscles. I sit and stand — stationary — for most of the day, every single day, so I don’t use those muscles as much. And that’s no good. So, I’m hoping they can show me ways to strengthen, as well as get more flexible — that’s another piece of keeping your balance.

I’m also working on really improving my sense of my own body and where I am in space. I get pretty banged-up from doing yardwork and chores around the house, because I run into things (but don’t realize it), and then I end up with bruises from impacts I can’t recall. I’m so focused on what I’m doing, that I don’t even notice the impacts. So, yeah, there are two things going on there, but I’m thinking that if I can at least improve my sense of where I am, relative to sharp objects and hard surfaces, I can possibly look a little less like I got in a bar brawl, after I’m done cleaning up the yard 😉

The way I’m working on that, is by really paying attention to my body during the day – noticing where I’m tense, and focusing on relaxing it. I’ve been watching videos of Systema — a Russian martial arts practice that centers around breathing, relaxation, and body awareness. Some of the things that they do in the videos are amazing — and the folks doing it aren’t these monster-ripped superheroes who overpower their opponents with sheer force. They’re average-looking folks who you’d never expect to be able to do the things they do. Because they know their bodies, and they relax and let themselves just respond to the situation.

I don’t think I’d ever do Systema training, because of all the hits and the falls. I’ve had enough of them in my life, already, and I don’t want to push my brain’s luck. But I did get a book from them a while back about breathing and improving your body sense, and I’ve been reading that on and off, over the past year. I’m getting back to it, now, and it feels pretty good. Just getting a better sense of my body, how it moves, how it feels when it moves… when it’s tense… when I need to breathe… it’s good.

It’s also helping me sleep. I get so caught up in my head, that my body can’t catch a break. So, focusing in my breath and also trying to feel each and every bone and muscle in my body, and relax as much as possible… that gets me into a relaxed state that gets me “down” before I can get halfway through. I’ll start at my toes, and by the time I’m at my knees, I’m out.

And that’s great. I used to do this all the time, then I stopped… and I forgot about doing it. That’s one thing I’m working on, these days — trying to follow through and not drop things before I finish them. Or, if I do get interrupted, make a note of what I’ve been doing, and keep that note where I can see it and remember it. I just remembered another project that I was making amazing progress on… then I got interrupted, and I forgot about it… and I ended up heading in a completely different direction.

Months later, I suddenly remembered it last night, and sure enough — there it is, waiting for me to continue working on it.

The breathing and relaxation stuff is just the same. I’m making great progress, then I get distracted, and I head off in a different direction. And I forget about what I’d been doing — and it ceases to exist for me.

So, I lose the benefits I’ve been getting from it. And I lose that part of my life. I slowly drift back to my old ways. I start having the same problems that I had before, and I wonder why I keep ending up back where I started… all over again… when I was making so much great progress.

It’s discouraging. So, I need to do something about that.

And so I shall.

Onward…!

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If your insurance company denies a test or treatment your doctor ordered

Try this:

insurance-denied

This is one thing Facebook is good for – in addition to the folk health remedies, various lifehacks, and funny pix.

I actually got that done…

Cause for celebration – I have finally successfully navigated figuring out how to terminate extra insurance coverage I have not needed for over a month. For the longest time, I wasn’t sure where to start, or whom to call, but I sat down and made a careful list of steps and the phone numbers I needed to call. Then I got folks on the phone who would repeat things to me, till I had it all straight.

I just typed up and emailed out two letters that ended $750+ of expenses each month. It feels pretty awesome.

Of course, there are still other expenses, and I still have to pay something for the benefits I have from my new job, but it’s a fraction of what I have been paying.

I still have to take care of a few other things, which are even more complicated. My spouse gets government assistance, so now I have to sort through that special bureaucracy… not looking forward to that, but this evening gives me a much-needed boost.

Onward.

