Like most people, I’ve been quarantined. More quarantined than most. My spouse is declining in their mental and physical health, and I’m frankly not sure how much longer they have. Could be weeks. Could be months. Could be years. I just don’t know. And they’re not very forthcoming about what is really going on with them, so it’s well nigh impossible to tell what the deal is with them.
Well, anyway, all the heartbreak gets exhausting to think about and talk about, so I won’t.
I’ve been pretty stressed out over a lot of things in my life. The job. The house. The spouse. The COVID-19 situation. Now, I wouldn’t say I’ve been stressed out about everything, in the typical way a lot of people are. Let’s just say, it’s been more to deal with. And adding all the hypervigilance, the masks and gloves and social conflict around it… well, that’s just been overwhelming. Not because I’m terrified of getting COVID. I’m not. In fact, I suspect I may have had it over the winter, before it became “a thing”.
I had this really persistent cough, my chest felt like it was getting tighter every day. I didn’t have a fever, but I felt like I’d been beaten with a stick, and it lasted longer than other bugs I’ve had. It just felt different. Like some weird foreign entity had taken up residence in my lungs.
There were times it got a little scary. But I did breathing exercises to open up my lungs, and over time, they stopped feeling so constricted. And I got a break from it all. Eventually it resolved. So, that’s a plus.
The thing is, I still have issues with my breathing. When I get really tired, my lungs feel like they’re shrinking, and I have to cough to catch my breath. This is when I’m tired – so tired – and I’m behind on my sleep. When I rest – and do my breathing exercises – I get better. But the breathing problems is a sure sign that I am over-tired and I need to do something about it.
Which is good. Because not getting sleep is a killer for me.
A tired brain is an agitated brain, and there you go. Agitated. Difficult to live with. And me trying to stay calm and collected with a spouse who’s increasingly erratic, emotional, anxious, and volatile.
Well, it is what it is. I know I can’t get any help from the medical establishment, because A) they don’t understand my mTBI situation, and B) they’re all busy with COVID patients and extreme cases who have waited till they’re almost dead before they show up at Urgent Care or the ER looking for help.
Even if they were available, they couldn’t help me. Because they just can’t. They won’t. They don’t think there’s anything “up” with me, other than me looking for attention from authority figures. So, I don’t bother.
And I get on with my life. I notice the signs. I take action. I watch to see how it works out, and if I need to adapt, I do.
I had a really good weekend. I made a lot of progress, and I got a lot of plans in place that I think are really going to help me get stuff done. I didn’t clean my gutters, which I really needed to do. And there were a few other things I need to do this morning, to catch up. But all in all, it was a good and satisfying weekend.
My top achievement was getting rid of some serious distractions that have been pulling my attention in all different ways. Those are old projects I was very fond of… and that I was very fond of thinking I’d ever finish. As it turns out, because I had too many things going at the same time, I never advanced down the path I was hoping to, which resulted in me getting nothing done.
So, that’s stopped.
And that’s a big deal for me. Because distraction and dissipate have been regular themes in my life, for as long as I can remember. I’m not sure what’s changed with me, but suddenly I don’t feel drawn to spread myself so thin.
Part of it might be getting a hold of my anxiety. Or just using it for something productive, instead of trying to get rid of it entirely. For quite some time, I’ve tried to manage my anxiety by calming myself down. But at the end of last week, I realized that anxiety is actually a really potent source of energy for me. And it’s constant. It never really goes away.
So, I can use up all my time and energy and attention trying to control / manage something that’s always there, anyway. Or I can redirect the energy into something productive. And really kick it.
That’s what I’ve been doing for the past several days. Kicking it, using my anxiety. Not trying to calm myself down, but directing my energy into something useful. Making plans. Creating a new pace for myself. Letting that old companion anxiety propel me forward… Turning that often-unwelcome companion into a friend.
And it’s working out pretty well, I have to say. After years and years of being so dissipated and distracted by, well, just about everything, I feel like I have a much better understanding of how my system works — and how it can work for me.
Of course, none of this would have been possible, if I hadn’t worked at my TBI recovery intentionally and with a lot of trial-and-error. I can tell my brain is behaving more, these days, because I’m actually able to focus. I used to be able to do it, at will. Then I fell in 2004, and that went away. I couldn’t manage much of anything, concentration-wise. That’s something that’s come back over time, with lots and lots of practice and (again) trial-and-error. I’ve let myself make mistakes. That’s how I learn. And I gave up worrying about “failure” in the process, which always helps.
