I’ve got my hands full, for the next 24 hours. I’m coming down to the wire with shopping and cooking and preparation for Christmas Day tomorrow. My spouse and I typically take it easy on Christmas, when we’re at home.
And this year, like last year — and several other years before that — we’re at home. Just the two of us.
No two days of driving, in both directions.
No packed houses with lots of people vying for our attention.
No navigating family dynamics and going the extra mile to let everybody just be who and what they are.
None of that. Just peace. Heavenly peace.
And to make sure it stays that way, I’m thinking ahead to the coming week, getting my schedule clear in my head so I don’t have to deal with a bunch of surprises, on down the line. I’m not very fond of surprises. I’ve got enough on my plate that I already know about, and I haven’t been sleeping well, lately, so that makes me more irritable and hard to deal with. I need to take better care of myself wherever I can, for the sake of everyone around me.
And that means streamlining and planning ahead wherever possible.
What do I need to do, this coming week? We’ve got some appointments we have to attend. I also have some car repair work I need to schedule. And I’ve got a handful of things I’d like to sort out around the house, too. Like do much-needed organizing of the files on my computer and the various “thumb” drives I have. I’ve got a lot of USB drives with a lot of stuff on them, and it’s time I consolidated them. Also, cleaning up, organizing the various rooms in the house. Moving furniture we don’t use to the basement, making room for the things we do use. Making space to move and breathe and live. And unwind.
Unwinding is good. I’ve been pretty tightly wound for quite some time. Unwinding will be a welcome change.
Before we know it, it’ll be 2018. Christmas almost seems like a blip on the screen, but of course it’s not. It’s a pretty big deal for my spouse, and I need to do my part. I’ve never been much for holidays, birthdays, special events — they all seem like just another day to me. But being part of something bigger than me — which also really matters to my spouse — is more important than indulging my Bah-Humbug spirit of the season. Just gotta put my own sentiments aside and get into it.
It’s not forever. And it won’t kill me to just go with it.
So, go with it, I shall.
And then… into the New Year with a positive frame of mind.
Merry Christmas, everyone. Happy Christmas. Frohe Weinachten. Feliz Navidad. And many more wishes in languages I do not know.
I hope it is a good day for you, and that you find peace and a measure of happiness before the day is through.
Christmas is a tricky time for a lot of people, including those who have some sort of limitation or particular need. One of the most poignant things about it, is actually the spirit of it, which so often gets lost in the shuffle. The original story (whether you’re a believer or not) is about people under duress making the best of a bad situation.
A whole country is uprooted by a tyrant (of sorts) and hauled away from their homes, so they can be taxed in the town of their family’s origin. One couple in the midst is a man and his very pregnant wife, who have to make the trek, regardless of her condition. Nazareth, where Joseph and Mary were from, was a kind of crappy area — economically depressed and not the sort of place “nice” people lived. So, Joseph probably wasn’t all that well-off to begin with, and dragging him away from his work as a tradesman to tax him, was just heaping one injury on another. It wasn’t like he made that much money, to begin with — but he gets taxed and he loses however many days or weeks of work. That’s rough.
And when Mary and Joseph get where they’re going, there’s literally no room for them in habitable lodging. So, they end up in a stable. In a strange city. Anyone who’s spent time around farm animals, knows this is about the last place you want to deliver a baby, but apparently that’s where it happened, and the child ended up laid in a feeding trough for his first night on earth.
Now, I’m not a hugely religious person, these days. Once upon a time, I was, though. I was raised in an evangelical, fundamentalist Christian household and I was “raised in the church.” It was my primary social network. My parents are still very involved in their church community, as are some of my siblings. I’ve always been pretty spiritual (even after I stopped believing the way my family did), and that endured through the years with a strong tendency to feelings of mysticism and spiritual connection with something higher.
My TBI in 2004, however, pretty much erased my religious feeling. Suddenly, it just wasn’t there, anymore, and I could not for the life of me figure out why anyone would have any interest in religion or spirituality. My spouse has always been very spiritual, and I can assure you, the times when I did not pray along with them were not the best moments in our marriage. I rolled my eyes and tapped my foot impatiently, waiting for them to finish, which really hurt their feelings.
My lack of spiritual feeling has persisted somewhat, but in the past few years, that’s started to change. Just goes to show you how the brain continues to alter and develop along different lines, over time. And I’ve gotten some of my spiritual feeling back — though I have probably gotten back more willingness to play along so I don’t hurt others’ feelings, than I’ve gotten back my old religious fervor.