Headache, but it’s fine

This again…

I’m cutting back on my coffee. And on my fats. I’m building up my exercise — and doing a wider variety of things more times a day. Changing things up, so it doesn’t feel so stale.

I’m still getting there — these things take time. I’ve only been turning things around for about the past week, so it’s going to take a while for the changes to show up.

But they will. I’m sure of it.

Headache has been pretty steady for the past few days. I think it’s directly related to cutting back on coffee and also not sleeping very well. I’ve been stressed over work. So, that hasn’t helped, either. But it’s temporary. It will pass.

My insurance situation has been strange. I got my medical sorted out, then I went to pick up my prescription for Imitrex for migraines, and my pharmacy insurance wasn’t working. $235 for 15 pills. Yeah, no thanks. So I made some more calls yesterday, got bounced around a bit, and finally got a call in the afternoon that everything had been sorted out. I stopped by the pharmacy on the way home, and they told me that because the details of my prescription had changed, I was going to have to wait another 10 minutes for the pharmacist to sign off. I told them I’d just come back the next day, which I’m going to do later today.

All this is just one more reason why I’m not a big fan of meds. It can turn into a management issue, which just complicates my life and messes with my head. For folks who get a lot of benefit out of them, with life-threatening conditions and chronic conditions that make their lives miserable, I’m glad meds exist. For folks who aren’t in dire danger, though, it can seem like more trouble than it’s worth.

I’ve been through the try-this-medication-and-see-if-it-works adventure before — about 25 years ago, I had crippling joint pain and had a ton of diagnostics done, as well as some powerful medications. None of it actually rendered any real results, and I just turned my life upside-down for nothing. The doctors couldn’t get a clear picture of what was happening with me, and they couldn’t find something that worked. At all. Waste of time and money and a whole lot of hope.

Only when I took matters into my own hands and started moving and stretching — against doctors’ orders — did things start to clear up for me.

Ultimately, I believe what was really wrong, was that I was too sedentary, I was doing a lot of walking in leather-soled shoes on hard asphalt and cement sidewalks, and I wasn’t eating right. I changed those things, and my condition improved. Plus, I quit smoking.

Now I’m in a similar situation, where I’m in a fair amount of pain on a regular basis, and I need to make some changes. I’ve got some progress happening for one of my most important projects, which is exciting — almost beyond words — and I’m really very clear about what I’m NOT going to do with my time, as well as what I AM going to do with myself. I’m simplifying my life, and it’s good. The money situation is getting sorted out, and I’m making some dietary changes that I’ve been needing to make for a while.

Basically, I’m cutting down on the “healthy fats” that I’ve been eating on a regular basis for the past year. I discovered “bulletproof coffee” last April, and I’ve been drinking my own version of it ever since then. The only problem is, I’ve actually gained about 10 pounds, and my energy is not always what it could be. I have been steering clear of eating a lot of fruits, because of the sugar and the carbs.

But I think it’s time to change that up again and get back into eating fruit again — using it for energy, instead of that afternoon cup of coffee. Getting coffee out of my system isn’t easy, and I’ve got to taper off gradually. And cutting back on the fatty foods is also an interesting process. Fortunately, the sugars from the fruits offset the dullness.

Hopefully they’ll help me get past the headache. I did some research on Imitrex, and it’s pretty powerful stuff. Supposedly it’s a well-established medication from the Triptan family. Some folks swear by it, while others report some nasty side-effects, including dizziness, vertigo, and a heaviness/tightness in their jaw.

I don’t know how I feel about the side-effects. I have to try it myself to see how it goes, but having more stimuli to process is not the sort of thing I want for my system. I already have enough coming in on me all the time. And I’m going to add even more to it?

Hm. Well, we’ll see. I can try it out this weekend and see how it goes. But if it makes me feel strange, forget it. It’s all about cost-benefit, and if I have more stuff in my system, I don’t see how that’s such a great thing. I won’t know till I give it a shot.

