In a few months, I’ll have been at my current job for a year. That’s very interesting. The merger with the other company is happening, and may take place before summer is over. But nobody knows for sure. There’s all kinds of activity going on around it. New email addresses, new business cards, new laptops, and who knows what else.
Management keeps trying to set our fears to rest, and they keep asking us to ask questions, but it feels like a trap — like they’re trying to see who’s “on board” and who’s digging in their heels. I’m not sure anybody trusts anything coming out of management, by this point. They’re getting rich, while everyone else… well… not so much.
I can’t really worry about it, though. I have to keep focused on my work, which is actually pretty challenging these days. The work, yes, it’s challenging — but even moreso is the focus.
The cadence at this company is very different from the startup-like frenzies I’ve experienced elsewhere. It’s much more staid… steady… and they don’t expect you to do earth-shaking things in the first year… or two… or more. They think you need at least a few years to ramp up, so expectations are low. But at the same time, I still need to move forward. I still need to take steps. I still need to do what I need to do for my own career, to move it forward.
I’ve kind of lost sight of that, in the past couple of months. The big business trip at the beginning of this month completely took over my life for 4-6 weeks prior to it, and I’ve been slowly … sloooooowwwwwllllyyyyy… recovering from that adventure. It’s taking much longer than I expected, and it’s tough to get back in the swing of things.
But get back in the swing, I must. I’ve re-ordered a supplement I found that actually helps my energy, and helps me sleep. And I’ve started swimming regularly, again. I had gotten away from it for months, for some reason. Just winter/early spring inertia, I guess. Now I’m swimming every chance I get — 3 days a week, ideally, sometimes more. And I’m going to start working out before my swims, as well. That’s so important. I need a better strength regimen than I’ve been doing in the mornings.
Mornings, I need to work on my cardio and balance — wake myself up, and get my balance together. I’ve got some exercises from the trainer at work that I can do, so I need to print them out and DO them. I keep forgetting to print them out.
Anyway, I’m figuring it out – and figuring out how I can balance out my work-work-work nature with the slower cadence at my job. They don’t actually expect miracles, first thing, and while that’s good in a way, it’s not how I work. I prefer to do miracles whenever possible, and not be held back by people who are telling me it’s not possible. It IS possible. Maybe not for them, but for me.
It’s all an evolving process, really. I want to go-go-go, but I know I run the risk of burning myself out, if I do. And then I’m not good for anything. I want to make progress, every single week, but then it doesn’t happen. And then I get down on myself. I’m tired of getting down on myself. I need to do better tracking of what I actually accomplish. I’ve been doing a better job of that, over the past couple of months, so that’s good. Now I need to work it into my routine.
I need my routine.
And so I’ll work with that. See what I can do. Take steps to both simplify and improve the systems I have. And keep on keepin’ on.
Great, great post. What a great read with wonderful points.
Have you seen the comments about people with “special needs”? You know, the ones where people point out that having “special needs” kids is a “gift” that makes us “stronger”, “better people” and is “so hard” but “definitely worthwhile”?
How about the conversations about how supporting an adult with “special needs” makes a person “heroic” and “patient” and “good”?
I didn’t feel like exercising this morning. I just lay in bed and pulled back the curtains… watched the gentle rain fall and listened to it pinging on the chimney cap outside my window. It’s a beautiful day to stay indoors and just chill out… reading, thinking, blogging… just chillin’.
But if I don’t get up and get my circulation pumping — get on that bike and ride — I’m no good for the rest of the day. I bypassed my morning ride, and I was dragging all day. And that was no good.
So, after I lay there a little while, I got myself out of bed and went for my ride. I’m not sure how long I rode. It was at least 20 minutes, I think. Nothing huge, just enough to wake me up and work up a bit of a sweat. Then I had my big glass of water and made my breakfast. I didn’t lift this morning, because I’ve been lifting and carrying heavy objects for days, now, and my body needs a rest. As much as I’d like to have that morning “pump”, common sense prevails.
I know how unproductive it is, when I overtrain and overdo it, so I’ll use my good sense and not do that today.
Yesterday, I swam again. It’s good. I only swam once last week, in the pool at work. I managed to get in a friend’s pool over the weekend and have a little bit of a swim on Sunday, but it was no workout. Just a cooling-off, really.