But religious belief aside, the story behind Christmas is one that really resonates with a lot of people. It’s all about being forced into a less-than-ideal situation, and making do. It’s about modest, humble circumstances setting the stage for later greatness. And to me it’s about dealing up-front with the indignities of life and recognizing that beneath the limitations of your circumstances, there lies a potential for rising above it all. The indignities of not having enough, of being pushed aside, being just another face in the crowd, aren’t the whole truth about who we are and what we’re capable of. We may not all be divine (though some believe we are), but we can surely rise above our circumstances, like that little baby who spent his first night in a feed trough.
Making do… that’s pretty much what this season has been about for me. I have been working overtime for months, keeping my emotions from getting the best of me, and that’s taken a toll on my system. It takes a lot of energy to keep yourself on an even keel, when everything around you feels like it’s going nuts, and I have really felt it, this holiday season. Not having a doctor I trust and can rely on… that’s a subtle source of pressure. Being told my neuropsych is retiring in the spring… that’s more pressure. Being threatened with a layoff in the immediate term… that’s a direct and intense source of pressure. Having everyone around me at work be in rotten spirits because of the impending job changes… that’s an indirect but distracting source of pressure. Expensive car repairs and drama while traveling over Thanksgiving wasn’t easy. Being sick has been a disruptive challenge. And having my spouse being sick, too — and increasingly disabled — has been hard to get my head around.
Most of this I’ve had to deal with on my own, but I don’t mind. It’s actually easier for me to handle things alone, so I don’t have to verbalize with people. Talking out loud is yet another source of pressure, and I’ve been doing it pretty poorly, this holiday season. Seriously — I haven’t been able to describe things I’m looking for, and people in stores don’t take kindly to it. It’s been kind of funny, actually, when I’ve tried to describe caulk… or a little bracelet with colorful beads… and failed to do so.
I’ve kept it together, more or less, but it’s taken a toll.
The energy that I’ve been using to keep myself on an even keel had to come from somewhere, and my thought processing has not been the sharpest. I’ve been forgetful, scattered, emotional, foggy, and that all makes it even worse. It’s really been a challenge to do the kinds of things that used to come easy to me, and that’s hard to take. I can’t believe I have to deal with all of this — and take things so much more slowly, plan so much more carefully, and resort to what feel like remedial measures.
And through it all… I am so tired.
But then I come back to the Christmas story. And I can relate. I have a pretty good idea how it must feel to be uprooted from your home and dragged somewhere else to pay someone money that you probably don’t have. I don’t know how it feels to have a baby on the way, but I know about long journeys and having more asked of you than you feel you can spare. And I know the feeling of despair and overwhelm, when everything around you seems to conspire against you, and you can’t catch a break.
I also know what it’s like to make do with what little I have. This year, we don’t have a tree indoors, because the artificial tree we’ve had for years has gotten old and smells terrible. It’s musty and dusty and the materials are starting to degrade and off-gas, so after a couple of tries, we ended up just putting the tree out on the back porch and arranging our presents on a beautiful golden cloth we have, surrounded by colored lights.
It’s modest, but it’s beautiful, and later I’ll roast the turkey for our Christmas dinner. We’ll have a quiet day, today, and just enjoy the quiet in our own merry way.
We’re better off now than we’ve been in quite some time, and for that I am grateful. We have our issues, but we also have our ways of dealing with them. It’s Christmas. Time to focus less on what we don’t have, and more on what we do.
I pretty much took the weekend off. I had been planning to make some progress on one of my projects, but it turned out to be a better use of time to just relax — and let my mind go where it will.
All week long, I have to keep myself on point. And that gets old. By Saturday morning, I know better than to continue with the compulsiveness of the past five days.
Funny how, on Fridays, I am always so convinced that the weekend is going to be filled with productivity… as soon as I get away from the time suck of my day job. But in fact, there are two things that play into that internal dynamic, which both send the wrong signals.
First, I am tired. And when I am tired, my mind gets rigid. I get locked into very narrow ways of thinking, and I lose sight of anything else.
Second, by Friday, I have forgotten what freedom feels like. My routine has taken over and is propelling me forward. I’m no longer thinking clearly. I’m no longer bothering to think, period. Rote repetition has taken over — it kicks in around Wednesday night — and it feels like salvation to me, because my brain is no longer working the way I want it to.