So, yes. This is good. I’ve got my mandate for the next year — maybe two. I’m only focusing on one major project, for 2019, funneling my anxious energy into taking steps to do something about each hurdle I come up against — which are many. I will keep this blog going, because it helps me keep my head on straight and also keep focused on what’s most important to me. But I’m not working on a bunch of other side projects that I had going, lo those many years.
And, ironically, that tames my anxiety. Using it for something good not only lets it just be without judgment or blockage, but it also gives it somewhere to go. Like a rushing river, when I let it just flow and direct it in a certain direction, it takes me on some really interesting turns. Instead of damming it up and trying to control it, I just let it flow… and I ride that wave.
Basically, I’m working on my projects that have been on the back burner for weeks and weeks. Five weeks, pretty much. Count them – five. Ouch. Especially considering how psyched I was about finally getting back into them, about a month ago.
Then I had to travel.
Then I got tired.
Then I had to travel some more.
Then I was exhausted.
I’ve spent the past week swamped at work – two very late-night working sessions, and both nights not getting much sleep at all.
It was really demoralizing and depleting.
But — ha! — now I’m back.
I’ve had the whole day to myself today, to do as I pleased. And it’s been good. I didn’t do the errands I typically have to do on Saturday mornings, because, well, they’ll keep. Those errands aren’t going anywhere, and I needed the down time… the time to just sink into my passion projects and not be governed by someone else’s timeframes, deadlines, limitations.
Even though I worked really hard, this morning, it was very much a vacation from all the intense work at the office, as well as the care-taking for my spouse. Oh, also, my spouse has been ill, so I’ve been doing even more care-taking this week, than I did when we were traveling. And that’s a lot. Nearly constant attention paid. Lots of interruptions. And a trip to the doctor, as well as wrangling with the pharmacist who didn’t understand why I was asking all those questions about the type of medication that was prescribed. My spouse is extremely sensitive to meds, and the pills given before made them violently ill.
So, yeah. I’m going to ask questions. Too bad. At least I kept my wits about me and didn’t yell at anyone. That’s helpful.
Anyway, I spent a great deal of time this morning (and early afternoon) mapping out specific steps I can follow to make the most of my time and not make myself crazy in the process. Now that I have it figured out (mostly), I can move forward.
I hate not knowing what direction to take. It stops me. It blocks me. I’m not a fan.
Anyway, duty calls. I’ve got some things I must take care of this evening, so I’ll sign off for now. I am very much looking forward to this next week, when I’ll have five days off work… to continue to make progress.
I just published Top 10 Things I Wish Someone Told Me After My Concussions in print. You can buy a copy here
My hope is that the word will get out via Amazon – it will eventually be available there, after I get my proof copy and sign off on it. Because TBI/concussion is not only survivable, but there are things we can do that can help our recovery process.
I keep thinking about what life was like before the Internet. I know, it’s hard to imagine — especially as I’m writing this (and you’re reading this) online.
The Web has so completely altered how we do things, how we think about things, and what we think about, it’s very difficult to remember what it was like before.
But there was a time before the Internet. I can remember it, however faintly. And I remember how quiet my weekends used to be, when I would spend hours just reading, studying books I had, instead of surfing around online.
I feel very ambivalent about this, to be honest. I do love all the expanded access to research and interesting information that the Web makes possible. At the same time, though, it’s so full of distractions, that I’ve missed a lot of insights about much of the information out there, because something (literally) shinier has popped up in my view before I could digest what I was reading. Online advertising has not done us a whole lot of good, in that respect. And I think that fragmented, flashy way of hijacking our attention is a seriously Bad Thing.
Especially for people like me.
Interestingly, my electronic life has taken a new turn. A few months back, I bought a new-to-me computer for an amazing prize. A new version costs over $3,000, but I got mine (used) for just a little over $300. Score! Yes, it was refurbished, and yes, there were some “dings”. But it works great. It’s fast and powerful and has a huge amount of disk space, so I’ve been able to transfer all my various files in all my various external hard drives to a single place. That, in itself, is progress, because I have a lot of files, and I need to be able to find them without sifting through a bunch of different drives.