When I swim at work, it’s a whole different thing. I go around noontime, when everyone is either eating lunch, or they’re in the gym. I usually have the place to myself, but yesterday there was someone else there. I like to swim hard from one end of the Olympic sized pool to the other, then float on my back and relax, letting my heart rate and breathing go back to normal. It’s probably the most relaxing thing in my day, to just lie there and float… weightless, feeling myself floating free… The other person in the pool looked at me strangely, and I wonder if maybe they thought there was something wrong. But after my heart rate and breathing were back to normal, I went back to swimming… and they jumped out of the pool and went back to their work day.
I’m going to see the neurologist again today, to look at test results. I think this whole thing has been a boondoggle, quite frankly. But I had to follow up on it, because it would be remiss for me to overlook a serious problem that could impact myself and my spouse, on down the line. I’m the sole $upport for us, so I have to take care of myself and do my due diligence wherever possible. I don’t like it, but it’s gotta get done.
So, I’m doing it. I’m not sure what’s going to come out of this. I’m tempted to just bag it and say, “Okay, I have these issues, and you’ve been unable to medically find anything significant to address. I know they’re issues for me, and I need to manage them, so since you’ve got nothing to offer me, I’ll take it from here.”
The medical establishment doesn’t have the nuance and sophistication for people like me, so I’m not going to waste any more of their (and my time) with requests for help that they’re unprepared and unable to give.
Time to just take things into my own hands, and be done with it. I’ve given it my best shot, but it’s time to call an end to this search.
It’s taking up way too much time and energy, and I just don’t have the time and resources to keep chasing this the way I have. Anyway, I’m really just following this up because of advice from my neuropsych(s). I would have just left it alone and dealt with it, myself, but they’ve been so keen on me figuring out the medical piece of this, so I don’t fall.
The crazy thing is, months ago (and before I spent lots of time and a bit of money on this), I could have predicted this outcome. But then, I’m the brain-injured one, so what do I know?
Well, maybe today will see the end to this. If I ever get concussed or brain-injured again, I know where to find these people. But until then (and hopefully that never happens), I’m just going to get back to my life. It’s been interesting, but it hasn’t been that productive.
And frankly, exercise and a good diet, getting rest, keeping active in my life, and really diving into my life experience to learn as much as I can, is turning out to be the ticket to my ongoing recovery.
I had a busy weekend, doing a lot of work around the house while my spouse was out of town. Lots of lifting and moving and hammering and drilling and lugging things around. And in the end, I’ve finished some of the biggest items on my to-do list — which were also the ones that I couldn’t seem to do for months and months.
And it’s all good.
I’m really foggy today. I was really foggy yesterday. I’ve been feeling really “draggy” and dull, lately, and it’s not fun. But I keep to my schedule and I keep doing the right thing(s) for myself, and it all seems to work out okay. I haven’t been getting to bed at a decent hour, lately, so that’s probably a determining factor.
But at least I’m functional on average. And I can rally to get a bunch of stuff done when the opportunity arises.
Now it’s quiet. The sun is shining, and the kids have all gone to school. Time to get ready for work and see what the day has to offer.
This week, my goal is to get myself back on track with my sleeping. I see the neuro one last time this week, to see about possible neuropathy in my feet and legs. I’m guessing there’s none, but I’m going to follow through with it. Then I will probably just drop the whole neuro thing and look into having my ears checked.
My gut has responded well to cutting out the tiny seeds and nuts. I can still eat my granola (which has walnuts in it), so that’s fine. I can’t imagine getting rid of ALL nuts in my diet. Just those little tiny ones that cause me so much trouble.
I’ve got my punchlist of all the stuff I need to do for the next 18 hours, and it’s good. I’ve got it all written down, in the order of priority, and I’m working my way through it gradually. One piece at a time. It looks like a lot, but there are a lot of little 15-minute jobs in there, that I can do concurrently. Or that might not even take that long.
Bottom line is, I’ve got my mission clear in my mind, and now it’s time to move forward.
Well, I’ve overdone it on the trail mix. All those little seeds have caused my diverticulitis to flare up, and last night I was nearly doubled over in pain. It’s that lower left quadrant pain that tells me exactly where my colon is. And my intestines definitely were not happy, last night.
That’ll teach me.
Today, I’m taking it easy on my digestive system. I’m drinking a lot of fluids and staying clear of the fruit-and-nut combination. I’ve been eating too many nuts, lately, anyway. Worst of all, those little tiny seeds are what get me, and I had a bunch of them yesterday.
