Help is on the way… I hope

American Heart Association: Neck manipulation may be associated with stroke – see the little tear in the blood vessel wall? That can be caused by prior trauma. So be careful. Fortunately, network chiropractic involves an approach OTHER than structural adjustment.

I’ve got an appointment with a network chiropractor later today. I’ve been to network chiropractors in the past, and they really helped me, but I’m no longer willing to drive a long distance to get to them. Now that my commute is much shorter, I am much more protective of my time.

Plus, this chiro is someone I wanted to work with, years ago, but they were too expensive.

Now, they have special packages for people who need help, so I’m getting help.

What I’m really hoping for is to get a break from the pain and to be able to rest better, so that I can get back to normal and complete some of the big projects I’ve had going for some time, but which haven’t gotten wrapped up, yet. My plan was to have at least one of them done last weekend, but the car accident prevented that.

I need to just get back to normal and proceed… Onward.

I’m pretty hopeful about this. Network chiropractic doesn’t involve a lot of structural adjustments, which can be dangerous for someone with a history of neck and brain injury. Those kinds of injuries can cause clots to form more, because the walls of blood vessels may tear, causing blood clots to form inside the tears. And neck adjustments can loosen the clots which may go to the brain and cause a stroke. Or they can even cause the tears which can lead to clotting… and to stroke.

No thank you. I’ve got enough on my plate, thank you very much.

Network chiropractic is all about re-tuning the autonomic nervous system and getting your system properly talking to itself again. It’s gentle and it’s very powerful, and it helped me a lot in the past. I have high hopes for this new chiro.

And I’m also looking forward to this coming weekend, when I can (fingers crossed) settle in and do the things I intended to do last weekend. I have a lot to do, and it’s great stuff. I just need to be allowed to do it.

Onward!

I feel like crap. I must be getting better

Wheeeeeeeeeeee….

Holy smokes, I am dizzy. I’m having difficulty keeping vertical, and I constantly feel like I’m about to fall over. It’s gotten so bad, that I had to cancel some appointments this week, because I really can’t drive long distances in this shape.

It’s either a cold / infection affecting my my inner ear, or it’s neck strain. I’m inclined to think it’s the latter, because it really sets in when I am looking up  for extended periods of time. I can focus intently on something, and that will make it better, but when I stop focusing on something intently, it comes back, and it’s pretty bad.

I’ve had problems with dizziness for many years. It’s been a problem for a long, long time, and I now believe it’s related to the head and neck injuries I’ve had over the years. I’ve been in a number of car accidents that gave me whiplash and screwed up my head and neck, and I’ve also fallen on my back and had my head snap back. So, I’ve had plenty of neck trauma over the years.

And dizziness, too. I’ve gotten used to it, in away.

The encouraging thing about this is that I can actually tell that I’m dizzy. In the past, I was so stressed out and so taxed, just keeping up with the simple day-to-day activities, that this sort of thing didn’t register with me. I just kept going. I just kept pressing on. I didn’t let it stop me… and it didn’t.The thing is, I didn’t really deal with it, either. And I certainly did not cancel appointments because I was off balance. That would have been stupid, according to the old me.

The fact that I’m making these sorts of decisions now tells me that I’m getting better, I’m better able to see what’s going on with me, and I’m better able to take care of myself.

It’s interesting – when I cancelled one of my appointments yesterday, the person I was going to see told m=e it sounded like I was acutely ill and needed to see my doctor.  I guess it did sound kind of dire, the way I described it. Then again, it didn’t. It was just about me being so dizzy that an additional 2-1/2 ours of driving (round trip) was not going t help my situation.

I  told them, No, I’m just more dizzy and crappy-feeling than usual, and I expect it to go away with time.Sure, I’ll contact my doctor, but not over something as common as this.

The thing is, I can track the increase in dizziness to when I started doing more overhead work around the house. I’ve had to do a bunch of repairs to items over my head, including changing light bulbs and cleaning windows and the eves of my house. I was also helping my neighbor do some overhead cleaning, too, and since then my neck has been very tight and sore and I’ve been dizzy. Even now, when I move my head from side to side, I get dizzy.

So, acutely ill, no.But extremely dizzy and not feeling that safe driving around, yes.