The only thing is, the PC doesn’t have a wireless card. And it’s on the other side of the house from my router with the wired connection. So, I can’t get online, unless I lug it downstairs and plug it in.
At first, I was pretty upset. I spend a lot of time online, and I need access for a lot of stuff I do. On the other hand, I’ve been increasingly worried about the effects that online life is having on my state of mind, as well as my body. I spend way too much time sitting in front of of social media, clicking links and entertaining myself, when I should really be doing something productive. I can’t even count all the hours I’ve lost to Facebook, Twitter, and other social media. Even Google News tends to be a time-eater for me.
I’ve been wanting to get away from online life for some time. The thing is, I do a lot of my writing while online (especially here), researching and following leads. That puts me at risk for “squirrel!” syndrome — where I can easily be pulled in by the shiny-flashy lure of some clickbait headline or link. It doesn’t take much, at times, to pull me off-course, and that’s been happening, now, for years.
So much so that many things I’ve intended to do have fallen by the wayside. Because I just got distracted.
That’s about to change. Because my new computer isn’t connected to the internet. Not only am I protected from the prying eyes of people who may mean me harm online, but I’m also shielded from the constant distractions of online life. I’ve been needing to make this change — revert back to my old ways of writing, when it was just me, my ideas, and a keyboard (and yes, I used to use a typewriter, back in the day). Clear out the clutter — the uninvited intrusions that suck away my most precious possession : time, as though they’re entitled to it.
Screw all that. Screw them. They’re not invited. I want my space back, I want my thoughts back. I’ll still be able to write things like this without being online. I’ll still be able to draft these posts and the transfer them to another computer that is connected. I just won’t be constantly distracted by other stuff that has no place in my life and shouldn’t even come anywhere near me.
As much as I love the web and all the connections it gives me, there’s a time to say “enough is enough”.
I’m saying that now and doing the right thing. It was an accident… completely unintentional. But my unconnected computer is totally for the best.
I just checked my stats from the past 30 days, and it looks like word has gotten out about this blog. Or people have been finding their way here. The breakdowns of countries are below – this is just the past 30 days, but the range of countries is pretty extensive.
But you probably didn’t notice, because I’ve been only intermittently blogging here for the past months – maybe a year or so? Life got… interesting. Work has been a drain and a challenge. There are multiple illnesses in my family. And I need to help out.
So, I help out.
I’ve got a disabled sibling with a child who’s in and out of the hospital. I haven’t done a good job, at all, of keeping in touch and offering support. I’ve been trying to do more of that, lately, but it really takes a toll. And now that sibling’s partner is having health issues, as well. So, that’s yet more of a drama scene.
And now my parents are having problems. Serious, possible-surgery problems. I spent the past 4.5 days with them, helping them get sorted out with doctors, getting their paperwork together, talking them through their options, and talking to a friend who is helping a lot. It’s a whirlwind with them. My parents are high-energy, always-on-the-go types, who live a very active lifestyle with lots of friends and activities. It’s exhausting just talking to them, let along living with them for a few days.
But mission accomplished (for now). We got all their paperwork taken care of, got them set up with the medical portal so they can connect with doctors and see their test results, hooked them up with a new smartphone, so they can have a GPS, and also look things up when they need to. And just reassured them that I and my spouse will be there for them when they need us. They’re a 7-hour drive away, so it’s not exactly close by. And my spouse is having a lot of mobility issues, which slows everything down.
I slow things down, too. The fatigue is just crushing, at times, and when I push myself, I can get cranky and perseverative. I’ll start to grouse and get stuck on a single angry thought and just hammer that proverbial nail, till the board around it splinters. We had a couple of instances where I lost it over what was really nothing much, got turned around and confused, took wrong turns, got combative… mainly because I was bone-tired and worried about my folks.
On the way down, we added 1/2 an hour to our trip, because I got turned around and missed my last exit. My spouse was talking to me about a number of different things that had nothing to do with the drive, and it distracted and annoyed me, at just the time when I was trying to figure out where I needed to turn. I was tired, which makes my brain work worse, and it was dark, which didn’t help. We were also in a part of the country that’s changed a lot in the past years — and we hadn’t been in that area for over two years, so I was even more disoriented. I missed my exit, couldn’t see where to go next, and my spouse was getting really upset at me for not offering anything constructive to the conversation — which had nothing to do with driving.