Gotta take care of the digestive system.
Today, it’s a raw fruit and vegetable kind of day – and plenty of distilled water. Something to keep everything from shriveling up from dehydration.
I had a good meeting with my neuropsych yesterday. They’re helping me get my act together and take care of all the stuff that has… languished, since I fell in 2004. I haven’t been able to rally very much at all, and the progress I’ve made has been stop-and-go… very uneven.
So, I’m fixing that. I had great plans, when we bought this house in 2002. but then I fell less than 2 years later, and everything fell apart. I’ve been trying to get myself back in gear for some time, but my old neuropsych didn’t seem very focused on helping me do that. It was really about just keeping me stable. That was my priority, also, because I didn’t have a good foundation. Now I have a good foundation, and I can finally start digging in.
So, this weekend, I’m going to take care of a few key things that have needed to be done for some time. My spouse is out of town for 3 days, and I have the place to myself to get in order. When they’re around, I’m limited because their health is not great and they can’t tolerate a lot of noise and dust and smells. While they’re away, I can take care of things that have been on my list — some of them for years.
First, clean out the lower cabinets, re-surface them with contact paper, and replace all the pots and pans in an orderly fashion.
Second, wash the curtains from all the bedrooms.
Third, check a gap where I think some bees have been getting in/out of the house walls — and plug it. I don’t want bees in my walls.
Fourth, put up a new house number, so emergency vehicles and delivery vehicles can find us. We do have numbers, but they’re not as visible as they need to be. I have been meaning to tend to this for years, now, but this weekend, it’s actually going to get done.
And that will be an accomplishment. I’ve got a few other things I need to take care of — yard work, some more minor maintenance, and just cleaning up after myself. I need to get organized, so I can actually live my life without making things even more difficult. I need to cut myself a break from all the various distractions — and that includes clutter.
It’s happening. And about time…
So, it’s all coming together. And it feels pretty good. And it’ll feel even better, when I manage to cross some of these items off my list. My gut is feeling better, now, and I don’t have the radiating pain coming from my lower left side. That’s progress.
I’ve been trying like crazy to whittle down my list of Things That Must Be Done, and over the weekend, I made some good progress.
I actually got the basement sorted, just a little bit more. Many months ago (was it actually a year ago? that’s possible), I un-boxed a ton of stuff we’ve had in our basement for years and years. This is stuff we inherited when my spouse’s parents passed away… stuff we packed up over numerous moves, and then never unpacked… stuff we just couldn’t deal with at the time, and put down on a shelf, to decide about later.
Later never came.
Oh, actually, it did come. The decision part just never followed.
So, being concerned about the “stash” becoming a condominium for mice, I went on a multi-day campaign last year to unbox everything that was packed in cardboard and wrapped in newspaper, and I re-boxed everything in soft paper towels and clear plastic containers that have sealable lids.
And it was good.
Except, for that last piece of the process — the collection of trinkets and tschaschkes that I didn’t have a container for. I put them all out on a big folding table, planning to box them up when I picked up some additional containers. I got the containers. But I never boxed them up. And as a result, I’ve been “threading the needle” in my basement, just to get to the water softener when I need to refill the potassium chloride. It’s been a pain in my a**, and I’ve wanted to do something about it for months — actually, more like a year.
But I couldn’t.
Well, this weekend, I decided I’d had enough, and I decided to make a go of it. I told myself I’d only spend 30 minutes working on the task, and that made it easier. I got myself a nice sweet juice drink, and I took some music with me to listen to while I worked. And as I got into wrapping everything up and placing it carefully in the container, I found I was making good progress, so I didn’t need to stop at 30 minutes.
And in fact, it took me less than an hour to get it all done.
So, I’ve been inconvenienced (along with the workmen who’ve needed to get through my basement to fix the furnace and water heater), for a year, over something that took less than an hour to sort out.
Yeah, that would be me, sometimes.
Because it wasn’t just about the job. It was about this nagging sense of failure I have at everything else in my basement — the vestiges of projects I started and then could never finish… the building supplies and handyman remnants of my past life, when I was so strong and with-it, and I had all these plans that I could follow up on… before I fell and got hurt in 2004.