The last two days of each week find me “in a groove”, which is to say, I’ve abandoned creative, inventive thought, and I’m just chugging and plugging along in my rut. Something tells me that I’m quite happy there, but if truth be told, I’m exhausted and I have since stopped really processing much of anything. My reaction times are slowed. And I’m not thinking clearly enough to realize just how big of a hit it’s taking.
I’m also so low on energy, that I’m not paying attention to how this is making me feel. It’s incredibly upsetting to me, that my processing speed is slower than I’d like it to be. It’s noticeably slower than it used to feel, and it’s so frustrating to be forever two split-second “beats” behind everyone else. It’s like I’m that kid running behind the rest of the gang, calling, “Hey! Wait for me!”
And it’s crushing. Because it never felt like this before.
Though, when I think about it, it never felt like this before I started my neuropsych rehab, because I never really engaged with others directly, like I do now. It could be that I’ve been out of synch with everyone and everything for most of my TBI-riddled life, but it only really started to have an impact when I started engaging with the rest of the world. For so, so long, I kept to myself and simply played along. I chose friends and partners who were really good at interacting with the outside world — extroverts extraordinaire — who could do the social work for both of us.
But now that I’m getting better about engaging with the rest of the world, it feels terrible. Because I really sense just how out of synch I am. Conversations are tough. They take a lot of work. I can do it, but it’s work. And since I’m involved with people every day of the workweek, by Friday, I am Wiped Out. Full stop.
Which makes my Friday plans to be ultra-productive over the weekend quite amusing.
But that’s not what I started out wanting to write about, today.
It’s Monday. Supposedly we’re going to get an announcement about layoffs in our division this week. I’m told that in the past, if people were getting laid off on Friday, they were told on Monday. So, if that is happening again, there will be some very unhappy people at work today.
I really don’t know where I fit in all of this. I know that I’m much more technical than anyone in my group (my boss told me so on Friday, as though feeding me a little spoonful of hope), and I have a wide variety of skills that make me versatile and easy to plug into different situations. I’m resilient and resourceful, and I get the job done.
But that might not mean anything.
You just never know.
The thing is, my head has been going crazy, coming up with all sorts of different scenarios. I’ve updated my resume and my LinkedIn status is current. I’ve been going through all the different scenarios in my head, figuring out what I’ll do, so I’m prepared. And I really do feel prepared. The thing is, nobody knows how things will shake out, just yet, and like most people, my thinking can be very “creative” in the face of uncertainty.
It’s easy to make myself crazy. It’s easy to feel nuts, when there’s not enough information. And it’s so, so easy to fill in the blanks with past experiences, when the present situation is really nothing like the past.
It’s all part of our minds work, of course. We desperately need to feel we can predict things. Predictions make us feel secure, like we know what’s going on — when in fact, we know nothing of the kind. Astrology makes us feel more confident. Expert opinions and pontifications make us feel like we’re “in the know”. Basically, anybody who offers us a plausible prediction for what will be, is our friend. Even if those predictions are dire and wretched, they still make us feel safer — perhaps even safer than people who predict good things.
And when others don’t provide predictions and indicators, we make up our own. We’re really, really good at that. We’re experts at making ourselves mentally ill about it, too.
So, all these mental gymnastics have been keeping me busy for the past four days. Which gets tiring.
But at least I got rest over the weekend, which did wonders for my head. Just taking time out, getting things off my plate, finishing up chores early, so I wasn’t rushed late in the day, yesterday… an napping. Sleeping.Getting some rest. That’s exactly what I needed.
Yesterday, when I tried to work on my computer, it was much slower than I expected it to be. It seemed really sluggish and took forever to respond (“forever” meaning a second longer than I’m accustomed to). And it kept having to stop to download patches and updates from the anti-virus program I have.
It was so frustrating. Its processing speed was so much slower than I wanted it to be, and no matter what I did, it couldn’t seem to go faster.
How frustrating! It’s bad enough that I have to deal with my own brain-injured system, which is so much slower to respond than I want it to be. It’s bad enough that I myself have to keep stopping to check in with myself and “download” more information about the world around me, so I can get my act together to take the next step. It’s bad enough that I’m so sensitive to fatigue and excitement and, well, life, and that I can’t seem to participate at the level I want to, except occasionally.
But my computer? Now I can’t depend on it, either?
