A good sturdy kick in the behind

Every now and then, I need a good strong boot in the butt. Not a gentle reminder, not a tender prompt, but a real impact that stings at the start, but ultimately turns out to be the lesson I needed — a lesson that I either “get” and live my life better in the aftermath… or if I don’t get it, I sink like a rock.

I have fortunately had the good sense to go back to reading the Give Back Orlando materials on Self-Therapy for Head Injury – Teaching Yourself to Prevent Head-Injured Moments. I had told my diagnostic neuropsych about the materials, and they said they thought it’s “good science” and is consistent with what both of us believe — that just because you’ve had a head injury does not mean you have to settle for a marginal life limited by your issues. There are things you can do to offset or compensate for or heal the issues you’ve got. A head injury does not have to be the end of the story.

And after I told my neuropsych about the material, it reminded me that I have not gone back to it lately, and I have not in fact read the whole way through the material. It was embarrassing to admit it, but I’m going to put that embarrassment to good use, and remedy the situation.

I have not been nearly enough focused on my recovery, of late. I have not made it a priority. And, in fact, after reading the section on priorities: CHAPTER TWENTY-SIX: SETTING MY PRIORITIES in the Advanced Section, I realized that I need to do something about this. I’ve still got a long way to go to make this somewhat leaky boat of my life seaworthy again. I have made tremendous progress, over the past years — especially since my fall in 2004 — and especially in the past 6-8 months. But I still have a long way to go, to keep the screwed-up automatic responses of my “alternative” brain from messing up my life.

I have a lifetime of bad habits that came out of injuries to address. I may not fix them all, and I may never even discover them all, but by God, I’m going to at least take a shot at doing the best I can to overcome them, turn my thinking around, and live the life I know I’m meant to live.

There is a lot at stake with me. Personally and professionally. I’ve started a new job, which is a gateway to better paying work that suits me better than the production-type work I’ve done for the past 20 years. I’ve become very good at following instructions from other people, and I excel at doing what I’m told. That’s come from a lifetime of hard work and deliberate refinement. My ability to follow explicit directions has been a reliable meal-ticket. It’s bought me a house and two cars and made me far more functional that someone with my history of head injury “should” be.

But now I need to bump it up a notch and see where else my abilities can take me. I have considerable capabilities, in addition to my limitations. I have a raft of strengths that are just sitting around waiting to be used, while my relative weaknesses play havoc with my daily life. I spend so much time managing the cognitive-behavioral challenges I have, that I rarely get/take the time to focus on building my strengths.

And I have languished.  For over 40 years, I’ve settled for less than I was capable of having/doing/being, because of the corrosive effects of those invisible challenges. What a shame and a waste. I have let my talents and abilities sit on the back burner, while I’ve put out fires flashing up all around me. I have not focused fully on developing my strong suits, because the weakling aspects of my person have monopolized my attention to the point of distraction, dissipation, and inertia.

Good grief.

But I really can’t spend any more time, right now, bemoaning that. The time I spent worrying about what’s gone before, is time I don’t have to spend on thinking about what’s yet to come. And I need to think about the future. I have issues, I know that. I have had difficulties in the past. I know that, all too well.

I have spent the past year and a half examining the parts of my life that have gotten totally hosed — specifically by TBI. The whole point of doing this, is not to feel bad about it, to beat myself up, and back away from life. The point of doing this, has been to identify the things that need to be fixed, and then come up with a way of fixing them.

Or compensating for them.

Or avoiding the stuff that just can’t be fixed.

Now I have tools and support to address the issues I know I have. And that’s what I’ll do.

So, what needs fixing? This morning, I’m focused on my long-time bad habit of not following through on what I promise to do. For a lot of different reasons, I tend to commit to things, and then I don’t complete the things I say I’ll do. I get sidetracked. Distracted. Confused. And I back away from the job, going off to do something else, instead of buckling down and doing what I said I would.

It’s one thing, if I do this with myself — I’ve done it all my life, with countless personal projects planned and started and then never completed. But I’ve also done it with people beyond the confines of my head. Ever since I was a kid, failure to complete was a huge issue with me. And it’s dogged me into my adulthood.

And now that pattern needs to change.

So, I’m changing it. Deliberately. Intentionally. With real resolve and commitment.

One of the things I’ve been looking at, is why I lose the fire. Why do I start things so enthusiastically, and then lose my enthusiasm? There are a number of reasons, but the main one seems to be that in the midst of all the details, I lose sight of the Big Picture. I lose track of what I’m doing and why I’m doing it. I forget the whole purpose behind it. I forget the reasons I got excited to begin with. I lose track of where the details fit in terms of the overall project. And I get lost.

Then I walk away. I lose sight of my Priorities, which inform the Big Picture of my life.

From the GBO Material:

Summary: Good decisions are made in accord with your personal priorities.

The decisions you regret making are the ones that conflict with your priorities.