All the memories of years gone by just flood in, all my failures with family coming to mind, as I look at the items on the shelves, and remember how much I loved the people I’ve lost, and I think about how much of a challenge I always was for them. And it’s remembering all the ways that they (especially my in-laws) were challenges for me — the betrayals, the fights, the disloyalty, the gossip, cutting me out of wills and family news because I wasn’t “one of them”. I wasn’t from the world that my in-laws inhabit, and they’ve always kept me at arm’s distance, even though I’ve never done anything other than love and care for and support my spouse — one of their own.
Going down in the basement and spending time there isn’t just about stuff. It’s not just about organizing. It’s also facing my past — the disappointments, the frustrations — and all the stuff from Before.
But now, at least, I got that piece done. So I don’t have to look at it. I don’t need to constantly crawl over it… be reminded of it… factor it in. I am slowly getting my basement back. One of these years, I’m sure it will be in the kind of shape I want it to be.
And in another 12 hours, I’ll be home again, parked in front of the t.v. to watch a good movie with my spouse. We celebrated 25 years of marriage, last night, and it was a very sweet celebration. We didn’t go out. We didn’t do anything extravagant. I made us a couple of steaks, and we opened the cards and little presents we’d gotten for each other.
It was a modest celebration, really. It’s our Silver Anniversary, but we don’t have the money to get any big silver items. So we got some little silver mementos that really represent the commitment and love we still feel for each other — even more than ever, after all these years. We had cake. We took selfies with the cake — which is always a hilarious activity. We don’t have smartphones, so we have to take a bunch of shots with our little flip-phones, and we get some pretty hilarious pictures in the process.
It’s probably one of my favorite things to do together. It’s just so funny!
I got to bed a bit late, but how often do you celebrate something like that?
Plus, it’s Friday!
And I can sleep all weekend, if I like. I just have a few chores to take care of, but I can get them all out of the way in the morning and then go back to bed.
And sleep. And sleep some more.
I’m still wiped out from that business trip from the week-before-last. I can’t believe how long it’s taking me to rebound, but I’ve had my hands full.
PLUS, they’ve announced a possible timeline on the merger, and it’s happening about three months earlier than we thought it would. So, I’m up in the air about what to do next. I’m going to sit tight and see how it all shakes out. And just do my thing, regardless of what they do.
Unless they lay me off. No, come to think of it, I’m still going to do my thing. Layoffs really can’t stop me. They may require a re-think and re-shuffle of my priorities, but they can’t stop me.
Not every day starts out with 9.5 hours of sleep, unfortunately. In fact, precious few do. And after days of sleeping long past 8 hours, I’m up early this morning with barely 7 hours under my belt. I was too warm, overnight, and I probably need to put the air conditioner back in the window, because when I get too warm, I can’t sleep.
Also, I was having bad dreams last night, having to do with my spouse. I was so angry with them about doing something wrong, and I was trying to get back at them and teach them a lesson, but when they tried to step up and do what I needed them to do, they couldn’t, because their mind was gone. It was mean-spirited and cruel, and it also brought home to me, yet again, just how much it sucks to have your beloved decline right before your very eyes.
So, no, I didn’t get enough sleep last night.
I got up anyway and started in on my day. I rode the exercise bike for 20 minutes, then I did some heavier lifting than I usually do. I didn’t do a ton of it, because I don’t want to injure myself. But I did lift heavier weights that took more concentration and effort than usual. And that felt pretty good. It felt good to push, even if it was just a slight bit more than usual.
I need to shake things up and break up my routine, so it doesn’t get boring and I don’t lose interest and motivation. I mean, having a “master routine” of doing the same activities each morning and evening (getting to bed at the same time, exercising and eating a nutritious breakfast in the morning, and keeping myself on a schedule). But doing the exact same thing(s) over and over can be mind-numbing, so I need to find other ways to work and stay active.
And that’s what I’m doing. I had my “magic potion” of electrolytes and fruit juice this morning. And I also mixed up a big batch of deviled eggs. I actually love them. And over the last holiday season, my sister-in-law showed me some secrets of making really tasty ones. So, I whipped up a batch and sealed them up in plastic containers for later (so the refrigerator doesn’t smell like egg sulphur). I used to watch Jacques Pepin on a food channel, and he showed how you can poke a hole in the end of an egg to let the sulphur release, so your eggs don’t have that rotten smell, but I could never get it to work. It just got egg all over the inside of the pan I was cooking them in.