I try to be patient, I try to extend my laptop the same consideration I extend to myself, but it’s pretty frustrating. I’m very careful about what I download and install on my machine, and I do cleanup pretty frequently, removing files and then fixing the disk, compressing, and defragging. All in all, I’ve kept this machine going a lot longer than most people do. I’m very frugal with my resources, and I take care of what I have.
So, when nature takes its course and things start to break down a bit, here and there, and I start to think about spending extra money and time on new (to me) equipment, I get nervous. Because I remember all too vividly what it’s like to be in hock, to be so far in debt that my whole live is an exercise in indentured servitude.
I really don’t want to have to spend any more money than I have to.
But it’s not just the money that gets me. It’s the reminder of how things are sooooo sloooooowwww for me, sometimes. I tried to get some more work done last night, after I made myself some dinner, but I couldn’t get myself in gear to make any progress. It’s just as well. I needed to take a break, do some reading, and let everything just kind of sink in. Plus, the book I’m reading is pretty interesting, and it really held my attention all night, till I couldn’t concentrate anymore. But still. I want to be able to do the things I used to be able to.
Once upon a time, I could spend every waking hour of Saturdays and Sundays working on my research projects, and come away with some really great insights. Once upon a time, I could study for hours, learning new computer skills, and be more proficient on Monday morning than I was on Friday afternoon. Now, I consider myself lucky to get to Monday without being more exhausted than I was Friday afternoon.
I had kind of expected things to get better for me, as my recovery progresses. Things are getting better in some respects:
I can read again
I can hold conversations with people
I can keep from blowing up over little things that don’t matter
I can recognize when I’m going off the rails and take steps to get myself back in line
But the fatigue and the confusion and the sense of “WTF?!” that has me always wondering, What Just Happened?… that hasn’t really subsided. If anything, it’s worse. Perhaps because I’m more aware of it. Being able to recognize when I’m going off the rails, means I’m more aware of my “deviations” from what I consider the norm for myself. And I have to tell you, it is truly bizarre, to be living life inside my experience, which doesn’t look, sound, or feel anything like what I expect it to.
The one constant through my recovery has been my laptop. My computer, which is now struggling to keep up. Having that go on the fritz is making me all the more aware of my human frailty and vulnerability, and I don’t care for this experience.
I don’t care for it at all.
But here it is. There’s no escaping it, and I suppose the best I can do is just acclimate to the “new me” and get over it. Quit bitching and complaining, suck it up, and just deal with it. People go through losses all the time — friends, family, marriages, homes, jobs, mental and physical abilities, body parts, even their sanity. I’m not unique in this respect. I’ve lost touch with the person I feel like I am, and I miss them. I miss feeling like I know who I am and where I fit. I miss feeling a sense of orientation to life around me. I miss feeling like I know what will happen in my head next. I miss it. Sometimes it’s there, but then when I expect it to be there, it’s nowhere to be found. And I’m adrift again, making it up as I go, doing my best under the circumstances, just happy to be alive and healthy.
I do feel a little foolish, being so bent out of shape about losing my sense of self, but there it is. A lot of us go through it, especially brain-injured folks, but I don’t know about anyone else. Not really. And for me it feels so intense today. Part of the problem was that I really isolated yesterday at home. I didn’t get out much, and although I talked to my parents a couple of times, I didn’t have any live interactions with people. If anything, I avoided them. Because I was tired, and I just wanted to be alone to think.
Someone recently commented here that socialization is a huge piece of TBI recovery, and I totally agree. I didn’t think it was so, but it is. Socializing both challenges us and rewards us. It gives us a chance to interact and acquire new skills. It forces us to think on our feet and make an effort. But when you’re struggling with TBI, socializing can seem like too big a task to undertake.
I know it did for me, yesterday. Everything just felt like such a chore, such a drain. I didn’t want to go out, I didn’t want to talk to anyone, I didn’t want to have anything to do with anyone. I was tired. I was feeling overwhelmed. I was not up for the added work that interacting with others brings.
I just wanted my computer to keep me company.
But it’s brain-damaged, and it was struggling almost as much as me, yesterday. So, there we were, the two of us, muddling through.
Today looks like another beautiful day, and I’ll have to get out for a walk. My water softener seems to be on the fritz, so I’ve re-cycled it, and I’ll go out and get more potassium chloride later. Potassium chloride is better for me than sodium chloride, because the treated water is a little harder, it doesn’t get “soapy” and slick, and it also doesn’t create that rotten egg smell that you can get from sodium chloride. It costs a few extra dollars per bag, but so what? Over the long term it’s more expensive, but it’s worth it to me.