I’ll just do what I usually do, which is stretch more,work on my neck — and I also have a massage on Monday, which should help a lot. I’m looking forward to that. I should probably do it more often. There’s a place down the road from my home that has a jacuzzi and sauna and they also do a variety of massage types.Hopping in the jacuzzi to soak in hot water, then getting a massage sounds like about the best thing I could possibly do for myself, quite frankly.  That, and sleep.

Too bad I have to go to work later today.

Well, anyway, I actually do need to go back to my chiropractor. They really helped me before, and I need to go back, so I can address the lower back pain and the neck stuff. Now that I am working closer to home, it’s going to be possible for me to do this again. I had to stop going, because my commute was so long, and I was so tired, and going to the chiro added an extra hour to my daily commute, which was brutal.

Now that’s changed. I need to take action. So, I’ll give them a call later today.

Either before or after my manager sits down with my group and tells us about people getting laid off.

Oh, the excitement

The transmission went out on one of my cars. It actually imploded, and little bits of the machinery were floating around in the transmission fluid.

Not enough money for another car — so went ahead and had the transmission replaced. Not ideal, but for the money we’d have to spend, we could not have gotten a decent car.

Best just to suck it up and get the transmission done in the car we DO know about, and hope for the best for the next three years.

Money’s scarce. I wasn’t working for a week and a half in December/Jan, and if I don’t work, I don’t get paid. So I lost nearly half a month’s pay, and now I’m feeling it.

Ouch.

Oh, well.

Back to work. Pull in some extra hours and get the overtime. And hope for the best, that no more problems come up.

Health scares. More health scares. My good insurance is valid till the end of this year, then I need to make other arrangements. Like Obamacare or somesuch. It all seems so complicated and confusing.

I joke about it being easier to die, but some days it feels that way.

Not that I want to die. I think I’d settle for just being able to walk away from all of this. Move to the woods.Or go on the road. Just leave it all. People have good intentions, trying to help me get ahead at work, but honestly, I’d almost rather not.

Lord, how I would love to just lay it all down and walk away.

Adulthood is overrated. I want to be a pirate and sail the seas, knocking over pricey sailboats carrying rich couples, leaving the people alone, but making off with their loot.

Just an idea.

But with my luck, I’d get clunked on the head and would end up overboard.

I hit my head on the car door frame again last night. I keep doing that. It’s not fun. I’m feeling okay, afterwards. Same headache as usual. Still, I always wonder if THIS will be the final head injury that truly does me in.

I’m not there, yet. So I’ll count my blessings. And leave it at that.

Onward.

St. Barbara of Arrowsmith-Young

Thanks for the help this past Sunday

So, on Sunday I spent the afternoon reading Barbara Arrowsmith-Young’s “The Woman Who Changed Her Brain”, about how she learned how to identify the underlying issues beneath her severe learning disabilities, which had made her life a living hell for 26 years of her life. I found the book for free on Scribd.com — my new favorite place of all time. You can read the book for free here: https://www.scribd.com/book/224350322/The-Woman-Who-Changed-Her-Brain-And-Other-Inspiring-Stories-of-Pioneering-Brain-Transformation - you just need a free login.

Anyway, I am finding a lot of similarities between her situation and mine, despite obvious differences. And it occurs to me that after hearing a number of accounts of her hitting her head (running into things, banging her head before she started to study, etc.) TBI might just factor into her account. She focuses on the learning disabilities parts, rather than the root cause, so that makes the book more accessible for folks who have had any kind of difficulty with learning and understanding and communicating — me included.

One section in particular jumped out at me yesterday:

I recall a twelve-year-old student with average intelligence but whose severe weaknesses in both the left and right prefrontal cortexes left her as compliant as a young child — so compliant that other children would toy with her and order her to stand and sit on command or to stay in the schoolyard long after recess was over or to surrender her Nintendo game. Her neurological weaknesses had robber her of her ability to evaluate a command and decide whether it should be obeyed. She addressed her problem areas and eventually was able to say no.

That’s pretty much me — but in very different kinds of situations. I didn’t have a problem with being compliant and going along with others as a kid. If anything, I was defiant and went against what anyone and everyone told me to do (except for my love interests — they could always boss me around).