Oh, well. The smell isn’t awful, and it doesn’t mean the eggs are bad, so I’ll live with it. At least I have my deviled eggs.
I’m tired today. And not just from not getting sleep. Yesterday was a very emotional day for me — much moreso than I expected. I had a neuro appointment, where they did an EMG on my legs to check for neuropathy. They wanted to check how the nerves in my legs and feet are behaving — if my balance issues might be related to degeneration in my nerves there, or if the impulses are not traveling properly from my spine to brain to legs to feet… and so on.
I had to lie still and relax completely, while they did little electric shocks on my legs, and then tested the nerves in the muscles with little needles that the doctor inserted into the muscle. It wasn’t terrible. I could do without the shocks. It reminded me a lot of when I was a kid running around at dairy farms, bumping into the electric fence. It was like that, but the place where they pressed the electric conductor against my skin was very sensitive. The doctor told me that if I relaxed and got my autonomic nervous system to calm down, I’d have less of a pain response.
I found it interesting that they talked about the ANS that way — and that they seemed to assume that I knew about it and understood what they were talking about. The thing that bothered me about it, was that they went really fast, and I felt like I couldn’t prepare or keep up or get my head around what they were saying, until they’d started. And that sense of no control was stressful. I mean, not necessarily control, but just not feeling like I was actually a part of the process — that they were just doing all this on my body as though I wasn’t even there — I didn’t care for that at all.
It took about 30 minutes to do the testing, and the needles weren’t bad at all. They said it would hurt a little bit, but it didn’t hurt very much at all. The anticipation was much worse. And the needles were actually less painful than the electric shocks. The shocks were the worst, really, now that I think about it. Having your legs jumping around, and feeling that burning roughness from the electric conductor… it was worse than I thought it would be.
I got through it in good spirits, had a pleasant chat with the receptionists, and then headed back to the office where I could just get some work done. It really wasn’t that big of a deal. But then when I was going to sleep, I suddenly burst into tears and wept like a small child. I guess it did bother me — a lot. And the thing that got to me the most was that I was all alone in the process. I’ve stopped discussing the neuro appointments with my spouse — I don’t even tell them that I’m going — because it sets off their anxiety so intensely, to think there might be something “wrong” with me. And then my life gets even more complicated, because they shut down in their anxiety, and they just “drop out” of live, leaving me even more alone — and burdened — than before. So, I stopped telling my spouse about my appointments.
After all, there could be nothing at all wrong with me. Maybe I’m just a very sensitive individual who has a unique combination of traits that make me dizzy at unexpected moments. Who knows? So, why worry my spouse, if that’s the case?
But not having anyone to talk to afterwards, not having anyone to debrief and decompress with… that’s tough. And I really felt it last night.
These times when I have to push through an unpleasant experience is a little like lifting heavier weights on occasion. It forces me to pay attention. It makes me feel vulnerable and out of my element. And it reminds me of how much farther I have to go, to really feel as though my life is on solid footing.
It also makes me more sensitive to the situations of others who are even worse off than I am, who are struggling with serious health issues in the face of a medical system that doesn’t serve them, but only confuses and alienates them… and then blames them for not taking proper care of themselves. That’s especially true for folks with cognitive issues. I had a really hard time, inside the silence of my own skull, keeping up with what was going on around me. So, I just went along with it. But if the doctor had made a bad choice or wanted to do something more serious to me, would I have had the wherewithal to stop them? To question them? To defend myself?
Maybe I could have. Or maybe not. I just don’t know. But I do know that for many, many others, they can’t. They just can’t. They’re at the mercy of the medical system, unable to follow along, unable to figure out what the doctor is saying in the 15 (whopping) minutes they have to spend with them.
And that can be deadly. We can’t speak up for ourselves, we can’t advocate for ourselves. We just end up being guinea pigs, and that’s such a bothersome situation, it alone keeps me up at night, sometimes. I wish to high heaven there were something I could do to change this, but all I can do is offer my own experiences, and hope that somewhere, somehow, someone reads these words and gets something from them.
I’m feeling a little better this morning, but my dream bothers me. It all bothers me. But it’s a new day, a beautiful day, and life is waiting. I’ve got a whole bunch of deviled eggs in the fridge, and that’s pretty cool. Life is good. Regardless.