The head injury makes it easy to overlook them. By bringing your priority list up to date and using it actively to guide your decisions, you can take better control of your life and make sure that the decisions are guided by your needs.

The Issue: Planning depends on having a clear sense of what’s important to you. You can’t make decisions about what you are going to do, or how you are going to spend your money, or which opportunities you are going to take and which you are going to let go, unless you know what your priorities are. Knowing priorities is something an adult normally does automatically, but it doesn’t work automatically after a head injury. After a head injury, too many decisions are impulsive. They are made to pursue something that is interesting at the time, but without thinking about how the higher priorities will be impacted. For example, survivors get mad at the boss and blow him off, losing the job. Only later do they realize how important the job was to them. If they had only thought about their priorities at the time, they might still have that job.

Yes, too many of my decisions are impulsive. I don’t hold myself firmly enough to a set plan of action. I make my notes and plan my activities, but then I get pulled off in all sorts of different directions by distractions and entertaining sidelines. I start out researching something necessary, then I get intrigued by an experiment I want to try, and I get sucked into that for hours. Eventually, I resurface and realize I’m so far behind, I’ll never get the important things done that needed to be done that day.

And I get down on myself, feel bad, beat myself up, tell myself, “You did it again…” and that takes a toll on what little self-confidence I started with. Slowly but surely, one small failure after another has chipped away at my self-confidence, undermining my belief that I can get things done. Bit by bit, I’ve allowed this to erode my sense of capability… it’s a wonder I ever start anything.

But I do start. I start again. Day after day, week after week, month after month, year after year. I start again. I take another shot. I don’t give up. For whatever reason. There is still a part of me that hopes, still a part of me that’s willing to try. I’m not sure why or how, but that’s not for me to question.

The missing piece is not the starting of things. It’s the continuing. It’s the completing. Tying up loose ends is the temperamental problem-child of my productivity repertoire.

Now, I’ve started again — this time with a new job. And this time I really don’t want to make the same mistakes I’ve made in other places. This time, I need to complete. I need to continue until I complete. I need to clearly and succinctly identify what needs to be done, and I need to do it. This is not optional. This is essential. It’s not up for discussion. I absolutely positively need to make sure I follow up on what I say I’m going to do it, and come hell or high water, by God, I have to get the job done.

That means controlling my impulses. That means mastering my distractions. That means keeping the Big Picture in mind and not losing sight of my promises. That means re-prioritizing my life — clarifying my priorities, to begin with. It means reminding myself daily of what I want, what I need, and what I have to do to get where I’m going.

I am by nature a very disciplined person. I have principles, and I have good intentions, and all I really want to do with my life is help others and reduce the quotient of human suffering in the world. The problem is not with me and my character. The problem is with how my brain works, and how it works against me.

That being said, I’m putting together my toolbox for dealing with all this … complexity

Again, from GBO:

The whole process of thinking about priorities has to be different after a head injury. Before, you probably automatically threw out unrealistic goals. Now you automatically accept unrealistic goals, and you can be realistic only by carefully looking at each goal and judging whether it will work or not. For example, a patient who was highly successful in going to college, getting top grades, and planning a career, was totally unsuccessful in setting goals for romantic relationships. He wanted a really hot, young woman, while he was now middle-aged, physically disabled, and relatively poor. He had gone without a date for 12 years because the women he met who matched up with his priorities would not date him, and the ones who would date him did not match his priorities.

If your priorities are unrealistic (especially if they are based on what your old self could do), then your life will be an exercise in frustration and failure. The only way to lead a successful life is to make sure that you ask yourself to do only those things you are really capable of doing. I cannot begin to properly explain how hard this is to do. It takes even the best recovered people years to reset their priorities so that they are truly realistic. To get there, you need to think about it often, and work on it regularly. But the reward for getting your priorities straight is sweet: Your life begins to make sense again.

Even after you have adjusted your priorities, it doesn’t guarantee that you will use them. Every time you make an important decision, your priorities control your decision process only after you make yourself stop and think about them.  . . .

I need to develop realistic goals. The type of goals that take into consideration not only the abilities I have, but how much time in the day I have. I need to let go of unrealistic expectations and goals and focus on the ones that make sense for me.

That means doing things like jettisoning a lot of the little projects I have sitting around in the wings. If they don’t immediately serve my Overall Goal of paying my mortgage and all my other bills, they have to go away. If they don’t serve my Important Goal of keeping my job and doing well professionally, then they have to go away. If they just serve to distract me from my discomfort, like a recreational drug of some kind, then I have to live my life without them. I don’t drink and smoke. Why would I dissipate my energies and wear myself out on little projects that serve no purpose other than to pass the time and get my mind off my troubles?