In a way, I’m not sure if I really want it to work that great for me. If I end up depending on it to feel good, then I’m not independent and I’ll always have to keep some around, just in case. I can probably strike a balance with it, but even so, it’s one more thing I need to manage, and if my insurance ever doesn’t cover it — like my spouse’s insurance, which won’t cover their name-brand anti-seizure medicine to the tune of $300+ each month (they’re getting their doctor to put in a special request for coverage) — then I’m up the creek with fewer options. I’d rather have options that I can handle myself.

Or just put up with the headaches.

As long as they’re not hurting me. I’ve heard that long-term migraines can cause brain lesions. Great. Just great. But my MRI from 2009 looked great — and this after something like 40 years of migraines. So maybe I’m in the clear. Or these aren’t migraines.

Who the hell knows? All I know is, life is waiting, and it wants to be lived. I’ll figure something out.

Onward.

 

The road will be long – and surprising things will happen

So, I had a good appointment with my new neuro.

Headaches = migraines. Confirmed.

MRI coming up… partly to check on that pineal cyst that was discovered back in 2009. Everyone has assured me it’s no biggie. Tons of people have them. MRI with contrast. Get ready. Last time, I got a little sick from it. So long as I know ahead of time, I can prepare.

Thought everything was going well. Then got a call from the dr.’s office. Apparently, my insurance company told them that my coverage was terminated on March 1 – two months ago.

Surprise.

And not at all true. Premiums have been deducted from my account like clockwork, and I have coverage till the end of November.

Paperwork.

Huh.

So, after a few harried phone calls, I got people back on track. Not at all true. I do have coverage.

So there.

Onward.

Did the math. Yes, we can afford another car

Math is not my strong suit, but this situation looks pretty good.

The numbers are in, and it’s looking pretty good. So far. Based on all the work I’ve done over the past year or so, I can actually afford to buy a decent used car outright. I found one yesterday that looks promising. Granted, it’s not top of the line, but it’s looking solid, and I’ll be going to look at it later today. Here’s hoping it will check out okay, so I can just buy it and get on with my life.

I’m also hoping the salesman I talked to yesterday can cut me a break on the price, if I write him a check. It will save us all time and money, instead of dragging us through all the paperwork and hassle of financing. It works out for him in a way – maybe he’ll sweeten the price a bit for the equivalent of cash.

Heck, I could even give him cash, if he liked. Run to the bank. Get some large bills. Hand him a sack full of Franklins.

That could work.

If I buy the car outright, then I won’t have to carry comprehensive coverage for it — I can get what I need, without insuring it for the financing company’s sake. What they don’t tell you about financing and leasing new cars, is that you have to carry pretty robust coverage for the vehicle, until it’s paid for. Then you can adjust the coverage you have and save yourself some money.

By paying for the car in full, it saves us from a monthly payment, which is good. It’s also nice to own the car outright — which is why I don’t think I’ll ever buy a new car — unless I’m independently wealthy. Heck, even then I don’t think I could justify it. I don’t need a new car smell. I just need reliable wheels to get me to and from.

So, there goes my safety net — my three months of living expenses. On the one hand, it might make more sense to finance just a little bit of the car, so we still have a bit of a safety net. On the other hand, it will be nice to not have to hassle with yet more complexity.

Then again, I expect to be getting a tax refund, and the insurance company will be cutting me a check for the totaled vehicle (not sure how much that will be yet, but I’m hoping it’s more than a fistfull of dollars). So, there will be more money coming in. And I’m working a lot of hours, which means overtime. Time and a half is pretty sweet.

Well, anyway, it’s time to get ready for work. Get myself in gear. Go out and take care of business. And be done with this crap, so I can get back to my regular life.

Amen.

Onward.

The slow return to normal – and beyond

Kind of what it feels like

So, the upheaval over the accident a week ago has begun to settle down. I truly cannot imagine a worse time for life to be disrupted. It’s been a roller coaster of tears and anger and frustration and confusion, with some pretty intense extremes.