I appreciate the vote of confidence, that I can do more than one really critical thing at a time, but I wasn’t in any shape to do anything other than drive the car and get to my parents’ place, so as for conversation… yeah, it wasn’t happening.
We ended up having a blow-out fight over it, which often happens whenever we make that trip to see my parents. There’s a magic point around 7.5 hours of driving, when both of us hit our limit, and any discussion we have turns into a lot of yelling.
Fortunately, we did manage to get over it before too long, and we did get to my parents’ place 9 hours after we left the house. At least we were safe, which was the whole point. And we had a good 4.5 days ahead of us to just chill out and focus on my parents.
On the way back, I got turned around again. I was tired from the trip, and I was confused about pretty much everything. I hate when that happens. It’s a little difficult to maintain your dignity, when you’re bumbling around in a fog. I felt like I was swimming through a bowl of thick tapioca pudding with ankle weights on. My brain just was not sharp. I was foggy and fuzzy and my reaction time was really terrible. I’ve been in better shape, but we had to get home, and my spouse was in no shape to drive, either. Plus, they don’t know the area we were in. So, I had to suck it up and get on with driving. Focus – focus – focus. Pay attention. Watch my speed.
And sure enough, 7.5 hours into the drive, things started to devolve. We were trying to figure out where to buy some eggs and milk and bread before going home. We didn’t have anything fresh in the house, so we had to get some groceries. Driving along, I came to a major fork in the freeway and I had to choose between the left branch or the right, so I decided on the right side, then realized a few miles later, it was the wrong choice. My spouse was pretty pissed off, and yelling ensued. Again.
But I remembered what an ass I’d been on the way down, so I pulled over on the shoulder where it was safe, checked my smartphone, found a grocery store that was open till midnight, and used the GPS on my phone to get there. My spouse was pretty anxious and turned around, too, which made them even more combative. And that wasn’t any fun. But when I followed the instructions of the GPS (almost turning the wrong way onto a one-way street, in the process — it was dark, after all), I got to the store by 10:50, which gave me more than an hour to find and buy the 10 items on the list my spouse made for me. I was in and out in 15 minutes, which was good. Heading out again, I took another wrong turn (even with the GPS telling me what to do – ha!), but I turned around and found my way back.
And we were home before midnight… without too much bloodshed, fortunately. I remembered how hard it had been for me when I lost my temper, while we were driving down. It was bad enough that I felt terrible, felt like a fool and an idiot, and my self-confidence was totally shot. But allowing myself to get angry and vent, to let things escalate with me and “defend myself” from my spouse’s “attacks” actually just made things worse. Even though I was totally justified in my response, it made everything harder for me to think, to process, and do the things that would build up my self-confidence, as well.
It’s all a learning experience, of course. So, I can’t be too hard on myself. It’s one thing, to make mistakes and mess up. It’s another thing to give in to the circumstances and let myself blow up… and never learn a thing in the process. I have to just keep my head on straight, study my situation, watch my reactions and behavior, and learn how to manage myself better. What other people do is one thing. But I need to pay attention to myself, to keep myself as functional as possible — based on the lessons I’ve learned from my past experiences.
It was an exhausting trip, and I’ll write more about that later. I’m still digesting the whole experience, and it’s clear I need to make some changes to how I deal with my parents. They need help — and they need the kind of help that only my spouse and I can offer. Everyone around them is pretty depressive, and some of their friends are distancing themselves from them, because they’re afraid of all the implications of a life-threatening condition that needs to be dealt with.
This is very hard for my folks, because they’re so social, and it’s hard for them to be ostracized, just because of illness.
It happens, of course. I could write a book about how that happens. It happened to me after my last TBI, when I couldn’t keep up with the social and work activities I’d done for years prior. People sensed a vulnerability in me, and it made them uncomfortable. They also sensed a change in me that made them uncomfortable. And since I wasn’t always up to the levels I’d been at, before, they drifted away. I talk about that inTBI S.O.S. –Self Matters To Others. Who people know us to be, is also a big part of who they understand themselvesto be. And when we change, a part of their world goes away. That’s not easy. But it happens. Not only with TBI, but with other injuries and illnesses, as well.
Anyway, I’ve gone on long enough in this post. I’m back from the visit with my parents, settling back into my regular routine, with some changes. I called my folks, first thing this morning to check in, see how they’re doing — and also pick them up a bit. I need to make this a regular routine, because that’s what works for them. Plus, it’s just nice to talk to them.