Focus… Focus in… That’s what I’m about, now. It’s what I have to be about. I can’t afford to screw around anymore. I’ve found work I love to do, that I can excel at, and now I need to make doing it a top priority. I realize more and more, each day, that my neurology mucks up my life in countless little ways that add up to big problems. And I need to make my ongoing recovery an even bigger priority. First things first. Figure out what matters. Ditch the rest. Be honest, be brutal, be effective, and in the process get my life back to a state that actually makes sense to me.

Onward.

Author: brokenbrilliant

I am a long-term multiple (mild) Traumatic Brain Injury (mTBI or TBI) survivor who experienced assaults, falls, car accidents, sports-related injuries in the 1960s, '70s, '80s, and '90s. My last mild TBI was in 2004, but it was definitely the worst of the lot. I never received medical treatment for my injuries, some of which were sports injuries (and you have to get back in the game!), but I have been living very successfully with cognitive/behavioral (social, emotional, functional) symptoms and complications since I was a young kid. I’ve done it so well, in fact, that virtually nobody knows that I sustained those injuries… and the folks who do know, haven’t fully realized just how it’s impacted my life. It has impacted my life, however. In serious and debilitating ways. I’m coming out from behind the shields I’ve put up, in hopes of successfully addressing my own (invisible) challenges and helping others to see that sustaining a TBI is not the end of the world, and they can, in fact, live happy, fulfilled, productive lives in spite of it all.

2 thoughts on “A good sturdy kick in the behind”

  1. I think that you are correct that tbi does not have to be limiting – absolutely BUT – and this is the BIG BUT – and maybe the kick in the BUTT – it is not the life you had before, or the life you imagined, or the life that you think others (especially those without tbi) have. The goal is not to have a life without tbi, the goal is to have a life with tbi – and that means acknowledging the issues and accepting the issues and believing that you are great even with those issues. Success is not about being able to multi-task, quality of life is not about how many things on the todo list you can complete in a day, you don’t ‘win’ if you initiate your tasks promptly 90% of the time, perfect memory doesn’t mean you are intelligent – and none of the above says doodly squat about your heart and capacity to love.

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  2. Absolutely. And yet, how we function in the world IS very important. It matters, if we can make a living. It matters, if we can pay our bills. It matters, if we are able to live up to our potential, even after TBI. I understand the importance of accepting your new life, but there is also an element of resignation that goes along with that. I personally believe that we can restore our functionality in many ways — not necessarily by trying to revive our injured faculties, but by exploring and developing new and different faculties that let us get where we’re going by different means.

    I’ve been having this kind of conversation for years with folks in recovery (from many different kinds of problems). People love to remind me that our spiritual lives and health is what matters, and we can’t get caught up in worldly measures of success. In fact, I’ve had that discussion with family members, for years, also — I grew up in a very religious family. I do absolutely believe that the health of our spirits and hearts should take priority. But I cannot walk away from the material side of life and just disavow it.

    The material side of life allows us to live and interact with the rest of the world. It determines to what extent we are effective and have an impact beyond our immediate circle. I, for one, will not be limited by the injuries I’ve experienced. I just can’t do it. I never have, and I never will. I understand that we need to acknowledge and accept our limitations, but the brain is so vast, and there is so much possibility in plasticity. Looking at my life, no one who thinks that a brain injury means inevitable hobbling, would believe that I’ve had the number of MTBIs that I have. But I have. A bunch. And I’m still here. And I’ve done more with my life, frankly, than a lot of folks who never had that kind of injury. We all have our issues. Getting hit on the head is one of mine, but it’s not one that has the power to stop me in my tracks for very long.

    I have way too much life in me for that.

    Injury or no, I refuse to give up, surrender to the intricacies of my condition, or throw up my hands and say, “Oh, well, I guess that does it for me, then.” My life purpose is in synch with Give Back Orlando’s:

    … not to help survivors to accept new lives that offer them limited options, but rather to help recoverers to deal with their deficits, improve their functioning, become active, and regain self-control of their lives. Survivors are to be respected and honored for having survived, but recoverers go on to realize their untapped potential to live productive lives again.

    I am not only a survivor. I am a recoverer. I am a multi-incident recoverer, who has had the rug pulled out from under me countless times, but I’ve always come back fighting. And I’ve become even stronger than before, each time. If I had resigned myself to just accepting my limits and “dialing down” my expectations in life, I would probably be getting ready to sell my house — or declare bankruptcy. I am not willing to do either. I’m just not. I AM, on the other hand, willing to work my ass off, to get my act together and regain what functionality I can, using the awesome, amazing power of the brain God gave me.

    It might be “realistic,” to scale back my expectations in life and not push forward… press on. But that isn’t me. I’d rather go down in a blaze of glory, than accept what pittance life has to offer me. Life generally gives us what we ask of it — so I’m asking a lot… from life and from myself. I just don’t think that our infinite human souls need to be limited by injuries to our brains.

    Call me crazy, but I’ve got 40+ years of evidence that MTBI doesn’t need to stop you from living your life.

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