The Brain Injury Association of America has a number of state offices throughout the USA. The local chapters offer personal assistance and guidance for people seeking help dealing with their (or a loved one’s) brain injury. My local chapter helped me immensely. I probably wouldn’t be here and doing as well as I am, without their critical assistance early on in my search for help.
Follow the link above to view the state office pages.
The TBI Survivors Network is an online community dedicated to helping TBI survivors connect and cope. There are forums, blogs, videos, etc.
Give Back LA is another online community — “a recovery group for traumatic brain injury (TBI). Its purpose is not to help survivors to accept new lives that offer them limited options, but rather to help recoverers to deal with their deficits, improve their functioning, become active, and regain self-control of their lives.” I have found their information to be priceless, especially their information about self-therapy.
Brain Injury Radio has online broadcasts for, by, and about brain injury survivors.
LearnNet from the Brain Injury Association of New York State has great information in small pieces. Officially, it’s “A Resource for Teachers, Clinicians, Parents, and Students” but I find it very useful for my own understanding. Especially since I experienced a number of TBIs as a kid — it’s interesting to get some perspective on what I went through, personally, all these years later.
6 thoughts on “Resources”
I have had a mri of the brain, i was told that I have spots on my brain but it does not look like cancer.. The question is- I have been phyiscally abused from significant others by being hit in the head alot.. Would that cause me to have the spots on my brain due to such trauma? and would they ever heal?
The key element of Physical rehabilitation is intensive active exercise practice. Therefore the patient has to stay motivated in order to do the intensive exercise practice. This is the reason why competitive and recreational sports are good tools for rehabilitation. The key to Physical rehabilitation is to return the patients performance of everyday functional and vocational tasks to their pre injury level. Sport provides an ideal opportunity to do repetive task practice.
If however the patient does not have the ability to do repetive task practice then active exercises can take the form of intensive isolated exercise practice. In other words doing exercises within or slightly harder than the patients movement ability. Isolated intensive exercise practice is particular important for fine motor hand rehabilitation.
The HandTutor is an innovative hand active exercise glove and software with biofeedback training which helps patients recovering from stroke improve hand movement.
The software is dedicated to rehabiliation and is easy to understand by both the patient and the therapist. This enables the exercises to be customized to the patients movement impairment so that they remain encouraged and motivated to continue intensive exercise practice. The HandTutor is used in hospitals and community hand therapy clinics as well as through tele rehabilitation. Examples of patients that are treated include Stroke, TBI, spinal cord injury CP, Orthopedic hand and arm surgery.
Thank you for sharing. I am a real believer in physical exercise (and mental exercise, too) for rehabilitation.
how does one get over concussion symptoms that are still evident two years after the event? What county city , state , or federal resources can help an individual with very limited resources?
First, you should realize it is not uncommon for concussion symptoms to persist. This is what has helped me: getting plenty of rest, eating right, exercising regularly (exercise is probably the most important piece), and having a good support network. For some people, the symptoms never completely go away — you just get used to them and/or you figure out how to live with it — like a bum leg or poor eyesight. It’s different for everyone, but exercising each day has been a “miracle cure” for me. It’s amazing.
For resources, there is the Brain Injury Association which offers free help. They are national. There are also support groups online — as well as live in-person support groups, depending where you are. Contact your local Brain Injury Association – they can probably tell you more about what is available in your area.