I also need to take care of myself, because this is even more demand being placed on my system. And it’s not going to get simpler, anytime soon. So, keeping myself in good shape, stepping up and being responsible about my issues… that’s a big part of what I need to do.
As I said, that’s enough talking for now. I’ll have plenty more to discuss, on down the line.
Sometimes the wheels come off. And you just have to figure out how to deal.
Memorial Day. Thank you to all the vets (living and passed on) who have sacrificed so much for us. We literally would not be here without you.
I just wish you had a nicer day, instead of all the rain and cold.
Then again, if you’re like me, you welcome the downtime. And you can use a break from the rest of the world. This is your day. You should enjoy it.
I’m staying off Facebook today. Twitter is another thing, but Facebook has gotten too volatile for me, of late. I need to rest. I need to sleep. Nap. Take it easy. And let my frazzled sympathetic nervous system chill from all the fight-flight. Just chill.
I worked out more strenuously, over the weekend. So, now I’m sore. And that’s good. It means my body needs to rest, and I’m more than happy to do that. I did some balance exercises this morning after riding the exercise bike, just to get myself woken up. I was going to ride a long time on the bike (I had extra dessert last night). But I got tired.
Yeah, I need to rest.
So, that’s what I’m doing. I have a bunch of reading I want to do, and a bit of writing I need to do, as well. Ideas I’ve got going, which I need to continue to develop. The nice thing is, I can just let them develop and not make myself nuts over it all. This is a big change for me, and it hasn’t been an easy one.
For years before I fell in 2004, I had a number of my own businesses going in addition to my 9-to-5 job. I was quite prodigious, I have to say. Always on the go, always cooking something up. And I created some pretty cool products and services that other people really got some use out of. I was part of some pretty exciting ventures over the years, and even though I had a ton of fatigue and sensory issues all the time, I was able to power through them and keep going on the adrenaline alone. It was so exciting, and it was very satisfying to be part of teams working “on the sly” towards common goals.
After I fell in 2004, I couldn’t keep up the pace. I tried. For years, I tried. I really pushed myself to continue to code and be involved in events and ventures. I hatched all kinds of startup plans, and I went so far as to start a formal business for one of them. I had project plans for about 20 different ventures, most of them around selling information and spinning books off into videos and online courses.
But I couldn’t get any traction on them, I’d get confused and discombobulated and turned around… and then frustrated and angry and difficult to live with. So, about 4 years ago, I started backing off on a lot of those things. And I started culling the list of ventures I had planned and waiting in the wings.
It was a hard change, because DOING BIG THINGS was always such a part of my identity and my sense-of-self. And no longer having a full roster made me feel lost and disoriented and un-moored. Like I’d been cut loose from my anchor and set adrift in the big, wide sea.
But you know what? After a while, I realized that it was a huge relief for me to not have all those things constantly “cooking” in the background. And I realized I could actually start to relax. I became less and less reliant on Super-MEGA-PRODUCTIVITY for my sense of well-being and direction, and I actually gave myself a chance to catch up with myself.
It’s taken years for me to feel more comfortable with this — and I have to admit there are times when I revert back to my old over-doing ways. But nowadays, it comes more naturally for me to plan less, rather than more. And in the end, whatever needs to get done, gets done.
Today, though, not much really needs to get done. I’m chilling out. Relaxing. Giving my body and mind time to catch up with themselves. Without pressure. Without agenda. Just so.
My hands have been giving me a lot of trouble, lately. I’ve been writing a lot – typing a lot – on the computer most of my waking hours. And it’s taking a toll.
The only problem is, I have a lot of writing I want to do. I’ve got a handful of projects that are just itching to get done – my Chronic Blogging project being the most pressing, right now. Maybe I’m just being spoiled, or maybe I’m finally getting to a place in my life — and my writing — where I’m really hitting my stride.
The latter, I think. I’ve been struggling with keeping things together for so very long, that just carving out time to write has been rough. And I’ve been foggy and fuzzy for so long, that it’s been a challenge to get the words together in decent order.
Blogging counts… but not exactly. It’s much more stream-of-consciousness, and it doesn’t require me to create a huge amount of structure around my thoughts. I can just get up, do my morning workout, get my breakfast, and then spend an hour writing about whatever comes to mind. It’s not the sort of activity that I have to plan out, structure, and then keep steady with.