I’ll do the few things I need to do today, make sure I rest up, and really take it easy. I’m still wiped out from last weekend. I’m not sure when I’m going to catch up on my sleep and feel truly rested again. But at least I can enjoy myself at some of the things I do. And I’m already looking forward to that nap.
I’m doing my dual n-back training again this morning. It’s pretty awesome. I’ve already noticed an improvement in my memory and my reaction time, after just a few days of practicing.
If you suffer from TBI and have access to a computer, be it at your public library or at a friend’s house – it can even be your smart phone, if you have one – there’s no excuse not to do this. There are many, many free versions of this available. My favorite is Brain Workshop at http://brainworkshop.sourceforge.net/. It’s for Windows and Mac (and Linux, if you’re into it), and it works great – very customizable.
There really is no reason to not do this training. Especially if you are on disability and you are unable to work or do other things with yourself. That’s really the optimal situation for you, because this training will help you with the core issues from TBI — processing speed, reaction time, short-term working memory and recall — and the thing you need most to do this, is time.
I almost wish I were on disability, so I could do n-back training as much as I like.
Now, obviously, I don’t want to overdo it. The brain needs to have rest and also good nutrition and oxygenation to really make the most of this training. So, it’s good that I actually cannot spend a lot of time doing n-back all day. I tend to perseverate on things that interest me, and this fascinates me. So, the chances of me plopping down in front of computer all day and doing this training are pretty high.
That would be counter-productive, and my scores would likely decrease, which would frustrate me. I need to allow myself rest. And I also need to allow myself room to just play. I tend to make everything I do into a “career” and go over the top, trying to elevate it to an art form. That’s fine, for things I’m making a living doing, but I need some time to play and relax and just have fun with things, too.
I have been playing with the combinations of things to test. I started out with a triple 1-back, where I try to remember the position, color, and audio for the last element that appeared on the screen. I put myself at 4 second intervals — the computer shows me a square in a certain color at a certain position and says a certain letter… then it shows me another one that may be the same or different, and I have to remember if it was similar in any way to the last one.
To be honest, the hardest part of the training is remembering which key to press for each aspect — A is for position, F is for color, L is for audio. One of the things that slows me down, is checking to see which key I need to press. Bums me out, frankly. I feel like an idiot that I can’t remember which goes with which, but oh well. I guess it helps me speed up my processing and my reaction time, by forcing me to react within a set period of time AND have to check the keys for each piece on the screen.
I started out at 4 second intervals, till I made it to 100% accuracy. Then I speeded it up to 3.5 seconds, and made it to 100% accuracy. At 3 seconds, I’m faltering — I went from 100% to 93% to 84% in a few tries. It could be due to my brain just getting tired. So, I’m going to stop and try again tomorrow — triple 1-back with position (A key), color (F key), and audio (L key), at 3 second intervals… and see if I can’t speed things up even more.
I like working with the 1-back, because it’s something I have mastered at certain levels, and I can always go back to it. I got to 100% accuracy with dual (position – A key, and audio – L key) 2-back at 4 second intervals the other day, and I want to push myself to hold more pieces of information in my brain at any given point in time. More pieces of information… at faster speeds.
As I said, the biggest challenge for me is memorizing which key to press for each aspect. That is very frustrating, so I need to work on memorizing that. I can spend my time commuting, conditioning myself to remember those key positions. That’s the thing that slows me down… Argh!
I’ve been doing some reading online about benefits that n-back training is supposed to provide. There are individuals who say that since they started doing the training, they have been able to learn much better. Others say it has had no effect on them. One of the things that irritates me, is how so many people write about it “improving intelligence”. The whole concept of “intelligence” is broad and wide and way too general for my taste. There are specific things this kind of training can help you with. These may make you seem “more intelligent” to others, but fundamentally, it’s really about improving processing speed, reaction time, short-term working memory, and making selective choices. Improving those aspects in different combinations, will help anyone — TBI or not — navigate life more smoothly, regardless of how well they perform on an IQ test.
For myself, the change in my own memory and response time has been noticeable, even in a short period of time. I’m going to to keep on with this, because it is helping me in specific ways that have been a bane of my existence for as long as I can remember.