The compliance and obedience and lack of questioning happened in adulthood. And I wonder if the three car accidents, the fall off the back of the truck, and the occasional head-banging — all in my early adulthood — might have affected my prefrontal cortexes to the point where I would just compliantly do whatever my spouse told me to do.

If that’s the case — and my compliance has been neurological, rather than emotional or character-based — then that’s a huge relief. And it means I can do something about it. For close to 20 years, I pretty much went along with whatever my spouse told me to do. It wasn’t so pronounced in the beginning, but then it got worse.

I had a car accident in 1997 where I was rear-ended, and I couldn’t read for several days. The letters swam on the page, and I couldn’t concentrate on anything. I recall feeling weird and shaky and being a bit “off” for some time after the car accident, and I wonder if maybe that affected my prefrontal cortexes and made me more compliant. People around me thought my spouse was bullying me, that they were being abusive and domineering, but honestly, I just went along… because it was the only thing that seemed useful to me.

I need to check around to find out more.

Anyway, that’s just one part of the book that I’m really enjoying. There are a number of different places where I recognize myself — the hesitance, the inability to get things done, the self-regulation problems… I’m not sure I want to think about them in terms of learning disabilities, but rather brain capabilities. And they apply to all kinds of situations, not just educational ones. That’s something that the author talks about a lot — how addressing these learning disabilities will improve functioning in the rest of life.

What Barbara Arrowsmith-Young has done is remarkable. She’s really figured it out — and from the inside, not from the outside. It’s amazing. I’m a huge fan, and if I were religious, I’d recommend her for sainthood. Her story is one of the reasons I got myself into neuropsych rehab, in the first place — when I read Norman Doidge’s “The Brain That Changes Itself” her story stood out for me more than any others. Because she took it on herself, and she did the work, instead of having someone else do it for her. And now she’s passing it on to others. She does public lectures. She has her Arrowsmith School. She’s written a book.

Unfortunately for me (and probably many others), the Arrowsmith School is expensive. And it’s in Canada, which is not an impossible distance from me, but still… I have to go to my job each day, I don’t have a lot of money to spend, and I’m thinking there must be another way to get this kind of help without being locked into a specific location, or paying someone to get me on track.

Again, I come back to living my life as the best recovery. Living fully and reflectively. Mindfully. Engaged. All those catchwords that basically say,

Do the best you can each and every day…

Be honest with yourself about what’s going on…

Learn from books and movies and the world around you, your experiences, your teachers and your mistakes…

Change what you can so you do better next time…

And share what you learn with others.

Absent the resources to enroll in the Arrowsmith School for months (if not years), and with the help from a handful of competent professionals, I seem to be making decent progress.

Speaking of which, I’ve got some chores to do.

Onward.

Amiss, but getting better

On second (or third) thought… no thanks

I’m scrapping the idea of going to the ER today. I stretched and moved yesterday, and I took a real break — spent the afternoon napping, reading Barbara Arrowsmith-Young’s “The Woman Who Changed Her Brain” (more on that later), and just puttering around the house, taking it easy. I’m going to mention the left-side weakness to my counselor, just so someone else knows about it. And I’m probably going to check in with my neuropsych on Wednesday. I do feel better, after taking some time off, and now the idea of embarking on a medical adventure doesn’t seem like a good use of energy.

Oh. My. God. When I think about having to explain my situation to doctors all over again… Yeah, no thanks.

So, a big shout-out to those of you who talked me back from that edge. I owe you.

It’s Monday. Only two more days in the office 20 miles from home. Then I move to the office 5 miles from home. It’s exciting. Also, I’m barrelling down the road towards a couple of big-big deadlines this week. That makes things easier.

It’s interesting — I’m gradually getting the hang of living by deadlines and holding people to them. In past situations I’ve worked in, there were two kinds of situations. Either

  1. The deadlines were fluid and there wasn’t a hard-and-fast rule about when things got done, and in what order. People were sort of lackadaisical about doing their jobs, and if it got done, then woo hoo. But if it didn’t get done, oh well.    Or
  2. Deadlines were in place, but everybody was a top-notch over-achiever who would have sooner cut off their left hand, than not do their job.

Now, everything is about the deadlines… but I don’t have a top-notch gang of over-achievers available to me, to get the job done. I have maybe one or two, who are usually overworked.

Sigh.