Writing extended pieces takes a lot out of me. I tend to get distracted and lose my train of thought / resolve before I’ve completed the extended thought. That’s why I favor blogging – it’s “low-impact” for me, and it lets me mentally ramble more than I can in a structured work. I can also break down individual ideas into bite-sized chunks that are easier for me to digest.
But every now and then, I get a hankerin’ to write something more involved than my daily blog posts — something that demands real commitment, and which will have to do with more than the passing moments of my life.
Which brings me to my Chronic Blogging book-in-progress, and all the stuff that goes along with it. I have to figure out a way to elaborate on some really key points, without blowing out my hands and wrists.
Thus, the speech-to-text functionality of my devices.
I’ve got an iPhone for work, and an Android tablet of my own. The iPhone seems to do a much faster job of transcribing, although the Android tablet seems to be more accurate.
Speed vs. accuracy — the eternal quandary!
Anyway, I’ve been testing both of them out, and this weekend I’ll do some more work on my Chronic Blogging project, dictating rather than typing. I dictated about 1/3 of the book yesterday p.m., and it’ll be good to just plug it all in and edit it, rather than tap-tap-tapping away at the keyboard.
I need to break things up, anyway, and this will be a great way to do it.
The first order of the day is to get your blog properly setup and configured. This is not nearly as difficult as it sounds, and what you do here, can really help you in the long run.
The first I’ll discuss is the basics of setting up your blog to make your life easier. With technology, it’s easier than ever to complicate everything — to the point where you just don’t want to do it, anymore. I’ll keep things simple here. I also won’t cover every single topic I can think of — just the basics you should consider.
There are a lot of great books and websites out there that can offer you in-depth tips and tricks. Use them as much as you can. There are lots of smart people who share really useful info with the world.
In this guide, I’ll talk about using WordPress, because after years of blogging and using different systems like Blogger and Typepad (and some others I can’t recall the names of), WordPress is my favorite for a number of reasons.
It’s stable and well-supported. It’s not just a side project of some folks who needed to do something fun and fulfilling on the weekends (that happens more often than you think). It’s managed by real people who do it for a living. And it’s actively supported. Sometimes they make changes to the interface that drive me nuts, but overall, it’s worth the hassle. There’s a ton of help and documentation about how to different things, but you can do a lot with just a little bit of information. There are many, many themes (designs) that give you a lot of different options, and they are also well supported.
You can do a lot with a little — for free. You can sign up for a free blog and be publishing your work in a matter of minutes. There are a lot of different customizations you can do, but you don’t have to do many at all, to get a functioning blog that looks good. Simplicity is important, if you just want to focus on your writing, instead of configuring your “technical platform”. And it doesn’t need to cost you anything other than your time and attention.
It has a lot of SEO stuff already built in – like “human-readable” urls, correct html, consistent page designs, and the ability to optimize your images so search engines love you. That is so important — I think one of the reasons I rank pretty high in Google, is precisely because I am on WordPress.
You’re automatically connected with a wider community. WordPress has a ton of bloggers on it, and they’re all connected via the Reader feature. You can easily find others on WP who write about the stuff you’re interested in, and they will show you the tags that people are using, so you not only find out who’s writing, but what they’re writing about the most.
They make it really, really easy. Signing up is easy. Setting up is easy. Blogging is easy – and you can also password protect and schedule your posts, if you like. Promoting is easy, too. For example, if you want to tell the world whenever you post to your blog, you can hook up Publicize to post to FB and tweet automatically whenever you publish. That’s important for your wider community.
I could list many, many more reasons why WordPress is my blog platform of choice, but the five above should be enough to convince you to give them a try.
In this section, I’ll talk in some detail about the basic things you want to do for proper setup.
Picking the right theme (design)
Setting up your blog with the most important elements – sidebars, widgets, sharing, and pages
Making your blog readable
Managing publishing, comments, and ongoing discussions
Making sure search engines can find you
You can read the tips and tricks in order, or you can take them piece by piece in whatever order you like. You can skip around and do what you please, and any one of these changes can make a positive difference. We don’t need to “boil the ocean” here – dealing with chronic health conditions is a big enough challenge, let alone adding a regular writing practice to the mix. You can make it as simple or as complicated as you like, but even in its simplest form, a blog can make a positive difference in others’ lives.