I really don’t have time for this sh*t.

I’m not being selfish and insensitive. I really feel for my spouse and all they are going through. It was a really traumatic experience, and I totally understand the reasons for the tears and the anger and all the emotional upheaval. I truly do understand. And I’m there for them to support them as they heal. And I have to deal with my own emotional stuff, too.

The thing is, life goes on, and I have a lot going on with me, just to keep the ship sailing in the right direction. I have to keep functional at work. And I have to finish my own personal projects which are a way for me to A) earn some extra money now, and B) set me up for future income in the years to come, when I cannot do this 9-5 work thing anymore.

I’m feeling less and less capable of dealing with the workaday world, each day, and I know I need a change. I’m not happy with how my brain functions at work – I’m forgetful and distracted and I am not functioning at the level I want to be at. I feel so marginal. I think it’s a combination of brain injury stuff and motivation and the general environment. When you’re dealing with TBI, you have to put in a lot of extra effort and find the “special sauce” that keeps you actively engaged in your life. Then things can go relatively smoothly (on a good day).

But if you take away the motivation and the joy, the sense of purpose and connection, everything gets harder. A lot harder. People at work are very nice, and I’ve had worse jobs, but they’re cliquish and petty and we have very, very little in common.

It becomes more obvious to me, every day, that I cannot continue to make a living, doing what I do the way I do it now. I am wearing so thin, it’s a challenge just to keep my head in the game and show up 100% each day. I really friggin’ hate the 9-5 scene, with the cubicles, the pettiness, being stuck inside all the time, and being in an artificial environment. It also makes me nuts that the people running the show don’t seem to be interested in actually running the business for profit, so when they come up short, people get cut, and it leaves me feeling quite vulnerable and exposed.

That will never do. Someone else who can’t run their business is going to dictate how my life develops? Oh, I don’t think so. It’s really wearing thin with me, and I need to get out. I’ve started counting down to when I can leave — not sure when that is, but I’ve got this countdown going in my head.

So I’ve been putting a lot of my time and energy into developing concepts and projects that can get me out of that environment. I continue to get up each day and go through the process of living my life and building the pieces I need in place for myself in the future. I’m very clear about my ongoing direction — there’s a lot of writing and publishing and “information marketing” in the cards for me — and I’m very clear about how to get there. Plus, there are a lot of resources online to help me get where I am going. So, I’m fairly confident these ideas will take flight.

It just takes a lot of work and a lot of focus. Every extra hour I have, when I’m not eating or sleeping or trying to relax for just a few hours, gets funnelled into my Great Escape. And having this car accident intrude on my focus and having to process all the drama around this event has really been sucking the life out of my activities.

I’m not feeling like I have the wherewithal to go through this whole post-traumatic process with my spouse, and deal with it along with the rest of my life. It was traumatic for me, too, because whatever happens to my spouse, happens to me, and it was pretty intense, being at the hospital and not knowing what the hell was going on. And the car being wrecked… that’s not so great, either. Working through it all… it takes time, and time is something I just don’t have much of.

The thing is, in the back of my mind, I am absolutely certain that things are going to turn around for us. My personal projects are solid and valuable, and I know a number of businesses which have a real need for them. It’s only a matter of time, till I can break free of where I’m at.

It’s the getting there that takes so much time and energy. So, I’m just keeping steady… slowly returning to normal… sitting through the tears and anger and fear and anxiety… looking for every opportunity to change and improve, picking and choosing how I spend my time.

I’m also continuing to grow and expand and develop. Getting new ideas. Following through on them. Testing and seeing what works and what doesn’t, and just staying steady. There’s none of that old haphazard approach, where I would just throw something out there and hope for the best. I’ve got plans in place, and it makes all the difference in the world.