Well, it’s all very educational. Now I get to learn how to motivate people who have no real reason to be motivated at all. They don’t report directly to me, they aren’t all that thrilled about their jobs, and the burning desire to excel doesn’t seem to light up their days and nights.

Interesting.

So, now I get to learn how to make it all happen. And in the end, that’s going to be a valuable skill. I just have to acquire it.

I’ve got some more work to do on restoring a sense of self after TBI. I’m also restoring a sense of my own self — as much by slogging through the tough times, as experiencing the good times.

In a way, slogging through the tough times is even more useful to me than having everything go well. It shows me that I can do this thing, called adapting and overcoming. And it teaches me valuable skills along the way. I am extremely rigid and uncompromising in some ways, which can come in handy, when it has to do with personal integrity and delivering on my promises. When things come up to oppose my grand plans — as they invariably do — I can either buckle and fall to pieces (that sometimes happens), or I can learn from it and add to my overall knowledge and skill in handling those types of situations.

I choose the latter. And instead of tearing myself down — e.g., beating myself up for going off the deep end yesterday with the sensations I’m having on my left side — I can learn from the experience, chalk it up to, well, being human, and move on with a little more information under my belt.

And when I focus on learning and growing from experience, that builds up my feeling about who I am and how I handle myself.  Getting bogged down in despair and frustration is not how I want to be. It’s now how I understand myself to be. So, I have to find a better way. And recognize my limits — my tendency to go all catastrophic on things that happen with me — so I can keep them from taking over my life. I have limits, just like anyone else, and they are part of me — but only a PART of me, not all of me.

Having a broader sense of myself as a collection of many features and qualities, as well as a lot of strengths along with my weaknesses, makes all the difference in the world. I can’t gloss over the tricky parts, but I sure as hell can emphasize the cool stuff, and make the most of that.

Speaking of making the most of things, I need to really focus on getting into my day. It is SO HARD to get going for work, this morning. Mondays have been very difficult for me, lately. Transitioning into work and really getting invested, has been a monumental task. I dread everything about it, and I can’t seem to get into the day, no matter what I do. I know why, though. It’s old patterns from many years of bad experiences that are cropping up again, just at this point in time. Four months into just about every endeavor, this happens with me. Like clockwork. More on that later.

Anyway, the day is waiting, and I have a lot to get done today. Things are looking up, and that’s a good thing.

Onward.

New season, new ways

Handle stress better with these exercises – click the picture to learn more

So, I’ve started to begin my days with a new routine — getting up and doing some meridian exercises, to get my internal energy flowing better. I’ve also been lifting weights. I haven’t been doing so much riding of the exercise bike, because I get headaches when I really push it, and then I feel bad the rest of the day.

At the same time, I still need to get my energy going in the morning, and this new routine seems to be doing the trick.

I found a book of meridian exercises for self-healing, and I’ve been doing all-over-body patting, as well as stretching exercises to get my “chi” moving. Then I lift weights for a little bit… have my breakfast of a banana, toast, butter-coffee… and I’m ready to start the day.

With everything going on, what’s become very clear to me, is that I need to improve my energy, my stamina, my ability to hold up under stress and strain. It’s no good, if I buckle under the pressures that are around me. Life is going to do what it will, so I need to strengthen myself to face up to it.

We all have within us massive stores of energy, and we can also draw energy from the world around us – if we simply let it flow. We get blocked up and stop the energy from coming in and going out and moving freely through our systems. And then things start to fall down. They start to come apart. That’s where I was last week, when I had my crisis with my spouse. What became so very clear to me, was that I was missing the opportunity to access all the energy that’s around me. And I needed to find a way to get to it, to use it, and to make the most of every situation, no matter how hard it might appear.

It’s no good for me to be falling apart — and it’s no good for me to be wrecking my rare vacations by melting down. I can’t let it all get to me the way I did last week, and I’m determined to keep my act together better than ever.

I also realize how much pressure I put on myself to achieve. It’s like I still have the old Type-A personality, but my abilities are different now, than before. I still use stress and pressure to wake myself up, but I don’t have a balanced enough approach to it, and I get tired… and end up using more stress and pressure (and sugar and caffeine and junk food) to keep myself moving.