Those things are:
feeling slow, like I’m not really keeping up
struggling to follow conversations and instructions
faking my way through interpersonal interactions, because if I slow people down to repeat what they just said and process what they just told me, it disrupts the flow of the conversation — it just hijacks it
distractions interrupting my concentration
“losing” pieces of information in the course of conversations
not reacting quickly enough to handle social situations, discussions, arguments, debates… and so on
These have been real struggles for me — for many, many years. And they have held me back in life. That doesn’t have to be true anymore. I now have something I can do about it.
There are many ways to train your brain to handle these things. When you’re a kid, there are clubs at school, like debate club or chess club or sports or other activities. I was active in sports, and I joined the school newspaper so I could do some writing, but I secretly struggled with the social and task-oriented activities (like writing articles for the paper). And the activities which centered around games or debate situations… they were just torture for me, because I wasn’t handling them well, and I could never articulate my situation well enough to reach out for help. Even if I had been able to articulate my situation, people were not in a position to help me. It was over 30 years ago, and nobody knew anything about TBI where I lived.
I have recently joined a public speaking group at my workplace, so I can practice being put on-the-spot to talk about a topic I didn’t come up with. That has been helping, too. But there’s nothing like being able to sit down in the quiet and comfort of my own room at home, and practice n-back training, watching my scores improve.
It has made me more confident, it has noticeably improved my response time in certain situations, it’s improving my memory in ways I can already notice, and it’s providing me a new challenge and a new hope in my life that has been missing. I’m going to keep doing this on a regular basis, as well as get plenty of rest and good nutrition to keep myself “beefed up” and progressing. Considering all the different combinations you can do — up to four different pieces that change, and as many “back” as you can ask for, all at faster or slower speeds, there’s an almost infinite number of combinations I can use to train my brain.
I’ve been doing some Dual N-Back training – where you watch and listen to a series of shapes and sounds appearing in sequence on a 3×3 grid, and then you try to identify which ones appeared 1 or 2 or 3 times back. I downloaded the free program from http://brainworkshop.sourceforge.net and I’ve been practicing about 20 minutes a day.
I started out just barely able to do the 1-back (where you have to identify the location and sounds of what just appeared before), then I progressed to the 2-back, where you skip one and then try to remember what came the time-before-last.
Google “dual n-back training” for a better explanation.
Anyway, to make it quick (because supper is on the stove and the timer is beeping), today I got back wrong change from a cashier, and I actually remembered what bill I had given her – a $10, not the $5 she gave me change for.
Holy crap. I haven’t remembered that sort of thing in a long, long time. I am usually bumfuzzled and unsure and slow to react, so I don’t even ask. Heaven only knows how much money I’ve lost over the years, because of just not being fast enough to speak up.
I want to run ahead at top speed, but I can’t always do that. Sometimes I need to be slow and methodical. Once I get into that groove, I’m okay. It’s getting into that groove that’s the killer.
I’m nearly done with one part of my project, where I am summarizing details that about 18 people have sent me for one phase of this project. One Phase– God, at this rate, if the other four phases are anywhere as complicated as this, I’m toast. What was I thinking, taking on a project management role, as well as doing R&D? Sucker for punishment, that’s what I am.
At the same time, I have to say that I have a perspective and a passion for this project that has been a real driver behind it. Others don’t quite get the significance and the potential of it, so to keep it moving forward, I’m taking on the coordination work.
Right about now, I’m feeling overwhelmed and beside myself. So, it’s time to take a break and remember the magic. I can finish the remaining three summaries later this afternoon, after a nap and some errands I need to run.
The wild thing about this task — which is taking me 3 days, instead of the one afternoon I had expected — is that I’m realizing just how heavily it’s been weighing on my mind. I’ve been so paranoid about it, so afraid of making a mistake and making the wrong decisions, that I’ve put it off and put it off and put it off… till I almost forgot that it needed to be done. That happens, if I put things off long enough. I actually forget to do them.
This, however, cannot be forgotten. It must be done.
And now that I am in the swing of things and am nearing the end — I have taken care of 15 different summaries, and only 3 are left — I am (finally) starting to feel like I know what’s going on. With me, I can start, continue, and complete complex tasks without ever really understanding what it is I’m doing. I do a pretty good job, too, which is weird. I do it without really getting the big picture or having a 360-degree understanding of what I’m doing — and why. And then after I’m done, then it sinks in. I’ve done things this way for as long as I can remember, because my conscious processing speeds just don’t keep up with everything around me. So, if I wait till I understand everything 100%, nothing gets done.