And so it goes. I have to keep current with my sleep, as well as my nutrition. I need to keep on with the everyday, as well as reach beyond to what’s yet to come. I’m feeling really positive about the direction I’m taking.

I just need to get through the fallout from this accident in one piece.

Onward.

Calling the insurance company

Not looking forward to this. I am very tired, and my speech is slurred, my face is numb and twitching, I’ve been sleeping on my arms wrong, and the fingers on both hands are stiff with pins and needles, and I’m having difficulty putting ideas together coherently.

I’ll give it a try and go ahead and make the call. I tend to get better, once I get warmed up, anyway. I’ve got my notebook where I’ll keep my notes and keep everything organized. I have some slips of paper I wrote notes on, and I’ll transfer them to my notebook, so I keep organized. I’m really out of it and disoriented. Things always get worse in the days after. When you’re in the thick of things, everything is a blur. Later, when things calm down, is when the extended problems start.

Fortunately, I got some great tips from someone I met yesterday who told me to go to www.nada.com and get the “Clean Retail” value of my car, then call the insurance company and definitely do not settle for their offer, if they total the vehicle. They told me about different tricks the insurance company tries, like telling me they’ll pick up the vehicle and taking it to their lot, and then just sitting on it, while I wait for my settlement. I also need to find out if I have rental coverage.

I’m not sure how this will turn out. I don’t know if the car is worth saving, or if we should just get a new(er) one. I really don’t know. I don’t have enough information yet.

The airbags went off, so apparently insurance companies tend to total vehicles when that happened. Also, when I went to the tow yard and cleaned it out, there were pieces of interior that were twisted and bent, that shouldn’t have been, so that looks to me like frame damage. If you hit the front of your vehicle, and one side of the back bumper is pushed out and back, I’m guessing there’s more going on than front-end damage.

Anyway, I have a huge day ahead of me. I have some critical meetings happening, and I also need to make some important calls. It’s not a small thing, this day, and I’m not really feeling up to it. But I’ll do it anyway, as best I can.

Off I go, to talk to the insurance folks.

No, we are definitely not alone

We’re all in the same boat, kind of

My job went well today. I have good days, and I have not-so-good days. But there is always another day to come. I was quite rested from the long weekend, and because I don’t have a short 4-day week, this week, I can work regular hours and not have to “bulk up” on my hours, so I can come close to breaking even.

I also canceled an evening appointment tonight, too, which turned out good, because we had heavy rain storms this evening, and I would have been caught in a nearby city in the pouring rain, if I had gone in. But I didn’t. I took my time getting home, and I saw some very impressive downpours and washouts.

Ah, summer.

Anyway, now I am on hold with the insurance company, because I messed up my coverage election, and I am currently without health coverage. This could be a real problem, but I’m not letting it get to me. I just need to jump through some hoops and deal with it. I can’t get all anxious about what *might* happen. I need to focus on what is and is not happening, and just stick with the details.

I noticed at work today that there are a lot of people in my same boat — we’re new, and we’re figuring things out. Some of my coworkers are ultra-helpful and bend over backwards… while others are more cliquish and don’t want to extend themself to the “newbies”.

At least there are a bunch of us who are in the same boat.

And I think about how many people there are in the same situation as me, hassling with paperwork they do not understand, trying to get help from people who aren’t very interested in helping them on the phone, hassling with devices and whatnot. I hate talking on the phone, because it is hard for me to hear and process things quickly, without seeing the person I’m talking to. It’s very stressful for me, but I have learned how to keep the person on the line until they have answered all my questions at least 2-3 times.

I make them repeat what they said, then I repeat it back to them, and ask them to confirm what I understand.

It’s awkward and difficult, but I get the answers I need that way.

You do what you have to do.

And if I let it get to me, it would make me NUTS at how convoluted and confused everything is. If you don’t have 100% clarity of thought, or if you’re distracted or you have some other cognitive issues, the system is pretty much stacked against you. That means a ton of people aren’t served very well by much of anything we have in place in this country.