And I need to factor that in. Over the past few days, I’ve been longing for the “good old days” when I could still do programming and learn new languages easily. That’s not the case anymore. None of it makes sense to me the way it used to, and it’s depressing as sh*t. So, I need to get that out of my head and focus on things that matter to me now. And that I can do now. And that give me good quality energy, not the adrenaline-rush of stress and pressure, which ultimately bogs me down.

The days are getting shorter, and fall is definitely on the way. I do feel more energy these days than I have in a long time, and I credit the exercises for that. I’m also taking the pressure of myself for the projects I’ve got going — somehow, they ballooned into massive undertakings that “had the potential to be huge”. For some reason, I’m always thinking BIG, which is fine — except when it involves every single aspect of my life, making my existence into a total slog through mud.

I invent the pressure for myself — I think to keep myself actively engaged in my life. But it tends to get blown way out of proportion, in many, many aspects. And my quality of life goes to hell. And for what?

Well, anyway, I’ve gotten a head-start on the day, checking in with work early, so I can get some questions answered by colleagues over in  Europe. It’s been about four months, since I had regular dealings with colleagues in Europe — in my last job, it was most of what I did, but in this new job, there hasn’t been much of that. Now I’m getting more integrated with the European crowd — and also folks in Asia. So, that old routine is coming back — but this time with more sanity, and more of a collegial sense. In my last job, there was a lot of antagonism between the US and everyone else, and it wasn’t helpful. In this job, there’s a very collegial feel, although there is some naturally occurring cross-cultural tension. Different ways of doing things… But I’m very comfortable with the European ways of working and structuring things, so that’s a big help.

Who knows? I may even get to do some international travel. This time it will be very different, though, because I have past experience under very trying circumstances. So, the second time around promises to be better. At least, that’s what I’m hoping.

Anyway, as the seasons change, I am more focused on really strengthening myself from within, to handle whatever comes my way. I now feel at peace with my surroundings, for the most part, and that’s because I’m putting the focus on taking care of myself, strengthening my system, keeping stable and firm under challenging circumstances. Everything I do in my life, I consider a training for something else to come later, so really bringing focus to it and doing my best, no matter what, is my #1 Priority.

That being said, it’s time to get ready for work and head into my next stage of the day. I’ve had a productive morning, already, and this job is turning out to be pretty darned cool. Instead of being pressed to produce-produce-produce, racing the clock on limited resources and never enough time… I’m getting paid to manage projects at a higher level and motivate my team members. And so far, it’s working out well.

Even when things are very tough, it’s still good. It’s very good, indeed.

Pick your perspective

It’s all in the eye of the beholder

My new project, these days, is working on my perspective. I have fallen prey to a lot of anger and bitterness and also resentment about things which are actually nobody’s fault. They just happen. And it doesn’t make a lot of sense for me to get all tweaked about them.

Things at work are very tense and stressful for a lot of folks. I know that they will be okay, and everything will turn out okay over time. But there is a lot of stress and strain going on, and a lot of people are very nervous about their team’s ability to do the job — and do it right.

It has been getting to me, too. That much has been clear, in the past several weeks. I’ve been having episodes where I suddenly get tunnel vision, and then I have a headache for days after that. I also feel foggy and dull – numb and dumb – and I’m very low, physically. I need to address this, because my physical health directly affects my point of view. My neuropsych focuses on my thinking and how it stresses me out. And that’s true — my crappy perspective doesn’t do me any favors, sometimes. At the same time, my physical health plays a huge part in it, and I have been feeling very low and dull and lethargic.

I seriously need to jump-start myself. I’m just so blahhhh… I’m in a new job that’s closer to home, which means I don’t have to work as hard to get there. But having things be easier that way has not translated to my energy improving. The thing is, all my energy used to come from adrenaline and extreme stress, and now that it’s not there anymore, I need to replace it with something else.

Like physical fitness. I worked out more this morning than I have in a while — lifting weights and focusing on my arms, which have become flabby and fat. I usually wear long sleeves, so I don’t see my arms as they are, but lately I’ve been noticing them.

I think things will turn around in another couple of months, when we have moved to a new building that has a gym I will be able to use. Also, the location is 10-15 minutes closer to my home, so I will have more time to exercise, in addition to the other things I do.