But now, I’m actually getting the gist of what I’m doing before I’m completely done, and it’s good.
The other thing that’s good, is that getting this done is freeing up my head to focus on other things. I’ve been noticing more and more lately how things I put off, that are in the back of my mind, really take a big chunk out of my processing. I only have so much to think with — I’m definitely limited in that respect. So, I can’t afford to let to-do items just languish on my list.
That’s becoming more and more clear each and every day.
So, that being said, I’m going to make myself some lunch and get on with my errands, so I can come back later today with a cleared mind, and finish this seemingly endless job. The end is in sight… and the light at the end of the tunnel is not an oncoming train 🙂
I’ve just “re-discovered” Give Back, Inc., the organization/group that helps traumatic brain injury survivors get their lives back with self-therapy.
Their mission says:
GiveBack, Inc. is a recovery group for traumatic brain injury (TBI). Its purpose is not to help survivors to accept new lives that offer them limited options, but rather to help recoverers to deal with their deficits, improve their functioning, become active, and regain self-control of their lives.
I originally encountered them as Give Back Orlando, but the website has since disappeared, and it seems they’ve moved their operations to LA, as well as online. There is a Traumatic Brain Injury Support Group online that features regular postings from Dr. Larry Schutz, the founding director of this great organization.
I’ve been reading some of the articles about TBI and recovery and the different systems available to people. What I really respect about what I see, is that it’s based on many years of experience — both good and bad — and there’s still a perspective and a commitment to rehab and recovery, despite all the roadblocks in the way.
It’s safe to say that I would not be nearly as well-off as I am today, had I not come across Give Back. There was just the right amount of information for me, about just the right subjects, and I had room to move and develop my own self-therapy program based largely on what they outlined and suggested. And the changes to their suggested approach which I made to the recovery program I’ve been on didn’t negate the good their approaches offered. Obviously, everyone is different, and some of the suggestions just sounded hair-brained to me. But overall, the advice was sound, and I was under no obligation to do things exactly the way they said I should.
I’m really glad I came back to Give Back. Going along in my everyday life, it’s easy to forget about the things I need to do, to stay functional. And with the successes I’ve had, it’s easy (and tempting) to dismiss my difficulties and downplay them, thinking, “Well, I’m glad that’s over!”
But it’s not over. Brain injury is never over. The attention issues, the short-term memory issues, the fatigue and physical issues, as well as the processing speed issues may be mitigated by my coping mechanisms and compensatory techniques, but they aren’t going away. And if I don’t stay vigilant with them, they can rear their ugly heads and make my life a lot more “interesting” than need be.
The fact of the matter is, I have developed a lot of ways to deal with my issues. But if I don’t use them, I can get into trouble real quick.
So, I need to keep it green. I need to remember how close to the edge I was, when I first embarked on my recovery. I also need to remember that there ARE areas where I still have issues, and while my coping mechanisms may be great in most cases, they are not always second-nature, and I really have to work at them. I have to remember to do them.
And I have to keep in mind that when it comes to TBI, I may be a whole lot more functional now than I was three years ago, but I can easily go back to being non-functional with almost no effort at all. All I need to do is stop interacting with people when they talk to me, tell myself that I understand everything I think I do and not double-check, never write anything down, expect to keep everything in my head, and eat crappy food, drink too much coffee and soda, and stay up till all hours snacking and surfing the channels. I could also quit exercising each morning and stop paying attention to what’s going on around me. That’s a great way to go back to the way things were.
But if I keep my wits about me, stay mindful and pay attention to what’s going on, eat right and exercise each day, and I interact with the world and ask plenty of questions so I’m sure that I’m clear (even if I do feel like it makes me look stupid), I can stay on track. I just need to remember to do it.
And that’s where Give Back helps. Not only because of the forums they have there and the self-therapy materials they offer, but also because of the articles by Larry Schutz (I’ve been a fan of his work for some time, and that hasn’t changed). It’s so important for me to remind myself of where I come from, what I’m dealing with, and where I can end up, if I’m not careful.
I may move past the basic problems, and I may have my coping mechanisms in place, but if I don’t stay vigilant and keep up the level of effort required, I could end up like so many other TBI survivors — doing well initially, then slipping into long-term disability that I can never seem to shake loose.