I am definitely not alone.

But instead of getting all tweaked about it, I’m going to write up my notes from my call, gather my wits about me, and warm up my supper… and have a nice evening relaxing and reading.

It’s all good. It’s just a real pain in the a$$ sometimes.

 

Adapting… and realizing how much good it does me

I have had a few days to “decompress” after my trip to see my family. Two full days of driving — 8 hours there, 8 hours back — did a number on me, and I’ve been foggy and dull since I got back. Also, the pace was relentless while I was there. My family goes at top speed, pretty much all the time (except when they’re sleeping, which fortunately happens more often, these days).

So, all in all, it was a very challenging time — a challenge which I nonetheless rose to, with all good results.

The thing is, now that I’m back, I need to re-acclimate to my everyday life, which is very, very different from how things are at my parents’ place. It’s much quieter here, much less active, and a lot more contemplative. It’s ironic, because my family is very religious, and they consider themselves very spiritually connected. Yet they are so busy going-going-going, they hardly have any time to deeply consider their thoughts and their actions and the consequences of them. I love my parents dearly, and it pains me to see them declining — a little more, each time I see them — because they simply won’t take a close look at what they are doing and eating and drinking and living, and accept what it’s doing to their health and well-being.

My father considers himself a self-made man, which is true in that his diabetes has worsened because of the choices he makes. He thinks he can wish the condition away, but his actions and choices of foods make that all but impossible. My mother considers herself a socially connected person who cares deeply about others, while at the same time she buries herself in busy-ness whenever close friends of hers are in trouble.

I got a good look at my potential future, visiting my parents. And I also got a good look at how things could have turned out for me, had I taken the same path as my siblings. My brother has done well for himself and his family, yet he’s living in a place that is hostile to his deepest beliefs and convictions. My sister-in-law once had big dreams, though over the years she’s limited herself more and more and more, till the thing that means most to her is having a part-time job that lets her take care of house chores. Their kids are doing great, which is gratifying, so there is a whole lot of good that’s come out of their choices. And yet, I wouldn’t trade my life for theirs for any amount of money. Parents make sacrifices for their kids all the time, and I have no argument with that. I do have a problem, though, with completely throwing big parts of yourself and your hopes and dreams and internal convictions out the window, to fit in and be safe.

Of course, people do that all the time. That’s for them to live with. It’s not for me to judge. For myself, though… I choose something different.

And coming back from the trip, I look around and realize that the life I have really does fit me exactly. I’m doing great. I have my limits and my challenges, but I can adjust to overcome them. I have been in a lot of pain for the past few weeks — not headaches, but a lot of back and leg pain — and my mind has been foggy and dull. I have forgotten some things I really needed to remember at work. Other people needed me to remember them, too.

I made a couple of really unfortunate choices at work, the day I was back, and I feel like I’ve been scrambling to catch up, ever since. I mean, one of the mistakes I made was the exact opposite of what someone had asked me to do — and entrusted me with — just 15 minutes before. And I dropped the ball. I was supposed to “buddy up” with someone new at work, and have lunch with them. Their usual buddy had a lunchtime meeting they had to attend at their desk, so they couldn’t do lunch. I managed to keep it together and get the new person down to the caf, then for some reason I spaced out and went to sit in a different area — completely forgot about them and my mission to buddy up… I basically left them to fend for themself among virtual strangers, which would have been a crappy thing to do if I’d intended to do it.

Of course, I didn’t. But that’s what happened. Instead of staying down in the caf, I went back to my desk… across from the person who had asked me to sit in for them. And I didn’t remember what I was supposed to be doing until after I sat down at my desk and realized that I was sitting across from the person who’d asked me to fill in for them.