I also need to start doing something when I get home from work in the evenings. Last night, I was so exhausted when I got home, I had to lie down for an hour before I made supper. Fortunately, I got home early enough that I could do that. I was wiped out. Completely done. Feeling sick and stupid. And later I had an argument with my spouse that really bothered me, because their cognitive decline is starting to show more and more. They had trouble speaking, and they got really angry over something I was doing — and I just didn’t feel like taking the brunt of their anger after such a long day.

So, I really need to work on my outlook and my perspective in life. I need to find a way to make peace with things turning out as they do — and not fight it all the time and turn it into a tragedy in my head. Or maybe just let it be a tragedy and accept it as such. Shit happens. And it happens to all of us.

So it goes.

Not for me, though. I’m determined to not let myself go down that route. My spouse lives in a very different world than mine — very paranoid and suspicious and antagonistic. It’s like we live on different planets; yet theirs is every bit as real for them, as mine is for me.

There’s no point in arguing about whether or not it’s true — it’s true for them, it’s real for them, and that’s the experience they’re having. The real problem is that I can’t accept it, I feel really judgmental towards it, and it makes me so uncomfortable. And when I’m tired, I get very rigid and am quick to anger.

That doesn’t help.

Anyway, I’m feeling good that I got in that exercise, first thing this morning. My arms are tired — and that’s a really good sign. It means I’m making the point to do something right, that I’ve been neglecting for a long time.

Happy Saturday, everyone.

Onward.

When bad things happen to good people

The road ahead is not always clear

The road ahead is not always clear

Oh, this is upsetting. My neuropsych is having potentially serious health issues, and we won’t be meeting next week.

The upsetting thing is not so much that I won’t get to meet with them. It’s that they are having health issues. Their situation is not certain. You like to hope for the best and stay positive, but with the healthcare system as it is, you never know…

I really got thrown for a loop yesterday. When I first talked to them to cancel our appointment, I was fine. I was feeling very positive and supportive, and I think I helped them feel better. I made them laugh a little, which always helps. Then I took a nap later in the day, and when I woke up, I was very, very sad. Because if something happens to them, so they can’t work anymore, I had the distinct impression that I will go back to being alone.

And that made me so sad, I started to cry. I hate when that happens. I suddenly felt so alone, so small and so vulnerable. I felt like I was five years old again, being left behind as the school bus going home pulled away from the curb, leaving me alone and not able to get back home from my first day of kindergarten. In the past six years that we have worked together, my neuropsych has really been the only reliable person in my life who has not judged me for being different, who has understood the challenges I’m up against, and who has really cheered for my advances, instead of just treating them like something I should have been able to do, all along. If I lose their regular presence in my life, it’s going to be a real blow.

I felt kind of crappy, feeling that way, because it was all about me. I’ve been working on that tendency to always think of myself first and not pay any attention to anyone else’s needs. But I’m also feeling upset that this is happening to them, because they are a really good person who has been on the business end of life’s cattle prod many times too often, and I hate that they have to go through this — especially as they are nearing retirement age, and no one should have to spend their later years in terrible physical condition.

I wish there were something I could do, but my neuropsych is a private citizen, and it would be inappropriate for me to try to contact them outside our clinical relationship. I feel very helpless – life is just doing what it’s doing, and I can’t really do anything to stop it. All I can do is adjust. And take care of myself.

I hate feeling selfish like this. It really bothers me, that my first thought is “What will happen to me?” I know that is not a reflection of my “highest self”. I am better than that.

So, I am doing something about it, and I am searching online for volunteer opportunities, to reach out and help others. I don’t want to be “that person”. I want to be better. I know how good it makes me feel to be reassured and assisted with things I don’t know about. I’m very independent, and having additional help from experts gives me some measure of reassurance I need, in the midst of what can be a very confusing and disorienting world. I have skills I can pass along to others who want to learn, and by offering others what I myself seek to have, that can get me out of my funk and keep the focus off me-me-me.

In all honesty, I need to be thinking this scenario through, anyway. My neuropsych is at the end of their career, and they’re not going to be practicing forever. I’m fortunate/unfortunate enough to have worked with them when they are at the high point of their professional practice, having spent decades refining their approach and having already had tons of experience with what works — and what doesn’t.

I’ve had the good sense to avail myself of their help when I’ve needed it. The thing is, I’ve done so much of my work by myself — and then checked in with them after the fact — that it’s not their guidance I rely on; it’s their assessment and feedback about what I’ve done and whether or not the result is what I was hoping for.

It’s been one big, fantastic science experiment, in all the best senses of the word, and I’ve really benefited. And to be honest, so have they. They’ve never directly told me the details about how my work has helped them, but they once mentioned to my spouse that it’s hugely encouraging for them to work with me, as I’m so intent on getting better and really putting in the work. They said that most of their brain injury survivor patients aren’t willing to do the work to really get better. How depressing that must be…

The working relationship has been mutually beneficial for sure. I know they’ve gotten better, themself, because the difference between how they are now and how they were when I first met them, is significant. When I first met them, they were much more tentative, spacy, and absent-minded. They would forget appointments with me, they seemed more hesitant in so many ways, and they didn’t have their act together with billing and business management details.

In the past six years, they’ve really stepped up their game, and I like to think that working with me has helped. In, fact, I’m sure of it. And the time when I went to meeting with them every other week, instead of every week, they seemed to regret not checking in with me each week.

I guess one of the things that’s kept me motivated over the past years, has been knowing that my progress was helping another person. Knowing that getting better myself was helpful to my neuropsych — which then made it possible for them to help others — has been a driving force behind my recovery. It’s not just about me. It’s about all of us.

This blog, too, has been a big part of my recovery, and hearing from folks that I’ve helped them, or they respond to things I write, has been a real boost for me in so many ways. My TBI recovery doesn’t just belong to me. It really belongs to all of us. I happen to benefit from it — and so do many, many others.

So, that keeps me going.

And I wish I could do more. I really do. There are so many brain-injured people suffering and alone and afraid, because of what’s happening inside their heads — and bodies — that they don’t fully understand. That goes for strokes, acquired brain injuries, and traumatic brain injuries, alike. We’re all a little bit different from each other, yet we have so much in common. And we need to focus on that commonality. The professional community stands to gain from divvying up our issues into different categories and disciplines, so they can mobilize their resources to address each aspect. But for those of us suffering from the symptoms and after-effects and ripple-effects of brain injury, this segmentation just makes things worse.

Those of us who have experienced brain injuries need to be connected with the larger world. We need to be involved in a community. And the way brain injury recovery is set up in this nation, is the worst way to handle things for us. It’s limited by insurance and the abilities and knowledge of people who are not adequately trained in brain injury issues, and who frankly run out of steam, because brain injury does such an unpredictable number on its “recipients”. Also, our loved-ones get the brunt of things, because they’re ultimately our last line of assistance, but nobody out there truly understands

Lord, we are exhausting.

So, those of us who can, need to do something about it. I have posted the Give Back training I downloaded to my site here https://brokenbrilliant.wordpress.com/brain-injury-association-resources/give-back-tbi-education-for-survivors-and-families/ I hope people will make use of it. The information has helped me so much, and I do need to go back to it… and I shall. With a fresh look, years after the first time I downloaded it and started to read it.

I have some other ideas about how to help… including more ideas for this blog. I’m getting a bit long-winded here, so I need to wrap it up… and also get on with my day visiting my family. I don’t get to see them that often, so I need to take advantage, and get on with my morning.

I’ll be driving back home later today — and it’s another gorgeous day — so I need to get my act together, get off my damn’ pity-pot, and make the most of what I have. Each and every day.

Onward.

Getting into my routine

Feels really good. I managed to get to bed at a decent hour, last night, which was fantastic. I also took care of some chores around the house that needed to be done, which also felt good.

I’m settling into a daily routine I can live with, and it feels pretty awesome. Like I’m hitting my stride. It takes a while for me to get to this point, but I can be disciplined when I put my mind to it, so…

I’m figuring out the best way to exercise in the morning. I have to do at least something every day. Ride the exercise bike. Lift weights. Stretch. Do something. I work with people who are a whole lot healthier than the folks I worked with before, and it’s inspiring for me to see them being healthy and happy.

I’m also getting the logistics down. Learning my way around. I’m figuring out the best routes to drive to work… knowing when to get off the freeway and when to just hang in there, because traffic will ease up in another mile or so… finding my way around the building… getting to know the ins and outs of everything.

So, it’s starting to really come together, and I’m incredibly grateful for this.