So, I was feeling pretty stupid at that point. Talk about dull and clunky. And then I spent the rest of the day trying to figure out how to make up for it. I still am. I can’t very well go to the person and say, “Dude, I totally forgot all about you,” because how would that make them feel? Un-memorable, that’s how. And I can’t explain that I have short-term memory issues, especially when I’m exhausted, because that’s going to hurt my prospects at work.

All I can do now, is adapt and go out of my way to be helpful as best I can, and hope that I can develop a decent working relationship with this new person — despite that first faltering interaction.

Realizing how dim and dull I have been, I’ve been turning to my lists again for help, and it’s really doing me some good. I’m actually getting things done, that have escaped me for weeks. I finally got my COBRA insurance papers together and sent them off with the check, so my coverage is re-instated. I had read the paperwork when I first got it, but I missed the part about how you’re not actually covered by ANY insurance, between the time when your coverage ends, and it’s re-instated retroactively. So, the doctors visits that have been happening may not be covered by my COBRA. And I may need to pay out of pocket for them.

That really upset me, and I was thrown off all day yesterday. I also got anxious about the possibility of some medical emergency happening. I expect my coverage to be reinstated next week, and the idea that something serious could happen between now and then was weighing heavy on me.

Then I decided to just roll with it and let things happen as they will. I’ve got no credit card debt, and if I need to set up payment plans, I’ll do that. I’ll figure something out. I’m making enough money now to hold me in good stead.

I also need to sort out some other medical coverage stuff that is so confusing to me, I don’t even know where to start. I have been sweating it out, thinking I’m never going to figure any of it out, and it’s kept me from stepping up and doing something about it. The thing is, I’m not alone in figuring it out — at least, I don’t have to be. There are toll-free numbers for people to call, and I am planning to do that. I just need someone to walk me through the details and explain them to me. It could be that I incur a penalty because the timing of leaving my job and terminating my regular coverage and getting signed up for new plans is all screwed up, but at this point, I’m not sure I care. I’ll just make the money I need, to get by.

Or I’ll adjust in some other way.

The idea of having someone to talk to about this, is really helping me a lot. I’m not alone. I don’t need to figure it out by myself. Nobody is going to know how impaired I am, if I’m asking for clarification. I’m sure even the most brilliant people need help with all this insurance complexity. The whole system is convoluted and filled with veritable land mines, and it’s been that way for a long, long time. I just have to use my head and keep moving — and use the help that’s offered.

That being said, I need to set up time for my spouse to give permission for me to talk to the insurance folks on their behalf. I have to figure things out for both of us, and since my spouse is a few years older than me, issues like Social Security and Medicare are on the horizon. Not sure how that happened so quickly, but there it is. It’s hugely confusing for me, but I have to handle it, because my spouse cannot even begin to approach all the details — they’ve got even more impairments than I do, and their biggest one is panic-anxiety, which pretty much keeps them hostage and immobilized in a self-perpetuating prison.

So, I need to get on the horn with the SSA and other folks to talk about what’s to come on down the line, eventually. There are fees and penalties or some-such, if we do things wrong, and I think we already have stepped over the line. Oh, well. I guess I’ll pay the fees and penalties, then. The good news is (I think), my spouse has been so marginal for so long, not paying into Social Security, but 10 years out of their entire “career”, so that if the government takes a percentage of their SSI payments, it’s going to be close to nil. There are some benefits to living on the margins, I suppose.

Anyway, it’s all a grand adventure, and even if I am dull and foggy and in pain and out of sorts, I have tools I can use to get me by — making lists, and also getting someone on the phone to help me understand everything. There’s also the Web… there’s that.

Speaking of which, I need to sign off now and go check out some websites, in hopes of making sense of things. I suspect I’m going to be a bit screwed by the system, because I don’t know the ins and outs and I don’t have a lot of people in my life who are in the same situation who can help me avoid penalties and fines and all that. But I’ll adapt. At least I have my life, I have my independence, and my life is pretty much how I want it to be.

It’s all good. It really is.

Onward.