Speaking of routine, it’s time to get ready for work.

Hard work – and stress – paying off

Yeah, it’s paying off :)

I don’t want to sing the praises of stress right now, because I don’t want anyone getting the idea that I think stressing yourself out is a great idea. I will say, however, that the added strain of working long hours, this past week, is paying off — in terms of a full day off work, so I have an uninterrupted day to do some things I’ve been wanting to do for a while.

I’m getting my neck worked on. The left side is very sore, and the tightness there is translating to a right hip that feels arthritic. I know it’s not arthritis — it’s muscular, because of the location of the pain, but it’s keeping me awake at night, and it’s making my life more difficult.

I’ve been trying to do physical therapy and acupuncture, but the results have been slow. I need to have someone just work on my neck and get my back and shoulders loosened up. Kind of fast-track it.

I also worked out this morning more than I have in months. I actually got on the exercise bike for 10 minutes. I rode easy for 5 minutes, then I did a few 30-second alternating intervals of fast/easy, and I finished up with 2 minutes of slow and steady. Then I lifted slightly heavier weights than I have been, in the past – fewer reps, more weight, with tons of attention to form.

And it felt great. Just working up a sweat felt great. It’s been a long time, since I really pushed myself — partly because I’ve been having headaches when I push myself while exercising. I do have a slight headache now, but I can live with it. I’m just drinking extra water and stretching my neck and shoulders.

I’m also taking some time to get on Facebook and reconnect with my friends there. I miss my coworkers from my last job. Well, some of them, anyway. I think the thing I miss most is their predictability. My brain and system got used to dealing with them, and it developed behavioral habits that I came to depend on, to add structure and meaning to my life.

One thing I do NOT miss about them, is how young and frivolous they can be. I really could tell that most of them were 20 years younger than me, and it’s nice to not have to deal with them anymore.

I’m also getting my head on straight about my new job. Turns out, the crowd I’m working with is about 10-15 years younger than me, which has also turned out to be a bit of a pain. Their priorities and interests are completely different from mine, and frankly I can do without every singe conversation centering around who’s getting pregnant, who’s having kids, what their kids are doing, if their kids are sick, the dance recitals, the summer vacations. There are a few folks there who don’t live their lives around “little ones”, so I’ll need to seek them out more actively. The team I’m working most closely with is quite focused on child-rearing, and I’ve got nothing to offer there.

So, I’m going to take some time today and over the next few days to do some heavy-lifting thinking and really dig into some of the writing I’ve been doing, lately. I’ve got a handful of projects I’m working on, and some of them are very demanding, mentally. It’s like I’m going down a rathole of abstract concepts, and each one leads a little bit deeper in. So, it feels like I’m “flying blind” into the abyss… and I love it.

I’m the only one who knows the details about the abstractions I’m exploring. I’ve tried to explain them to others, but I haven’t had much luck communicating. They’re “thought experiments” of sorts, just exercises to tweak my thinking process and help expand my working memory capacity.

The main thing with these thought experiments, is that they really excite me and delight me. So, there’s a real motivation and impetus to explore. To expand. To see how much I can extend my own abilities. Of course, I need to balance this out with plenty of rest and recovery, so the connections I’m building in my brain have a chance to “set” before they’re tested, again.

That’s what the past week or so has been about. I really pushed myself cognitively for a few weeks, back when I was changing jobs and everything was in flux. It was a great way to both take my mind off the stresses of my daily life transition, and also get some new types of activity going on in my brain. I really need that — new activities that test me.  Sometimes I may overdo it, but that’s where rest and recovery come in.

And it’s good. It’s all good.

So, stress… I’ll write more about that later. I am a firm believer in periodically applying stress to test the system, then backing off to let the system recover and recuperate. I believe that’s what makes us stronger — for me, with my TBI symptoms, I need to be careful about over-doing it. Obviously. But if I can realize — and remember — that added stress is the source of my issues, and then take the edge off when I need to… it doesn’t have to doom me.

The main ingredient is mindfulness. And responsibility. And being realistic about my limits and working with them so that I can expand them, rather than trying to avoid/deny them and then shooting myself in the foot.

It’s really a balancing act. And now it’s time to balance out my day with some reading, juggling, and a bit of relaxation.